Verification & Scope

Sources & Citations

Every public-facing figure links back to a primary source. This page is the canonical list. See Methodology for how each is graded.

248 citations · 24 resource entries · Last updated 2026-08-31

Resource library

Clinical Practice Guidelines for Quality Palliative Care, 4th edition
National Coalition for Hospice and Palliative Care · 2018
National consensus guidelines outlining eight domains of quality palliative care.
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Spiritual Care: Tools and Resources
Center to Advance Palliative Care · 2024
CAPC toolkit with research, tools, and training resources for spiritual care in serious illness.
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Communication Skills Training
Center to Advance Palliative Care · 2024
CAPC online curriculum on serious-illness communication.
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Leading Goals of Care Conversations
Center to Advance Palliative Care · 2026
Course and conversation script for structuring goals-of-care discussions.
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Conversation Script: Goals of Care
Center to Advance Palliative Care · 2024
Practical script and language examples for goals-of-care conversations.
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Palliative care – Fact sheet
World Health Organization · 2020
Global WHO fact sheet summarizing palliative care needs, access gaps, and policy priorities.
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Global Atlas of Palliative Care at the End of Life
WHO & Worldwide Hospice Palliative Care Alliance · 2014
Foundational atlas quantifying global need for palliative care at the end of life.
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Spiritual Care Guide in Hospice Palliative Care
Journal of Hospice and Palliative Care · 2023
Guide describing a spiritual care model and process for adult hospice and palliative patients.
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An EAPC white paper on multi-disciplinary education for spiritual care in palliative care
European Association for Palliative Care · 2020
EAPC consensus paper on spiritual care education competencies.
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Pain Control for People with Cancer and AIDS
Disease Control Priorities Project · 2006
Global cancer and AIDS pain burden, WHO analgesic ladder, and opioid access issues.
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Global Outlook on Palliative Care in Cancer
The American Journal of Managed Care · 2015
Review of global access to opioids for cancer pain.
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Only 1 in 10 people who need palliative care, receive it
United Nations / WHO · 2021
UN News article summarizing WHO data on global palliative care need and access.
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Alleviating the access abyss in palliative care and pain relief
The Lancet Commission · 2018
Overview of the Lancet Commission's serious health-related suffering framework.
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NHPCO Facts and Figures, 2024 Edition
NHPCO / National Alliance for Care at Home · 2024
Annual U.S. hospice statistics including Medicare hospice beneficiaries and utilization.
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Religious Understandings of a Good Death in Hospice Palliative Care
SUNY Press · 2012
Edited volume comparing religious concepts of a good death across major traditions.
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End-of-Life Care Considerations for Muslim Patients
Palliative Care Network of Wisconsin · 2025
Clinical Fast Fact on Islamic perspectives on suffering, opioids, life support, and DNR.
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Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims
Journal of Palliative Medicine · 2022
Practical tips on prayer, opioids, sedation, life support, and organ donation for Muslim patients.
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The Moral Status of Organ Donation and Transplantation Within Islamic Law
Fiqh Council of North America · 2024
Detailed FCNA fatwa on organ donation and transplantation in Islam.
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Do not resuscitate, brain death, and organ transplantation: Islamic perspectives
Journal of Anaesthesiology Clinical Pharmacology · 2017
Review of Islamic legal and ethical perspectives on DNR, brain death, and organ transplantation.
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Faith Engagement – Faith Communities for End of Life Options
Compassion & Choices · 2024
Toolkit and stories for faith leaders addressing end-of-life options.
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Healthcare Inequities in Palliative Care
New Jersey State Policy Lab · 2025
Policy brief on inequities in palliative care access among underserved populations.
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Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology
BMC Palliative Care · 2024
Updated analysis of serious health-related suffering and palliative care need.
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Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022
International Journal of Environmental Research and Public Health · 2024
Review of community-based palliative interventions and WHO estimates of global need.
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Goals-of-Care Conversations: 3 Ways to Improve Your Skills
ACP Decisions · 2020
Key steps and training resources for goals-of-care discussions.
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Citations

World Health Organization (2020). Palliative care. WHO. https://www.who.int/news-room/fact-sheets/detail/palliative-care
World Health Organization (2020). Palliative care | Knowledge Action Portal on NCDs. WHO. https://www.knowledge-action-portal.com/en/content/palliative-care-0
WHO & WHPCA (2014). Global Atlas of Palliative Care at the End of Life. WHO. https://www.iccp-portal.org/sites/default/files/resources/Global_Atlas_of_Palliative_Care.pdf
WHO (2021). Only 1 in 10 people who need palliative care, receive it. UN News. https://news.un.org/en/story/2021/10/1102262
Knaul, F. M., Farmer, P. E., et al. (2018). Alleviating the access abyss in palliative care and pain relief. . https://mia.as.miami.edu/_assets/pdf/lancet-palliative-care-report-overview.pdf
Knaul, F. M., et al. (2025). The evolution of serious health-related suffering from 1990 to 2021. . https://www.hematologyadvisor.com/news/palliative-care-lancet-commission-extended-data-global-access-treatment-risk/
Best, M., Knaul, F. M., et al. (2024). Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology. . https://pmc.ncbi.nlm.nih.gov/articles/PMC11253038/
National Consensus Project (2018). Clinical Practice Guidelines for Quality Palliative Care, 4th edition. National Coalition for Hospice and Palliative Care. https://www.nationalcoalitionhpc.org/ncp-guidelines/
Center to Advance Palliative Care (2024). Spiritual Care – Tools and Resources. CAPC. https://www.capc.org/toolkits/spiritual-care/
CAPC (2024). Communication Skills Training. CAPC. https://www.capc.org/training/communication-skills/
CAPC (2026). Leading Goals of Care Conversations. CAPC. https://www.capc.org/training/communication-skills/leading-goals-of-care-conversations/
CAPC (2024). Conversation Script: Goals of Care. CAPC. https://www.capc.org/conversation-script-goals-of-care/
CAPC (2026). Communication Skills for Conversations About Serious Illness. CAPC. https://www.capc.org/training/learning-pathways/communication-skills-conversations-about-serious-illness/
Kim, S. J., et al. (2023). Spiritual Care Guide in Hospice Palliative Care. . https://pmc.ncbi.nlm.nih.gov/articles/PMC10703561/
Best, M., et al. (2020). An EAPC white paper on multi-disciplinary education for spiritual care in palliative care. . https://pmc.ncbi.nlm.nih.gov/articles/PMC6964109/
Beaussant, Y., et al. (2023). Spiritual Care as a Core Component of Palliative Nursing. . https://pmc.ncbi.nlm.nih.gov/articles/PMC9983559/
Gamondi, C., et al. (2013). An EAPC white paper on palliative care education – Part 2. . https://www.sicp.it/wp-content/uploads/2018/12/6_EJPC203Gamondi_part2_0.PDF
Foley, K., et al. (2006). Pain Control for People with Cancer and AIDS. Disease Control Priorities Project. https://www.dcp-3.org/sites/default/files/dcp2/DCP52.pdf
Johnson, M. J., et al. (2015). Global Outlook on Palliative Care in Cancer. . https://www.ajmc.com/view/global-outlook-on-palliative-care-in-cancer-
Paice, J. A., & Ferrell, B. (2018). Pain and Opioids in Cancer Care. . https://ascopubs.org/doi/10.1200/EDBK_180469
NOSM University (2021). Complex Pain Management in Palliative Care. NOSM University. https://www.nosm.ca/wp-content/uploads/2021/06/ComplexPain.pdf
NHPCO (2024). NHPCO Facts and Figures 2024. National Alliance for Care at Home. https://allianceforcareathome.org/wp-content/uploads/2024/09/Facts-Figures-2024_FINAL.pdf
Huang, Y., et al. (2025). Healthcare Inequities in Palliative Care. NJ State Policy Lab. https://policylab.rutgers.edu/publication/healthcare-inequities-in-palliative-care/
Coward, H., & Stajduhar, K. (Eds.) (2012). Religious Understandings of a Good Death in Hospice Palliative Care. SUNY Press. https://hamdir.ir/wp-content/uploads/2021/10/Religious-Understandings-of-a-Good-Death-in-Hospice-Palliative-Care.pdf
Journal of Hindu-Christian Studies (2013). Review of Religious Understandings of a Good Death. . https://digitalcommons.butler.edu/cgi/viewcontent.cgi?article=1592&context=jhcs
Crossroads Hospice (2014). Muslim End-of-Life Care: Islamic Hospice Practices. Crossroads Hospice. https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/islam/
Crossroads Hospice (2015). The Culture Connection: Muslim End-of-Life Practices. Crossroads Hospice. https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/october/13/the-culture-connection-muslim-end-of-life-practices/
Rassool, G. H., & Al-Sharfa, R. (2015). Spiritual Aspects of End-of-Life Care for Muslim Patients. . https://gatewayeol.com/wp-content/uploads/2017/07/Islam-Spritula-Aspects-of-end-of-life-Original-Format.pdf
Palliative Care Network of Wisconsin (2025). End-of-Life Care Considerations for Muslim Patients. PCNOW Fast Facts. https://www.mypcnow.org/fast-fact/end-of-life-care-considerations-for-muslim-patients/
Sachedina, A., et al. (2015). End-of-Life Care. NCBI Bookshelf. https://www.ncbi.nlm.nih.gov/books/NBK500176/
Padela, A. I., et al. (2017). Islamic Moral Values and End-of-Life Care. . https://southernanthro.org/wp-content/uploads/2017/12/islamic-moral-values-article.pdf
Mahmood, M., et al. (2022). Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims. . https://pmc.ncbi.nlm.nih.gov/articles/PMC9715378/
Auda, J., & FCNA (2024). The Moral Status of Organ Donation and Transplantation Within Islamic Law. FCNA. https://fiqhcouncil.org/the-moral-status-of-organ-donation-and-transplantation-within-islamic-law-the-fiqh-council-of-north-america/
Albar, M. A. (2017). DNR, brain death, and organ transplantation: Islamic perspectives. . https://www.thieme-connect.com/products/ejournals/abstract/10.4103/2231-0770.203608
LifeCenter Northwest (2025). Islam and Organ Donation. LifeCenter Northwest. https://lcnw.org/islam-and-organ-donation/
Crossroads Hospice (2014). Catholicism & End-of-Life Care. Crossroads Hospice. https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/catholicism/
Catholic Answers (2025). Anointing of the Sick. Catholic Answers. https://www.catholic.com/tract/anointing-of-the-sick
Our Sunday Visitor (2024). The special graces offered in the Sacrament of Anointing. OSV. https://www.oursundayvisitor.com/reflections-and-teachings-on-the-churchs-pastoral-care-of-the-sick-and-dying/
Shamash, S. (2023). Jewish End of Life Practices. Memorial Society of BC. https://memorialsocietybc.org/jewish-end-of-life-practices-by-rabbi-susan-shamash/
Kavod v'Nichum (2022). Shmirah & Taharah. Kavod v'Nichum. https://kavodvnichum.org/taharah-shmirah/
My Jewish Learning (2024). Jewish Death and Mourning 101. My Jewish Learning. https://www.myjewishlearning.com/article/death-mourning-101/
Crossroads Hospice (2014). Jewish End-of-Life Care. Crossroads Hospice. https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/judaism/
Last Journey (2023). Why do Hindus immerse ashes in the Ganga?. Last Journey. https://www.lastjourney.in/blog/why-do-the-hindus-believe-in-immersing-the-ashes-in-the-holy-river-ganga/
Carewell Cremations (2025). Guide to Antyesti: Hindu Funeral and Mourning Rituals. Carewell Cremations. https://carewellcremations.com/guide-to-antyesti-hindu-funeral-and-mourning-rituals/
After.com (2025). Hindu Funeral Rituals Guide. After.com. https://www.after.com/articles/hindu-funeral-rituals
Patterson, B. (2010). Caring for Tibetan Buddhists at the End of Life. Beth's Substack. https://www.bethspatterson.com/p/caring-for-tibetan-buddhists-at-the-end-of-life
Caregiver Revolution (2017). Phowa. Caregiver Revolution. https://thecaregiverwebsite.com/end-of-life-matters/phowa/
ehospice (2016). Buddhist perspectives on end of life care. ehospice. https://ehospice.com/usa_posts/buddhist-perspectives-on-end-of-life-care-a-conversation-with-phra-paisal-visalo/
Hospice of Michigan (2024). Locations. Hospice of Michigan. https://www.hom.org/locations/
Hospice of Michigan (2024). Training Locations – Southeast Michigan. Hospice of Michigan. https://www.hom.org/training-locations/
Henry Ford Health (2025). Contact Us – Henry Ford Hospice. Henry Ford Health. https://www.henryford.com/Services/At-Home/Hospice/Contact-Us
Henry Ford Health (2025). Hospice. Henry Ford Health. https://www.henryford.com/Services/At-Home/Hospice
Henry Ford Health (2025). Palliative Care. Henry Ford Health. https://www.henryford.com/Services/Palliative
Corewell Health (2024). Hospice Care Services. Corewell Health. https://corewellhealth.org/care-and-specialties/continuing-care/hospice-care
Corewell Health (2024). Palliative Care | At Home. Corewell Health. https://corewellhealth.org/care-and-specialties/continuing-care/palliative-care
Compassus (2025). Compassus Locations – Michigan. Compassus. https://www.compassus.com/locations/michigan/
Angela Hospice (2025). Why Choose Angela Hospice. Angela Hospice. https://angelahospice.org/why-choose-angela-hospice/
Livonia-Westland Chamber (2023). Angela Hospice – Livonia. Livonia-Westland Chamber. https://business.livoniawestland.org/list/member/angela-hospice-251
Catholic Charities USA (2024). Catholic Charities of Southeast Michigan. Catholic Charities USA. https://www.catholiccharitiesusa.org/members/catholic-charities-of-southeast-michigan/
CCSEM (2024). Catholic Charities Senior Outreach. United Way for SE Michigan. https://liveunitedsem.galaxydigital.com/agency/detail/?agency_id=154584
JFS of Metro Detroit (2026). Jewish Family Service of Metro Detroit. JFS. https://www.jfsdetroit.org
Arbor Hospice (2026). Arbor Hospice – Idealist. Idealist. https://www.idealist.org/en/business/3322082ef6af47ca9177f260725b4629-arbor-hospice-ann-arbor-ann-arbor
Arbor Hospice (2023). Arbor Hospice. Arbor Hospice. https://arborhospice.org
Compassion & Choices (2024). Faith Engagement. Compassion & Choices. https://compassionandchoices.org/take-action/community-engagement/faith-outreach/
Compassion & Choices (2020). Our Accomplishments. Compassion & Choices. https://compassionandchoices.org/resource/accomplishments-improving-care-expanding-options-end-life/
ACP Decisions (2020). Goals-of-Care Conversations: 3 Ways to Improve Your Skills. ACP Decisions. https://www.acpdecisions.org/goals-of-care-conversations-3-ways-to-improve-your-skills/
Senior Resource Connect (2024). ProMedica Hospice Care. Senior Resource Connect. https://seniorresourceconnectmi.org/resource-directory/listing/heartland-hospice-care/
CSU Shiley Haynes Institute (2024). Palliative Care Education Changes Everything. CSU. https://csupalliativecare.org/palliative-care-education-changes-everything/
IJERPH (2024). Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022. . https://pmc.ncbi.nlm.nih.gov/articles/PMC11311615/
U.S. Government (CMS) (2023). 42 CFR §418.64 — Hospice Conditions of Participation: Bereavement Counseling. Electronic Code of Federal Regulations (eCFR). https://www.ecfr.gov/current/title-42/chapter-IV/subchapter-G/part-418/subpart-D/section-418.64
Wright, A. A., Zhang, B., Ray, A., et al. (2008). Associations between End-of-Life Discussions, Patient Mental Health, Medical Care near Death, and Caregiver Bereavement Adjustment. . https://pubmed.ncbi.nlm.nih.gov/18840840/
First, M. B., Clarke, D. E., Yousif, L., et al. (2023). DSM-5-TR: Rationale, Process, and Overview of Changes. . https://pubmed.ncbi.nlm.nih.gov/36510761/
Lundorff, M., Holmgren, H., Zachariae, R., et al. (2017). Prevalence of Prolonged Grief Disorder in Adult Bereavement: A Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/28167398/
U.S. Government (CMS) (2024). 42 CFR §418.56 — Hospice Conditions of Participation: Interdisciplinary Group. GovInfo (CFR-2024-title42-vol3). https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-56.xml
U.S. Government (CMS) (2024). 42 CFR §418.302 — Hospice Service Intensity Add-on (SIA) Payment. GovInfo (CFR-2024-title42-vol3). https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-302.xml
Centers for Medicare & Medicaid Services (2024). Hospice Visits in the Last Days of Life (HVLDL) — CMS Hospice Quality Reporting Measure. CMS. https://www.cms.gov/medicare/quality/hospice
Centers for Medicare & Medicaid Services (2024). Hospice Care Index (HCI) — CMS Claims-Based Composite Quality Measure. CMS. https://www.cms.gov/medicare/quality/hospice
Centers for Medicare & Medicaid Services (2023). Home Health Value-Based Purchasing (HHVBP) Model — Expanded Nationwide. CMS Innovation Center. https://www.cms.gov/priorities/innovation/innovation-models/expanded-home-health-value-based-purchasing-model
U.S. Government (CMS) (2024). 42 CFR §484.55 — Home Health Conditions of Participation: Comprehensive Assessment. GovInfo (CFR-2024-title42-vol3). https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec484-55.xml
Lupu D, Quigley L, Mehfoud N, Salsberg ES (2018). The Growing Demand for Hospice and Palliative Medicine Physicians: Will the Supply Keep Up?. . https://pubmed.ncbi.nlm.nih.gov/29410071/
SUPPORT Principal Investigators (1995). A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). . https://pubmed.ncbi.nlm.nih.gov/7474243/
Kavalieratos D, Corbelli J, Zhang D, et al. (2016). Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/27893131/
Lustbader D, Mitchell N, Kirsner RS, et al. (2017). The Impact of a Home-Based Palliative Care Program in an Accountable Care Organization. . https://pubmed.ncbi.nlm.nih.gov/27574868/
Mitchell AJ, Chan M, Bhatti H, et al. (2011). Prevalence of Depression, Anxiety, and Adjustment Disorder in Oncological, Haematological, and Palliative-Care Settings: A Meta-Analysis of 94 Interview-Based Studies. . https://pubmed.ncbi.nlm.nih.gov/21251875/
Nowels D, Kutner JS, Kilbourn K, et al. (2023). Psychological Distress in Patients Receiving Palliative Care: Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/36764410/
Rodin G, Lo C, Rydall A, et al. (2018). Managing Cancer and Living Meaningfully (CALM): A Randomized Controlled Trial of a Psychological Intervention for Patients with Advanced Cancer. . https://pubmed.ncbi.nlm.nih.gov/29958037/
Mehnert A, Koranyi S, Philipp R, et al. (2020). Efficacy of the Managing Cancer and Living Meaningfully (CALM) individual psychotherapy for patients with advanced cancer: A single-blind randomized controlled trial. . https://pubmed.ncbi.nlm.nih.gov/32803815/
Chochinov HM, Kristjanson LJ, Breitbart W, et al. (2011). Effect of Dignity Therapy on Distress and End-of-Life Experience in Terminally Ill Patients: A Randomised Controlled Trial. . https://pubmed.ncbi.nlm.nih.gov/21741309/
Breitbart W, Rosenfeld B, Pessin H, et al. (2015). Meaning-Centered Group Psychotherapy: An Effective Intervention for Improving Psychological Well-Being in Patients with Advanced Cancer. . https://pubmed.ncbi.nlm.nih.gov/25646186/
Kissane DW, Clarke DM, Street AF (2001). Demoralization Syndrome — A Relevant Psychiatric Diagnosis for Palliative Care. . https://pubmed.ncbi.nlm.nih.gov/11324179/
Mitchell AJ, Meader N, Symonds P (2010). Diagnostic Validity of the Hospital Anxiety and Depression Scale (HADS) in Cancer and Palliative Settings: A Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/20207007/
Centers for Medicare & Medicaid Services (2024). Calendar Year (CY) 2025 Medicare Physician Fee Schedule Final Rule — Behavioral Health Integration and Caregiver Training Services. CMS. https://www.cms.gov/newsroom/fact-sheets/calendar-year-cy-2025-medicare-physician-fee-schedule-final-rule
Centers for Medicare & Medicaid Services (2024). Hospice Outcomes and Patient Evaluation (HOPE) Guidance Manual v1.00. CMS. https://www.cms.gov/files/document/hope-guidance-manualv100.pdf
Rayner L, Price A, Evans A, et al. (2011). Antidepressants for the Treatment of Depression in Palliative Care: Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/20935027/
National Alliance for Caregiving and AARP Public Policy Institute (2020). Caregiving in the United States 2020. AARP. https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-united-states/
Centers for Medicare & Medicaid Services (2024). Guiding an Improved Dementia Experience (GUIDE) Model. CMS Innovation Center. https://www.cms.gov/priorities/innovation/innovation-models/guide
Dionne-Odom JN, Azuero A, Lyons KD, et al. (2015). Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients with Advanced Cancer: Outcomes from the ENABLE III Randomized Controlled Trial. . https://pubmed.ncbi.nlm.nih.gov/25800762/
Zhang B, Wright AA, Huskamp HA, et al. (2009). Health Care Costs in the Last Week of Life: Associations with End-of-Life Conversations. . https://pubmed.ncbi.nlm.nih.gov/19273778/
Sachs GA, Johnson NM, Gao S, et al. (2025). Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial. . https://pubmed.ncbi.nlm.nih.gov/39878993/
Morrison RS, Meier DE, Arnold RM (2021). What's Wrong With Advance Care Planning?. . https://pubmed.ncbi.nlm.nih.gov/34623373/
Yadav KN, Gabler NB, Cooney E, et al. (2017). Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care. . https://pubmed.ncbi.nlm.nih.gov/28679811/
Centers for Medicare & Medicaid Services (2025). Medicare Advantage Value-Based Insurance Design (VBID) Model — Hospice Benefit Component Termination. CMS Innovation Center. https://www.cms.gov/priorities/innovation/innovation-models/vbid
Centers for Medicare & Medicaid Services (2025). Hospice Wage Index and Payment Rate Update FY2026 (CMS-1835-F). CMS. https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1835-f
Centers for Medicare & Medicaid Services (2026). Hospice Wage Index and Payment Rate Update FY2027 Final Rule (CMS-1851-F). CMS. https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1851-f
Centers for Medicare & Medicaid Services (2025). Hospice Outcomes and Patient Evaluation (HOPE) — Quality Reporting and Public Reporting Timeline. CMS. https://www.cms.gov/medicare/quality/hospice/hope
Medicare Payment Advisory Commission (MedPAC) (2026). Report to the Congress: Medicare Payment Policy, Chapter 10 — Hospice Services (March 2026). MedPAC. https://www.medpac.gov/document/march-2026-report-to-the-congress-medicare-payment-policy/
Greene, M.K., Broadwater, G., LeBlanc, T.W., et al. (2025). Using Natural Language Processing to Assess Goals-of-Care Conversations for Patients With Cancer. . https://pubmed.ncbi.nlm.nih.gov/41100788/
Centers for Medicare & Medicaid Services (2025). HOPE All-Item Set v1.02 (Hospice Outcomes and Patient Evaluation). CMS. https://www.cms.gov/files/document/hope-v1-02-all-item.pdf
Centers for Medicare & Medicaid Services (2024). FY 2025 Hospice Wage Index and Payment Rate Update Final Rule (CMS-1810-F) — 89 FR 64202, FR doc 2024-16910. CMS / Federal Register. https://www.federalregister.gov/documents/2024/08/09/2024-16910/medicare-program-fy-2025-hospice-wage-index-and-payment-rate-update-and-hospice-quality-reporting
Centers for Medicare & Medicaid Services (2025). FY 2026 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Final Rule (CMS-1835-F) — Fact Sheet. CMS. https://www.cms.gov/newsroom/fact-sheets/fy-2026-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program-requirements-final
Centers for Medicare & Medicaid Services (2026). Fiscal Year (FY) 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Proposed Rule (CMS-1851-P) — Fact Sheet. CMS. https://www.cms.gov/newsroom/fact-sheets/fiscal-year-fy-2027-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program
Center to Advance Palliative Care (CAPC) (2024). Palliative Care in Michigan — CAPC Serious Illness Scorecard State Report. CAPC. https://scorecard.capc.org/state/michigan/
Chua, I.S., Berler, A., Ritchie, C.S., et al. (2025). Patient-Centered Measures of Goal Concordance in Geriatrics and Palliative Care: A Scoping Review. . https://pubmed.ncbi.nlm.nih.gov/40906477/
Auriemma, C.L., Song, A., Courtright, K.R., et al. (2025). Measuring Goal-Concordant Care Using Electronic Clinical Notes. . https://pubmed.ncbi.nlm.nih.gov/40608339/
Heyland, D.K., Cook, D.J., Rocker, G.M., et al. (2010). The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire. . https://pubmed.ncbi.nlm.nih.gov/20605850/
Volandes, A.E., Chang, Y., Lakin, J.R., et al. (2025). An Intervention to Increase Advance Care Planning Among Older Adults With Advanced Cancer: A Randomized Clinical Trial. . https://pubmed.ncbi.nlm.nih.gov/40343696/
Applebaum, A.J., et al. (Mount Sinai) (2024). Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C) — ClinicalTrials.gov NCT06307535. ClinicalTrials.gov. https://clinicaltrials.gov/study/NCT06307535
Arch JJ, Mitchell JL, Schmiege SJ, et al. (2026). Valued Living intervention to increase advance care planning and well-being in depressed and anxious adults with advanced cancer: Randomized trial in community oncology clinics. . https://pubmed.ncbi.nlm.nih.gov/41848105/
Neo, S.H., et al. (2026). Feasibility, acceptability and efficacy of a nurse-led palliative care health coaching intervention (Educate, Nurture, Advise before Life Ends) for patients with heart failure and their caregivers in Singapore: a randomised wait-list controlled pilot study of health coaching in Asian heart failure. . https://pubmed.ncbi.nlm.nih.gov/42152453/
Iturri A, Najún M, Vázquez N, Alonso-Babarro A (2026). Music therapy interventions on symptom management in adults with advanced cancer - multisession longitudinal impact: systematic review. . https://pubmed.ncbi.nlm.nih.gov/41922094/
Rodrigues-Fouto, A., Reis-Pina, P. (2026). Meaning-in-Life Centered Interventions in Palliative Care: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/41762175/
Creech GG, Bieck RL, Bolint BX, et al. (2026). The Efficacy of Spiritual Care Intervention on Readmissions of Hospitalized Patients Receiving Palliative Care: A Quasi-Experimental Pilot Study Proposal. . https://pubmed.ncbi.nlm.nih.gov/42381114/
Agaronnik ND, Davis J, Manz CR, et al. (2025). Large Language Models to Identify Advance Care Planning in Patients With Advanced Cancer. . https://pubmed.ncbi.nlm.nih.gov/39586429/
Sorin, V., et al. (2026). Alignment of Large Language Models with Medical and Hospice Ethical Principles in End-of-Life Dilemmas. . https://pubmed.ncbi.nlm.nih.gov/41767866/
Tan, M., et al. (2026). Artificial Intelligence in Advance Care Planning: A Scoping Review. . https://pubmed.ncbi.nlm.nih.gov/41352175/
Peerawong, T., et al. (2026). Artificial Intelligence in Palliative Care: A Scoping Review. . https://pubmed.ncbi.nlm.nih.gov/42366389/
Patel, P., et al. (MSK, MGH, Mayo Clinic, Johns Hopkins) (2026). Top Ten Tips Palliative Care Clinicians Should Know About Artificial Intelligence. . https://pubmed.ncbi.nlm.nih.gov/40824746/
Hassanein, M., Afandi, B., Yakoob Ahmedani, M., et al. (2022). Diabetes and Ramadan: Practical guidelines 2021. . https://pubmed.ncbi.nlm.nih.gov/35016991/
Hassanein, M., Al-Arouj, M., Hamdy, O., et al. (2017). Diabetes and Ramadan: Practical guidelines. . https://pubmed.ncbi.nlm.nih.gov/28347497/
Salti, I., Bénard, E., Detournay, B., et al. (2004). A Population-Based Study of Diabetes and Its Characteristics During the Fasting Month of Ramadan in 13 Countries: Results of the EPIDIAR Study. . https://pubmed.ncbi.nlm.nih.gov/15451892/
Loh, H. H., Kamaruddin, N. A. (2020). Treatment Options for Patients with Type 2 Diabetes Mellitus during the Fasting Month of Ramadan. . https://pubmed.ncbi.nlm.nih.gov/33000110/
Alguwaihes, A. M., Hassanein, M., Alzaman, N., et al. (2025). Assessment of the IDF-DAR Fasting Risk Assessment Tool to Predict Type 1 Diabetes-Related Complications During Ramadan in a Real-World Setting. . https://pubmed.ncbi.nlm.nih.gov/41001082/
Althoff, F. C., Neb, H., et al. (2019). Multimodal Patient Blood Management Program Based on a Three-pillar Strategy: A Systematic Review and Meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/30418206/
Pattakos, G., Koch, C. G., et al. (2012). Outcome of Patients Who Refuse Transfusion After Cardiac Surgery: A Natural Experiment With Severe Blood Conservation. . https://pubmed.ncbi.nlm.nih.gov/22751620/
Carless, P. A., Henry, D. A., et al. (2010). Cell Salvage for Minimising Perioperative Allogeneic Blood Transfusion. . https://pubmed.ncbi.nlm.nih.gov/20393932/
Lin, D. M., Lin, E. S., Tran, M. H. (2013). Efficacy and Safety of Erythropoietin and Intravenous Iron in Perioperative Blood Management: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/24135037/
Toledo, F. V., De Carli, D., et al. (2025). Preoperative Iron Supplementation in Non-anemic Patients Undergoing Major Surgery: A Systematic Review and Meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/40189047/
Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. . https://pubmed.ncbi.nlm.nih.gov/7650806/
Karliner, L. S., Jacobs, E. A., Chen, A. H., Mutha, S. (2007). Do professional interpreters improve clinical care for patients with limited English proficiency? A systematic review of the literature. . https://pubmed.ncbi.nlm.nih.gov/17362215/
Kleinman, A., Eisenberg, L., Good, B. (1978). Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. . https://pubmed.ncbi.nlm.nih.gov/626456/
Luan-Erfe, B. M., Erfe, J. M., DeCaria, B., Okocha, O. (2022). Limited English Proficiency and Perioperative Patient-Centered Outcomes: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/36066429/
Boylen, S., Cherian, S., Gill, F. J., Leslie, G. D., Wilson, S. (2020). Impact of professional interpreters on outcomes for hospitalized children from migrant and refugee families with limited English proficiency: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/32813387/
Stacey D, Lewis KB, Smith M, et al. (2024). Decision aids for people facing health treatment or screening decisions. . https://pubmed.ncbi.nlm.nih.gov/38284415/
Tervalon, M., Murray-García, J. (1998). Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education. . https://pubmed.ncbi.nlm.nih.gov/10073197/
Searight, H. R., Gafford, J. (2005). Cultural diversity at the end of life: issues and guidelines for family physicians. . https://pubmed.ncbi.nlm.nih.gov/15712625/
Horvat, L., Horey, D., Romios, P., Kis-Rigo, J. (2014). Cultural competence education for health professionals. . https://pubmed.ncbi.nlm.nih.gov/24793445/
Leone, R., Migliore, A., Ricciardi, W. (2026). Animal-derived collagen and Islamic religious prescriptions: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/42348129/
Taylor, B. (2021). Culturally sensitive prescribing of common symptom management drugs. . https://pubmed.ncbi.nlm.nih.gov/33436371/
Sattar, S. P., Ahmed, M. S., Madison, J., Olsen, D. R., Bhatia, S. C., et al. (2004). Patient and physician attitudes to using medications with religiously forbidden ingredients. . https://pubmed.ncbi.nlm.nih.gov/15479773/
Mujahid, M., Ahmed, H., Ahmad, S., Mujahid, I., Ur-Rehman, J., et al. (2026). A Regional Audit on Venous Thromboembolism (VTE) Prophylaxis Compliance and Cultural Considerations in Prescribing Porcine-Derived Low-Molecular-Weight Heparins. . https://pubmed.ncbi.nlm.nih.gov/41631073/
Nazar, Z., Ali, B., Rutter, P., Barnes, N. (2025). Islamic reasoning and the use of prohibited medicines among Muslim patients: a qualitative study. . https://pubmed.ncbi.nlm.nih.gov/41219623/
Silk, G., Vetharajan, N., Blohm, A., Teeling, F., Keen, K., et al. (2023). Are vegans being overlooked in our prescribing practices: An orthopaedic perspective from Bristol, United Kingdom. . https://pubmed.ncbi.nlm.nih.gov/37817761/
Patten, C., Morales, G. (2026). When Pigs Fly into Medicine: Navigating Ethical Challenges Posed by Animal-Derived Medical Products. . https://pubmed.ncbi.nlm.nih.gov/41698334/
Muhamad, N., Abu, M. A., Kalok, A. H., Shafiee, M. N., Shah, S. A., Ismail, N. A. M. (2022). Safety and effectiveness of fondaparinux as a postpartum thromboprophylaxis during puerperium among muslim women: A single centre prospective study. . https://pubmed.ncbi.nlm.nih.gov/36210844/
Kermansaravi, M., Omar, I., Mahawar, K., et al. (2021). Religious Fasting of Muslim Patients After Metabolic and Bariatric Surgery: a Modified Delphi Consensus. . https://pubmed.ncbi.nlm.nih.gov/34617207/
Hartley, B. A., Hamid, F. (2002). Investigation into the suitability and accessibility of catering practices to inpatients from minority ethnic groups in Brent. . https://pubmed.ncbi.nlm.nih.gov/12028516/
Esposito, C. M., Bizzotto, C., Gualtierotti, R., Delvecchio, G., Bressi, C., Brambilla, P. (2026). Gender concordance and its association with communication and the doctor-patient relationship: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/42107345/
Sun, L. Y., Boet, S., Chan, V., Lee, D. S., Mesana, T. G., et al. (2021). Impact of surgeon and anaesthesiologist sex on patient outcomes after cardiac surgery: a population-based study. . https://pubmed.ncbi.nlm.nih.gov/34433609/
Zhao, C., Dowzicky, P., Colbert, L., Roberts, S., Kelz, R. R. (2019). Race, gender, and language concordance in the care of surgical patients: A systematic review. . https://pubmed.ncbi.nlm.nih.gov/31375322/
Vahabi, M., Lofters, A. (2016). Muslim immigrant women's views on cervical cancer screening and HPV self-sampling in Ontario, Canada. . https://pubmed.ncbi.nlm.nih.gov/27557928/
Guimond, M. E., Salman, K. (2013). Modesty matters: cultural sensitivity and cervical cancer prevention in muslim women in the United States. . https://pubmed.ncbi.nlm.nih.gov/23773193/
Nkwo, P. O., Chigbu, C. O., Ajah, L. O., Okoro, O. S. (2012). The perception and use of chaperones by Nigerian gynecologists. . https://pubmed.ncbi.nlm.nih.gov/23031332/
Osmond, M. K., Copas, A. J., Newey, C., Edwards, S. G., Jungmann, E., Mercey, D. (2007). The use of chaperones for intimate examinations: the patient perspective based on an anonymous questionnaire. . https://pubmed.ncbi.nlm.nih.gov/17945044/
Linder, K. E., Ramirez, J. L., Pankey, T. L., Heredia, D., Chang, A. Y., et al. (2025). Transgender and gender diverse patients' preference and comfort for having a medical chaperone present during a sensitive physical examination: a single-site study. . https://pubmed.ncbi.nlm.nih.gov/40581941/
Strauss, A. T., Menon, G., Li, Y., Thompson, V. L., Jain, V., et al. (2026). Residential and Transplant Center Neighborhood Segregation and Live Donor Liver Transplant. . https://pubmed.ncbi.nlm.nih.gov/42228371/
Eldaba, M., Ahmed, S., Hiremath, S., Shorr, R., Clark, E. G., et al. (2026). Cardiovascular and Kidney Outcomes of Living Kidney Donors With Preexisting Hypertension: A Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/40570153/
Wen, J., Li, H., Wang, D., Huang, M., Zhai, X. (2026). Public awareness and acceptance of xenotransplantation in China: a cross-sectional survey. . https://pubmed.ncbi.nlm.nih.gov/42410577/
Tarabeih, M., Amiel, A., Na'amnih, W. (2025). Jewish Perspectives on Porcine Xenotransplantation: Balancing Religious Ethics and Medical Necessity in Israel. . https://pubmed.ncbi.nlm.nih.gov/41199080/
Dongmo Mayopa, C., Kouassi, A. A. N., Buzisa Mbuku, R., Mbaga, A. C., Nkubamanu, S., et al. (2026). Willingness to bone allograft donation and transplantation in sub-Saharan Africa: a multi-country cross-sectional study. . https://pubmed.ncbi.nlm.nih.gov/41824135/
Tuncer, M., Tuncer, G. Z. (2025). Effect of eHealth Interventions on Medication Adherence in Kidney Transplant Recipients: Meta-Analysis of Randomised Controlled Trials. . https://pubmed.ncbi.nlm.nih.gov/40196913/
Zhou, L., Cheng, K., Chen, L., Hou, X., Wan, J. (2025). Effectiveness of eHealth for Medication Adherence in Renal Transplant Recipients: Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/40359506/
Aggarwal, S., Wright, J., Morgan, A., Patton, G., Reavley, N. (2023). Religiosity and spirituality in the prevention and management of depression and anxiety in young people: a systematic review and meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/37817143/
Çınaroğlu, M., Yılmazer, E. (2026). Coping strategies and psychological outcomes following the 2023 Kahramanmaraş earthquakes: a systematic review with meta-analytic synthesis. . https://pubmed.ncbi.nlm.nih.gov/41859264/
Na, P. J., Shin, J., Kwak, H. R., Lee, J., Jester, D. J., et al. (2025). Social Determinants of Health and Suicide-Related Outcomes: A Review of Meta-Analyses. . https://pubmed.ncbi.nlm.nih.gov/39745761/
Alhumaidan, N. I., Alotaibi, T. A., Aloufi, K. S., Althobaiti, A. A., Althobaiti, N. S. A., et al. (2024). Barriers to Seeking Mental Health Help in Saudi Arabia: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/38883041/
Syafitri, D. U., Mawaddah, S., Lau, J. Y. F., Brown, J. S. L. (2025). Barriers and Facilitators of Psychological Help-Seeking of People With Depression, Anxiety, and Stress Symptoms Among ASEAN Countries: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/40928181/
Madsen, J., Jobson, L., Slewa-Younan, S., Li, J. H., King, K. (2024). Mental health literacy among Arab men living in high-income Western countries: A systematic review and narrative synthesis. . https://pubmed.ncbi.nlm.nih.gov/38489937/
Milstein, G., Currier, J. M., Dent, C., McKnight, M., Eckert, D., Manierre, A. (2025). COPE: CO&PE — a framework to bridge public mental health services with religious organizations. . https://pubmed.ncbi.nlm.nih.gov/40859941/
Donnenfeld, S. R., Mehta, A. (2022). The Urologist's Guide to Religion and Male Factor Fertility Treatment. . https://pubmed.ncbi.nlm.nih.gov/35772486/
Schenker, J. G. (2005). Assisted reproductive practice: religious perspectives. . https://pubmed.ncbi.nlm.nih.gov/15820035/
Gashaw, Y., Alemu, C. (2025). Assessment of family planning service utilization and associated factors among female students at Assosa university, Ethiopia. . https://pubmed.ncbi.nlm.nih.gov/40185798/
Mann, J. R., McKeown, R. E., Bacon, J., Vesselinov, R., Bush, F. (2008). Do antenatal religious and spiritual factors impact the risk of postpartum depressive symptoms?. . https://pubmed.ncbi.nlm.nih.gov/18537478/
Osman, K. M., Lara-Cinisomo, S., D'Anna-Hernandez, K. L. (2021). Associations between religiosity and perinatal anxiety symptoms among women of Mexican descent. . https://pubmed.ncbi.nlm.nih.gov/34274791/
Adeleye, K. K., Ogungbe, O., Chutiyami, M., Iradukunda, F. (2024). Pregnancy loss among Muslim women: A narrative review. . https://pubmed.ncbi.nlm.nih.gov/38827821/
Wilkinson, D., Bertaud, S., Mancini, A., Murdoch, E., et al. (BAPM/APPM) (2025). Recognising uncertainty: an integrated framework for palliative care in perinatal medicine. . https://pubmed.ncbi.nlm.nih.gov/39567213/
Turchiano, F., Romiti, A., Tudisco, R., Bisanti, M., Polsinelli, V., et al. (2024). Ethical issues in perinatal communication. . https://pubmed.ncbi.nlm.nih.gov/39724206/
He, S., Shen, K., Huang, B., Zhang, J. (2026). Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis. . https://pubmed.ncbi.nlm.nih.gov/41808155/
van Teunenbroek, K. C., Mulder, R. L., van Heel, D. A. M., Fahner, J. C., de Vos-Broerse, M. A., et al. (2024). A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making. . https://pubmed.ncbi.nlm.nih.gov/39578755/
Carr, K., Hasson, F., McIlfatrick, S., Downing, J. (2020). Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review. . https://pubmed.ncbi.nlm.nih.gov/33372582/
Michelson, K. N., Patel, R., Haber-Barker, N., Emanuel, L., Frader, J. (2013). End-of-life care decisions in the PICU: roles professionals play. . https://pubmed.ncbi.nlm.nih.gov/23249788/
Superdock, A. K., Barfield, R. C., Brandon, D. H., Docherty, S. L. (2018). Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study. . https://pubmed.ncbi.nlm.nih.gov/30208902/
Friedrich, A. B., Eberl, J. T. (2022). Catholic Perspective on Decision-Making for Critically Ill Newborns and Infants. . https://pubmed.ncbi.nlm.nih.gov/35204927/
Ali Sheikhi, R., Heidari, M., Doosti, P. (2025). The role of religious leaders in the acceptance of COVID-19 vaccinations: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/40770695/
Akrong, G. B., Hiadzi, R. A., Donkor, A. B., Anafo, D. K. (2024). COVID-19 vaccine acceptance and hesitancy in Ghana: A systematic review. . https://pubmed.ncbi.nlm.nih.gov/38917063/
Achimaș-Cadariu, T., Pașca, A., Jiboc, N. M., Puia, A., Dumitrașcu, D. L. (2024). Vaccine Hesitancy among European Parents-Psychological and Social Factors Influencing the Decision to Vaccinate against HPV: A Systematic Review and Meta-Analysis. . https://pubmed.ncbi.nlm.nih.gov/38400111/
Herzig van Wees, S., Abunnaja, K., Mounier-Jack, S. (2023). Understanding and explaining the link between anthroposophy and vaccine hesitancy: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/37957574/
Olagoke, A., Hebert-Beirne, J., Floyd, B., Caskey, R., Boyd, A., Molina, Y. (2023). The effectiveness of a religiously framed HPV vaccination message among Christian parents of unvaccinated adolescents in the United States. . https://pubmed.ncbi.nlm.nih.gov/37401883/
Walton-Moss, B., Ray, E. M., Woodruff, K. (2013). Relationship of spirituality or religion to recovery from substance abuse: a systematic review. . https://pubmed.ncbi.nlm.nih.gov/24335768/
Kane, L., Benson, K., Stewart, Z. J., Daughters, S. B. (2023). The impact of spiritual well-being and social support on substance use treatment outcomes within a sample of predominantly Black/African American adults. . https://pubmed.ncbi.nlm.nih.gov/38061630/
Al-Ghafri, Q., Radcliffe, P., Gilchrist, G. (2023). Barriers and facilitators to accessing inpatient and community substance use treatment and harm reduction services for people who use drugs in the Muslim communities: A systematic narrative review. . https://pubmed.ncbi.nlm.nih.gov/36805826/
Asare-Doku, W., Stirling, R., Peprah, P., Foley, C., De Silva, N., Syahbahar, T., Kelly, D., Settumba, S. (2025). 'Oh! It's Like Taboo': Perspectives of Religious and Community Leaders on AOD Use, Harms and Treatment in CALD Communities, Sydney. . https://pubmed.ncbi.nlm.nih.gov/40987609/
Fischer, L. S., Asher, A., Stein, R., Becasen, J., Doreson, A., Mermin, J., Meltzer, M. I., Edlin, B. R. (2025). Effectiveness of naloxone distribution in community settings to reduce opioid overdose deaths among people who use drugs: a systematic review and meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/40133970/
O'Leary, C., Ralphs, R., Stevenson, J., Smith, A., Harrison, J., Kiss, Z., Armitage, H. (2024). The effectiveness of abstinence-based and harm reduction-based interventions in reducing problematic substance use in adults who are experiencing homelessness in high income countries: A systematic review and meta-analysis. . https://pubmed.ncbi.nlm.nih.gov/38645303/
Earl, B. S. W., Wortmann, J. H., Edens, E. L. (2025). Veteran Affairs chaplains and addiction care: Current training gaps and needs. . https://pubmed.ncbi.nlm.nih.gov/41069225/
Wangliu, Y.-Q., Che, R.-P. (2025). A systematic review of coping and pre-death grief among dementia family caregivers. . https://pubmed.ncbi.nlm.nih.gov/40171778/
Stolz, E., Mayerl, H., Gasser-Steiner, P., Freidl, W. (2017). Attitudes towards assisted suicide and euthanasia among care-dependent older adults (50+) in Austria: the role of socio-demographics, religiosity, physical illness, psychological distress, and social isolation. . https://pubmed.ncbi.nlm.nih.gov/29212490/
Rodrigues, S. A., de Carvalho, E. Z. N., Campos, C. A., Fontanella, B. J. B., Melo, D. G. (2023). Exploring spiritual/religious coping strategies among mothers of children with severe or profound intellectual disability during genetic counseling in Brazil. . https://pubmed.ncbi.nlm.nih.gov/37665163/
Manalo, R., Behan, S. J. E., Constantino, C. B., Gozum, I. E. (2026). A Proposed Pastoral Response Challenging the Exclusion of Persons with Disabilities (PWDs) Within the Philippine Social Context. . https://pubmed.ncbi.nlm.nih.gov/41779260/
Sande, N. (2026). Disability, spirituality and the politics of belonging in postcolonial Zimbabwe. . https://pubmed.ncbi.nlm.nih.gov/41647329/
Snethen, G., Jeffries, V., Thomas, E., Salzer, M. (2020). Welcoming places: Perspectives of individuals with mental illnesses. . https://pubmed.ncbi.nlm.nih.gov/33411553/
Marella, M., Devine, A., Armecin, G. F., Zayas, J., Marco, M. J., Vaughan, C. (2016). Rapid assessment of disability in the Philippines: understanding prevalence, well-being, and access to the community for people with disabilities to inform the W-DARE project. . https://pubmed.ncbi.nlm.nih.gov/27489509/
Ferrell, B. R., Borneman, T., Koczywas, M., Galchutt, P. (2024). Research Synthesis Related to Oncology Family Caregiver Spirituality in Palliative Care. . https://pubmed.ncbi.nlm.nih.gov/39429141/
White, M. T. (2009). Making sense of genetic uncertainty: the role of religion and spirituality. . https://pubmed.ncbi.nlm.nih.gov/19170081/
Murray, A., Warren, N. S., Bosanko, K., Williamson Dean, L. (2020). Genetic counseling graduate training to address religion and spirituality in clinical practice: A qualitative exploration of programs in North America. . https://pubmed.ncbi.nlm.nih.gov/32472736/
Wells, D. M., McCarthy Veach, P., Martyr, M. A., LeRoy, B. S. (2015). Development, Experience, and Expression of Meaning in Genetic Counselors' Lives: an Exploratory Analysis. . https://pubmed.ncbi.nlm.nih.gov/26498971/
Daharli, E., Çoruh, E. (2026). Vaccine hesitancy and attitudes toward newborn heel-prick screening among religious officials: A mixed-methods study, Erzurum, Türkiye. . https://pubmed.ncbi.nlm.nih.gov/42246680/
Jedwab, A., Vears, D. F., Tse, C., Gyngell, C. (2020). Genetics experience impacts attitudes towards germline gene editing: a survey of over 1500 members of the public. . https://pubmed.ncbi.nlm.nih.gov/32737393/
Critchley, C., Nicol, D., Bruce, G., Walshe, J., Treleaven, T., Tuch, B. (2019). Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications. . https://pubmed.ncbi.nlm.nih.gov/30687386/
Solomon, E. D., Chin, E. G., Baldwin, K., Baker, L. L., DuBois, J. M. (2026). Which religious and personal characteristics predict attitudes toward gene editing? Findings from a survey of 4,939 adults in the U.S.. . https://pubmed.ncbi.nlm.nih.gov/42151625/
Thaldar, D., Bottomley, D. (2025). Public trust of AI in healthcare in South Africa: results of a survey. . https://pubmed.ncbi.nlm.nih.gov/40855295/
Weng, J., Pachman, D. R., Wild, E., Ingram, C. J. (2022). Dignity Conserving Therapy: An Intervention for Addressing Psychosocial and Existential Distress in Patients with Serious Illness. . https://pubmed.ncbi.nlm.nih.gov/36203715/
Wierstra, I. R., Schuhmann, C., Collard, J., Oosterom, B., Jacobs, G. (2024). Interfaith Collaboration: Boundary Crossing in a Participatory Action Research Project with Health Care Chaplains in The Netherlands. . https://pubmed.ncbi.nlm.nih.gov/39613936/
Smit, J., Schuhmann, C., Damen, A. (2024). Responding to Life Itself: A Proposed Understanding of Domain, Goal and Interventions for Chaplaincy in a Secular Age. . https://pubmed.ncbi.nlm.nih.gov/39497556/
Layson, M. D., Carey, L. B., Best, M. C. (2023). The Impact of Faith-Based Pastoral Care in Decreasingly Religious Contexts: The Australian Chaplaincy Advantage in Critical Environments. . https://pubmed.ncbi.nlm.nih.gov/36976458/
Potts, G., Hewitt, S., Moore, M., Mui, A., Lubrano, B. (2023). Spiritual Caregiving and Assessments for America's Religious 'Nones': A Chaplaincy Perspective. . https://pubmed.ncbi.nlm.nih.gov/36749461/
Cai, S., Guo, Q., Luo, Y., Zhou, Y., Abbas, A., Zhou, X., Peng, X. (2020). Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study. . https://pubmed.ncbi.nlm.nih.gov/31971068/
Pesut, B. (2016). Recovering Religious Voice and Imagination: A Response to Nolan's Case Study "He Needs to Talk!". . https://pubmed.ncbi.nlm.nih.gov/26789337/
Hodgkinson, S., Ruegger, J., Field-Smith, A., Latchem, S., Ahmedzai, S. H. (2016). Care of dying adults in the last days of life. . https://pubmed.ncbi.nlm.nih.gov/27251915/
Anderson, P. (2014). Getting the priorities right in end-of-life care. . https://pubmed.ncbi.nlm.nih.gov/25188966/
Partridge, M. R., Khatri, A., Sutton, L., Welham, S., Ahmedzai, S. H. (2009). Palliative care services for those with chronic lung disease. . https://pubmed.ncbi.nlm.nih.gov/19176708/
Selman, L. E., Sutton, E., Medeiros Mirra, R., Stone, T., Gilbert, E., Rolston, Y., Murray, K., Longo, M., Seddon, K., Penny, A., Mayland, C. R., Wakefield, D., Byrne, A., Harrop, E. (2022). 'Sadly I think we are sort of still quite white, middle-class really' - Inequities in access to bereavement support: Findings from a mixed methods study. . https://pubmed.ncbi.nlm.nih.gov/36337051/
Rolls, L., Payne, S. (2003). Childhood bereavement services: a survey of UK provision. . https://pubmed.ncbi.nlm.nih.gov/12882261/
Cerni, J., Rhee, J., Hosseinzadeh, H. (2020). End-of-Life Cancer Care Resource Utilisation in Rural Versus Urban Settings: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/32660146/
DeForge, C. E., Ma, H. S., Dick, A. W., et al. (2025). Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review. . https://pubmed.ncbi.nlm.nih.gov/39787275/
Bakitas, M., Lyons, K. D., Hegel, M. T., et al. (2009). Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial. . https://pubmed.ncbi.nlm.nih.gov/19690306/
Pless Kaiser, A., Moye, J., Baird, L., Sager, Z., Wachterman, M. (2023). Factors Associated With Distress Related to Posttraumatic Stress Disorder at the End of Life Among U.S. Veterans. . https://pubmed.ncbi.nlm.nih.gov/37084828/
Kutney-Lee, A., Smith, D., Griffin, H., et al. (2021). Quality of end-of-life care for Vietnam-era Veterans: Implications for practice and policy. . https://pubmed.ncbi.nlm.nih.gov/33992224/
Garrido, M. M., Prigerson, H. G., Neupane, S., et al. (2017). Mental Illness and Mental Healthcare Receipt among Hospitalized Veterans with Serious Physical Illnesses. . https://pubmed.ncbi.nlm.nih.gov/27835066/
U.S. Census Bureau (2023). C16001: Language Spoken at Home for the Population 5 Years and Over — American Community Survey 2022 5-Year Estimates. U.S. Census Bureau. https://data.census.gov/table/ACSDT5Y2022.C16001
U.S. Census Bureau (2023). B28002: Presence and Types of Internet Subscriptions in Household — American Community Survey 2022 5-Year Estimates. U.S. Census Bureau. https://data.census.gov/table/ACSDT5Y2022.B28002
Health Resources and Services Administration (2026). Health Workforce Shortage Areas — HPSA designations for primary care, dental health, and mental health. HRSA. https://data.hrsa.gov/topics/health-workforce/shortage-areas
U.S. Department of Veterans Affairs (2026). VA Facility Directory. VA. https://www.va.gov/directory/guide/home.asp
Gamble, Vanessa Northington (1997). Under the Shadow of Tuskegee: African Americans and Health Care. . https://pubmed.ncbi.nlm.nih.gov/9366634/
White, Robert M. (2005). Misinformation and Misbeliefs in the Tuskegee Study of Untreated Syphilis Fuel Mistrust in the Healthcare System. . https://pubmed.ncbi.nlm.nih.gov/16334509/
St Christopher's Hospice (2026). Dame Cicely Saunders. St Christopher's Hospice. https://www.stchristophers.org.uk/about/damecicelysaunders/
Redwine, Hannah M., Ganti, Latha (2024). Dame Cicely Saunders: Pioneering Palliative Care and the Evolution of Hospice Services. . https://pubmed.ncbi.nlm.nih.gov/39759695/
The SUPPORT Principal Investigators (1995). A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). . https://pubmed.ncbi.nlm.nih.gov/7474243/
United States Congress (1990). Patient Self Determination Act of 1990 (H.R. 4449, 101st Congress). Library of Congress. https://www.congress.gov/bill/101st-congress/house-bill/4449

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