Values in Care

    Cultural dimensions

    Values are not only religious.

    Language, how much a person wants to be told, migration, disability, distance, and cost all shape care. They sit alongside faith, not under it.

    Published

    Every practice below cites a verified source. The evidence itself lives on Care Frameworks; these pages point at it rather than restating it.

    Declared, not published

    These dimensions matter and are missing. Each names the review it awaits. Writing them without that review is the harm the review exists to prevent, so nothing here has invented narrative.

    • LGBTQ+ people

      Awaiting review

      Identity-affirming care, chosen family, confidentiality, and the risk of a tradition summary being used to invalidate a person.

      Gap G15 (P0) requires paid LGBTQ+ and intersex patient and specialist review, privacy-by-design and safe-display controls, and an explicit prohibition on using religious summaries to invalidate identity or withhold standard care. Publishing this written alone would be the harm the gap describes.

    • Disability

      Awaiting review

      Supported decision-making, communication access, and separating decisional capacity from diagnosis.

      Gap G12 (P0) requires a disability-led review group, anti-ableist review, and safeguards against substituted quality-of-life assumptions. A non-disabled author writing this unreviewed is the failure mode.

    • Immigration and displacement

      Awaiting review

      How immigration status, displacement, and prior experience of institutions shape what feels safe to say to a care team.

      Needs sourced claims verified against primary sources, which requires the live citation check this environment cannot run, plus review by people with the lived experience.

    • Rural communities

      Awaiting review

      Distance, workforce shortage, and what changes when the nearest hospice is hours away.

      Needs sourced claims through the citation pipeline. The existing barriers chart on /data-hub carries no citation and is not a usable basis.

    • Veterans

      Awaiting review

      Service-connected illness, VA and community care, and moral injury at end of life.

      No verified citations on this dimension exist in the dataset yet. Nothing to publish that would survive the citation gate.

    • Economic pressure

      Awaiting review

      When cost, transport, work, and caregiving capacity constrain what a person can actually choose.

      Gap G11 (P0) requires distinguishing preferred, chosen, available, delivered, and declined before this can be stated responsibly, since a preference framed as free choice is misleading when the option was never available.

    Why there is no comparison grid

    A table of groups against clinical topics reads as a lookup, and a lookup gets used to predict a person, to profile them, or to overrule what they said. So the data behind these pages has no field that can hold a group position on a clinical question. It carries practices and questions instead.

    What this resource does not do
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    Values in Care is in early development.

    An independent project helping families and care teams navigate end-of-life decisions with clarity and compassion. We welcome faith leaders from specific traditions, interfaith and secular/humanist leaders, clinicians, chaplains, palliative and hospice teams, and funders to review and strengthen this work. If this resonates, reach out.

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