{ "name": "Values in Care citation dataset", "version": "1.22.2", "lastVerified": "2026-09-01", "exportedAt": "2026-09-12T04:42:48Z", "license": "CC BY-NC 4.0", "homepage": "https://valuesincare.com", "integrityReport": "https://valuesincare.com/integrity", "schema": "https://valuesincare.com/data/schema-v1.json", "temporalCoverage": "1978/2026", "counts": { "citations": 248, "claims": 180, "statsSnapshots": 14, "resources": 24 }, "claimTypes": { "verified": "Drawn directly from a primary source — peer-reviewed journal (with PMID or DOI), federal regulation, CMS rule, MedPAC chapter, or established guideline — with a working, live-checked citation URL. Numeric claims are compared against the source abstract on three axes: direction of effect, primary vs. secondary outcome status, and numeric fidelity. Mismatches are corrected before publication.", "modeled": "Derived analytically from underlying verified sources (e.g., weighted average, scenario projection, extrapolation). Presented as an illustration of what the underlying data imply, not as a measured outcome.", "analyst-interpretation": "Synthesis, framing, or cross-domain inference by the ValuesInCare team, drawing on verified sources. The underlying sources are cited; the analytical step — connecting evidence to a clinical or policy implication — is the team's own and is labeled accordingly." }, "citations": [ { "id": "cit_who_palliative_factsheet", "title": "Palliative care", "author": "World Health Organization", "year": 2020, "publisher": "WHO", "url": "https://www.who.int/news-room/fact-sheets/detail/palliative-care", "accessDate": "2026-03-03", "notes": "WHO fact sheet with global estimates of palliative care need and access gaps.", "pmid": null, "pmcid": null }, { "id": "cit_who_kap_ncd_palliative", "title": "Palliative care | Knowledge Action Portal on NCDs", "author": "World Health Organization", "year": 2020, "publisher": "WHO", "url": "https://www.knowledge-action-portal.com/en/content/palliative-care-0", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_global_atlas_palliative", "title": "Global Atlas of Palliative Care at the End of Life", "author": "WHO & WHPCA", "year": 2014, "publisher": "WHO", "url": "https://www.iccp-portal.org/sites/default/files/resources/Global_Atlas_of_Palliative_Care.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_unnews_palliative_2021", "title": "Only 1 in 10 people who need palliative care, receive it", "author": "WHO", "year": 2021, "publisher": "UN News", "url": "https://news.un.org/en/story/2021/10/1102262", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_lancet_commission_SHS", "title": "Alleviating the access abyss in palliative care and pain relief", "author": "Knaul, F. M., Farmer, P. E., et al.", "year": 2018, "journal": "The Lancet", "url": "https://mia.as.miami.edu/_assets/pdf/lancet-palliative-care-report-overview.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_lancet_evolution_shs", "title": "The evolution of serious health-related suffering from 1990 to 2021", "author": "Knaul, F. M., et al.", "year": 2025, "journal": "The Lancet Global Health", "url": "https://www.hematologyadvisor.com/news/palliative-care-lancet-commission-extended-data-global-access-treatment-risk/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_shs_global_assessment", "title": "Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology", "author": "Best, M., Knaul, F. M., et al.", "year": 2024, "journal": "BMC Palliative Care", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC11253038/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_ncp_guidelines_4e", "title": "Clinical Practice Guidelines for Quality Palliative Care, 4th edition", "author": "National Consensus Project", "year": 2018, "publisher": "National Coalition for Hospice and Palliative Care", "url": "https://www.nationalcoalitionhpc.org/ncp-guidelines/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_capc_spiritual_toolkit", "title": "Spiritual Care – Tools and Resources", "author": "Center to Advance Palliative Care", "year": 2024, "publisher": "CAPC", "url": "https://www.capc.org/toolkits/spiritual-care/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_capc_comm_skills_unit", "title": "Communication Skills Training", "author": "CAPC", "year": 2024, "publisher": "CAPC", "url": "https://www.capc.org/training/communication-skills/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_capc_goals_course", "title": "Leading Goals of Care Conversations", "author": "CAPC", "year": 2026, "publisher": "CAPC", "url": "https://www.capc.org/training/communication-skills/leading-goals-of-care-conversations/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_capc_goals_script", "title": "Conversation Script: Goals of Care", "author": "CAPC", "year": 2024, "publisher": "CAPC", "url": "https://www.capc.org/conversation-script-goals-of-care/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_capc_learning_pathway", "title": "Communication Skills for Conversations About Serious Illness", "author": "CAPC", "year": 2026, "publisher": "CAPC", "url": "https://www.capc.org/training/learning-pathways/communication-skills-conversations-about-serious-illness/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_spiritual_care_guide", "title": "Spiritual Care Guide in Hospice Palliative Care", "author": "Kim, S. J., et al.", "year": 2023, "journal": "Journal of Hospice and Palliative Care", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC10703561/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_eapc_spiritual_education", "title": "An EAPC white paper on multi-disciplinary education for spiritual care in palliative care", "author": "Best, M., et al.", "year": 2020, "journal": "BMC Palliative Care", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC6964109/", "accessDate": "2026-03-03", "doi": "10.1186/s12904-019-0508-4", "pmid": null, "pmcid": null }, { "id": "cit_spiritual_care_core_palliative", "title": "Spiritual Care as a Core Component of Palliative Nursing", "author": "Beaussant, Y., et al.", "year": 2023, "journal": "Journal of Hospice and Palliative Nursing", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC9983559/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_eapc_spiritual_part2", "title": "An EAPC white paper on palliative care education – Part 2", "author": "Gamondi, C., et al.", "year": 2013, "journal": "European Journal of Palliative Care", "url": "https://www.sicp.it/wp-content/uploads/2018/12/6_EJPC203Gamondi_part2_0.PDF", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_dcp3_pain_cancer_aids", "title": "Pain Control for People with Cancer and AIDS", "author": "Foley, K., et al.", "year": 2006, "publisher": "Disease Control Priorities Project", "url": "https://www.dcp-3.org/sites/default/files/dcp2/DCP52.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_global_opioids_cancer", "title": "Global Outlook on Palliative Care in Cancer", "author": "Johnson, M. J., et al.", "year": 2015, "journal": "Evidence-Based Oncology", "url": "https://www.ajmc.com/view/global-outlook-on-palliative-care-in-cancer-", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_asco_pain_opioids", "title": "Pain and Opioids in Cancer Care", "author": "Paice, J. A., & Ferrell, B.", "year": 2018, "journal": "ASCO Educational Book", "url": "https://ascopubs.org/doi/10.1200/EDBK_180469", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_complex_pain_nosm", "title": "Complex Pain Management in Palliative Care", "author": "NOSM University", "year": 2021, "publisher": "NOSM University", "url": "https://www.nosm.ca/wp-content/uploads/2021/06/ComplexPain.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_nhpco_facts_2024", "title": "NHPCO Facts and Figures 2024", "author": "NHPCO", "year": 2024, "publisher": "National Alliance for Care at Home", "url": "https://allianceforcareathome.org/wp-content/uploads/2024/09/Facts-Figures-2024_FINAL.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_njsp_inequities_palliative", "title": "Healthcare Inequities in Palliative Care", "author": "Huang, Y., et al.", "year": 2025, "publisher": "NJ State Policy Lab", "url": "https://policylab.rutgers.edu/publication/healthcare-inequities-in-palliative-care/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_religious_good_death_book", "title": "Religious Understandings of a Good Death in Hospice Palliative Care", "author": "Coward, H., & Stajduhar, K. (Eds.)", "year": 2012, "publisher": "SUNY Press", "url": "https://hamdir.ir/wp-content/uploads/2021/10/Religious-Understandings-of-a-Good-Death-in-Hospice-Palliative-Care.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_religious_good_death_review", "title": "Review of Religious Understandings of a Good Death", "author": "Journal of Hindu-Christian Studies", "year": 2013, "journal": "Journal of Hindu-Christian Studies", "url": "https://digitalcommons.butler.edu/cgi/viewcontent.cgi?article=1592&context=jhcs", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_crossroads_islam", "title": "Muslim End-of-Life Care: Islamic Hospice Practices", "author": "Crossroads Hospice", "year": 2014, "publisher": "Crossroads Hospice", "url": "https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/islam/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_crossroads_muslim_culture_connection", "title": "The Culture Connection: Muslim End-of-Life Practices", "author": "Crossroads Hospice", "year": 2015, "publisher": "Crossroads Hospice", "url": "https://www.crossroadshospice.com/hospice-palliative-care-blog/2015/october/13/the-culture-connection-muslim-end-of-life-practices/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_gateway_spiritual_muslim", "title": "Spiritual Aspects of End-of-Life Care for Muslim Patients", "author": "Rassool, G. H., & Al-Sharfa, R.", "year": 2015, "journal": "Gateway End-of-Life Care", "url": "https://gatewayeol.com/wp-content/uploads/2017/07/Islam-Spritula-Aspects-of-end-of-life-Original-Format.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_mypcnow_muslim_EOL", "title": "End-of-Life Care Considerations for Muslim Patients", "author": "Palliative Care Network of Wisconsin", "year": 2025, "publisher": "PCNOW Fast Facts", "url": "https://www.mypcnow.org/fast-fact/end-of-life-care-considerations-for-muslim-patients/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_ncbi_endoflife_bioethics", "title": "End-of-Life Care", "author": "Sachedina, A., et al.", "year": 2015, "publisher": "NCBI Bookshelf", "url": "https://www.ncbi.nlm.nih.gov/books/NBK500176/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_islamic_moral_values_EOL", "title": "Islamic Moral Values and End-of-Life Care", "author": "Padela, A. I., et al.", "year": 2017, "journal": "Southern Anthropologist", "url": "https://southernanthro.org/wp-content/uploads/2017/12/islamic-moral-values-article.pdf", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_topten_muslim_palliative", "title": "Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims", "author": "Mahmood, M., et al.", "year": 2022, "journal": "Journal of Palliative Medicine", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC9715378/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_fcna_organ_donation", "title": "The Moral Status of Organ Donation and Transplantation Within Islamic Law", "author": "Auda, J., & FCNA", "year": 2024, "publisher": "FCNA", "url": "https://fiqhcouncil.org/the-moral-status-of-organ-donation-and-transplantation-within-islamic-law-the-fiqh-council-of-north-america/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_brain_death_islam_review", "title": "DNR, brain death, and organ transplantation: Islamic perspectives", "author": "Albar, M. A.", "year": 2017, "journal": "J Anaesthesiol Clin Pharmacol", "url": "https://www.thieme-connect.com/products/ejournals/abstract/10.4103/2231-0770.203608", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_islam_organ_lifecenter", "title": "Islam and Organ Donation", "author": "LifeCenter Northwest", "year": 2025, "publisher": "LifeCenter Northwest", "url": "https://lcnw.org/islam-and-organ-donation/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_crossroads_catholic", "title": "Catholicism & End-of-Life Care", "author": "Crossroads Hospice", "year": 2014, "publisher": "Crossroads Hospice", "url": "https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/catholicism/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_catholic_answers_anointing", "title": "Anointing of the Sick", "author": "Catholic Answers", "year": 2025, "publisher": "Catholic Answers", "url": "https://www.catholic.com/tract/anointing-of-the-sick", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_osv_anointing_2024", "title": "The special graces offered in the Sacrament of Anointing", "author": "Our Sunday Visitor", "year": 2024, "publisher": "OSV", "url": "https://www.oursundayvisitor.com/reflections-and-teachings-on-the-churchs-pastoral-care-of-the-sick-and-dying/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_rabbi_shamash_jewish_EOL", "title": "Jewish End of Life Practices", "author": "Shamash, S.", "year": 2023, "publisher": "Memorial Society of BC", "url": "https://memorialsocietybc.org/jewish-end-of-life-practices-by-rabbi-susan-shamash/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_kavodvnichum_shmirah", "title": "Shmirah & Taharah", "author": "Kavod v'Nichum", "year": 2022, "publisher": "Kavod v'Nichum", "url": "https://kavodvnichum.org/taharah-shmirah/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_myjewishlearning_death_mourning", "title": "Jewish Death and Mourning 101", "author": "My Jewish Learning", "year": 2024, "publisher": "My Jewish Learning", "url": "https://www.myjewishlearning.com/article/death-mourning-101/", "accessDate": "2026-07-04", "pmid": null, "pmcid": null }, { "id": "cit_crossroads_judaism", "title": "Jewish End-of-Life Care", "author": "Crossroads Hospice", "year": 2014, "publisher": "Crossroads Hospice", "url": "https://www.crossroadshospice.com/hospice-resources/spirituality-end-of-life-care/judaism/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_lastjourney_ganga_ashes", "title": "Why do Hindus immerse ashes in the Ganga?", "author": "Last Journey", "year": 2023, "publisher": "Last Journey", "url": "https://www.lastjourney.in/blog/why-do-the-hindus-believe-in-immersing-the-ashes-in-the-holy-river-ganga/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_carewell_antyesti", "title": "Guide to Antyesti: Hindu Funeral and Mourning Rituals", "author": "Carewell Cremations", "year": 2025, "publisher": "Carewell Cremations", "url": "https://carewellcremations.com/guide-to-antyesti-hindu-funeral-and-mourning-rituals/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_funeral_antyesti_us", "title": "Hindu Funeral Rituals Guide", "author": "After.com", "year": 2025, "publisher": "After.com", "url": "https://www.after.com/articles/hindu-funeral-rituals", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_patterson_tibetan_EOL", "title": "Caring for Tibetan Buddhists at the End of Life", "author": "Patterson, B.", "year": 2010, "publisher": "Beth's Substack", "url": "https://www.bethspatterson.com/p/caring-for-tibetan-buddhists-at-the-end-of-life", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_caregiver_phowa", "title": "Phowa", "author": "Caregiver Revolution", "year": 2017, "publisher": "Caregiver Revolution", "url": "https://thecaregiverwebsite.com/end-of-life-matters/phowa/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_ehospice_buddhist_death", "title": "Buddhist perspectives on end of life care", "author": "ehospice", "year": 2016, "publisher": "ehospice", "url": "https://ehospice.com/usa_posts/buddhist-perspectives-on-end-of-life-care-a-conversation-with-phra-paisal-visalo/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_hom_locations", "title": "Locations", "author": "Hospice of Michigan", "year": 2024, "publisher": "Hospice of Michigan", "url": "https://www.hom.org/locations/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_hom_training_semi", "title": "Training Locations – Southeast Michigan", "author": "Hospice of Michigan", "year": 2024, "publisher": "Hospice of Michigan", "url": "https://www.hom.org/training-locations/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_henry_ford_hospice_contact", "title": "Contact Us – Henry Ford Hospice", "author": "Henry Ford Health", "year": 2025, "publisher": "Henry Ford Health", "url": "https://www.henryford.com/Services/At-Home/Hospice/Contact-Us", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_henry_ford_hospice", "title": "Hospice", "author": "Henry Ford Health", "year": 2025, "publisher": "Henry Ford Health", "url": "https://www.henryford.com/Services/At-Home/Hospice", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_henry_ford_palliative", "title": "Palliative Care", "author": "Henry Ford Health", "year": 2025, "publisher": "Henry Ford Health", "url": "https://www.henryford.com/Services/Palliative", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_corewell_hospice", "title": "Hospice Care Services", "author": "Corewell Health", "year": 2024, "publisher": "Corewell Health", "url": "https://corewellhealth.org/care-and-specialties/continuing-care/hospice-care", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_corewell_palliative_home", "title": "Palliative Care | At Home", "author": "Corewell Health", "year": 2024, "publisher": "Corewell Health", "url": "https://corewellhealth.org/care-and-specialties/continuing-care/palliative-care", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_compassus_mi_locations", "title": "Compassus Locations – Michigan", "author": "Compassus", "year": 2025, "publisher": "Compassus", "url": "https://www.compassus.com/locations/michigan/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_angela_hospice_why", "title": "Why Choose Angela Hospice", "author": "Angela Hospice", "year": 2025, "publisher": "Angela Hospice", "url": "https://angelahospice.org/why-choose-angela-hospice/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_angela_hospice_livonia", "title": "Angela Hospice – Livonia", "author": "Livonia-Westland Chamber", "year": 2023, "publisher": "Livonia-Westland Chamber", "url": "https://business.livoniawestland.org/list/member/angela-hospice-251", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_ccsem_overview", "title": "Catholic Charities of Southeast Michigan", "author": "Catholic Charities USA", "year": 2024, "publisher": "Catholic Charities USA", "url": "https://www.catholiccharitiesusa.org/members/catholic-charities-of-southeast-michigan/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_ccsem_senior_outreach", "title": "Catholic Charities Senior Outreach", "author": "CCSEM", "year": 2024, "publisher": "United Way for SE Michigan", "url": "https://liveunitedsem.galaxydigital.com/agency/detail/?agency_id=154584", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_jfs_detroit_home", "title": "Jewish Family Service of Metro Detroit", "author": "JFS of Metro Detroit", "year": 2026, "publisher": "JFS", "url": "https://www.jfsdetroit.org", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_arb_hospice_idealist", "title": "Arbor Hospice – Idealist", "author": "Arbor Hospice", "year": 2026, "publisher": "Idealist", "url": "https://www.idealist.org/en/business/3322082ef6af47ca9177f260725b4629-arbor-hospice-ann-arbor-ann-arbor", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_arb_hospice_site", "title": "Arbor Hospice", "author": "Arbor Hospice", "year": 2023, "publisher": "Arbor Hospice", "url": "https://arborhospice.org", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_candc_faith_engagement", "title": "Faith Engagement", "author": "Compassion & Choices", "year": 2024, "publisher": "Compassion & Choices", "url": "https://compassionandchoices.org/take-action/community-engagement/faith-outreach/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_candc_accomplishments", "title": "Our Accomplishments", "author": "Compassion & Choices", "year": 2020, "publisher": "Compassion & Choices", "url": "https://compassionandchoices.org/resource/accomplishments-improving-care-expanding-options-end-life/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_goals_care_blog", "title": "Goals-of-Care Conversations: 3 Ways to Improve Your Skills", "author": "ACP Decisions", "year": 2020, "publisher": "ACP Decisions", "url": "https://www.acpdecisions.org/goals-of-care-conversations-3-ways-to-improve-your-skills/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_promedica_hospice_sem", "title": "ProMedica Hospice Care", "author": "Senior Resource Connect", "year": 2024, "publisher": "Senior Resource Connect", "url": "https://seniorresourceconnectmi.org/resource-directory/listing/heartland-hospice-care/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_csu_palliative_education", "title": "Palliative Care Education Changes Everything", "author": "CSU Shiley Haynes Institute", "year": 2024, "publisher": "CSU", "url": "https://csupalliativecare.org/palliative-care-education-changes-everything/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_community_interventions_palliative", "title": "Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022", "author": "IJERPH", "year": 2024, "journal": "Int J Environ Res Public Health", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC11311615/", "accessDate": "2026-03-03", "pmid": null, "pmcid": null }, { "id": "cit_42cfr_418_64", "title": "42 CFR §418.64 — Hospice Conditions of Participation: Bereavement Counseling", "author": "U.S. Government (CMS)", "year": 2023, "publisher": "Electronic Code of Federal Regulations (eCFR)", "url": "https://www.ecfr.gov/current/title-42/chapter-IV/subchapter-G/part-418/subpart-D/section-418.64", "accessDate": "2026-07-06", "notes": "Regulatory text requiring Medicare-certified hospices to provide bereavement counseling for at least 1 year following the death of the patient. Claim type: verified (regulatory text).", "pmid": null, "pmcid": null }, { "id": "cit_wright_jama_2008", "title": "Associations between End-of-Life Discussions, Patient Mental Health, Medical Care near Death, and Caregiver Bereavement Adjustment", "author": "Wright, A. A., Zhang, B., Ray, A., et al.", "year": 2008, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/18840840/", "accessDate": "2026-07-06", "doi": "10.1001/jama.300.14.1665", "notes": "JAMA 2008;300(14):1665-1673. PMID 18840840. PMC2853806. Prospective cohort, n=332 advanced cancer dyads. Primary outcomes: aggressive medical care and hospice use in the final week. Secondary outcomes: patients' mental health and caregivers' bereavement adjustment (N=202 bereaved caregivers in Table 4). Confirmed figures (CC-8b, 2026-07-10): aggressive medical care associated with caregiver MDD AOR 3.37 (95% CI 1.12-10.13; P=.03) and caregiver regret β=0.17 (P=.01); no mediation analysis run. Derived from the Dana-Farber Coping with Cancer parent cohort; cohort-overlap disclosure required when cited alongside Phelps or Balboni findings from the same dataset.", "pmid": "18840840", "pmcid": null }, { "id": "cit_dsm5tr_pgd_2023", "title": "DSM-5-TR: Rationale, Process, and Overview of Changes", "author": "First, M. B., Clarke, D. E., Yousif, L., et al.", "year": 2023, "journal": "Psychiatric Services", "url": "https://pubmed.ncbi.nlm.nih.gov/36510761/", "accessDate": "2026-07-06", "doi": "10.1176/appi.ps.20220334", "notes": "Psychiatr Serv. 2023 Aug 1;74(8):869-875. PMID 36510761. Published by APA-affiliated authors. Confirms Prolonged Grief Disorder (PGD) was added as a new diagnostic category in DSM-5-TR (2022). Source used in lieu of psychiatry.org which blocks automated access.", "pmid": "36510761", "pmcid": null }, { "id": "cit_lundorff_pgd_2017", "title": "Prevalence of Prolonged Grief Disorder in Adult Bereavement: A Systematic Review and Meta-Analysis", "author": "Lundorff, M., Holmgren, H., Zachariae, R., et al.", "year": 2017, "journal": "Journal of Affective Disorders", "url": "https://pubmed.ncbi.nlm.nih.gov/28167398/", "accessDate": "2026-07-06", "doi": "10.1016/j.jad.2017.01.030", "notes": "J Affect Disord. 2017 Apr 1;209:306-312. PMID 28167398. First systematic review and meta-analysis of PGD prevalence. Conclusion: approximately 1 in 10 bereaved adults meets criteria for PGD. Claim type: verified (peer-reviewed meta-analysis).", "pmid": "28167398", "pmcid": null }, { "id": "cit_42cfr_418_56", "title": "42 CFR §418.56 — Hospice Conditions of Participation: Interdisciplinary Group", "author": "U.S. Government (CMS)", "year": 2024, "publisher": "GovInfo (CFR-2024-title42-vol3)", "url": "https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-56.xml", "accessDate": "2026-07-07", "notes": "Regulatory text specifying the composition and functions of the hospice interdisciplinary group (IDG): nurse, physician, social worker, pastoral or counseling services. Claim type: verified (regulatory text). HTTP 200 confirmed via govinfo.gov.", "pmid": null, "pmcid": null }, { "id": "cit_42cfr_418_302", "title": "42 CFR §418.302 — Hospice Service Intensity Add-on (SIA) Payment", "author": "U.S. Government (CMS)", "year": 2024, "publisher": "GovInfo (CFR-2024-title42-vol3)", "url": "https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-302.xml", "accessDate": "2026-07-07", "notes": "Establishes the Service Intensity Add-on (SIA) payment for RN and social worker visits in the last 7 days of life for patients on the Routine Home Care level of care. Claim type: verified (regulatory text). HTTP 200 confirmed via govinfo.gov.", "pmid": null, "pmcid": null }, { "id": "cit_cms_hvldl_measure", "title": "Hospice Visits in the Last Days of Life (HVLDL) — CMS Hospice Quality Reporting Measure", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS", "url": "https://www.cms.gov/medicare/quality/hospice", "accessDate": "2026-07-07", "notes": "Claims-based quality measure tracking whether patients received a skilled nursing or social work visit in the last 3 days of life. Measure existence confirmed at CMS hospice quality page (HTTP 200). Claim type: verified (measure existence).", "pmid": null, "pmcid": null }, { "id": "cit_cms_hci_measure", "title": "Hospice Care Index (HCI) — CMS Claims-Based Composite Quality Measure", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS", "url": "https://www.cms.gov/medicare/quality/hospice", "accessDate": "2026-07-07", "notes": "Composite claims-based measure assessing ten indicators of hospice care quality. Measure existence confirmed at CMS hospice quality page (HTTP 200). Claim type: verified (measure existence).", "pmid": null, "pmcid": null }, { "id": "cit_cms_hhvbp_2025", "title": "Home Health Value-Based Purchasing (HHVBP) Model — Expanded Nationwide", "author": "Centers for Medicare & Medicaid Services", "year": 2023, "publisher": "CMS Innovation Center", "url": "https://www.cms.gov/priorities/innovation/innovation-models/expanded-home-health-value-based-purchasing-model", "accessDate": "2026-07-07", "notes": "HHVBP expanded nationwide January 2023. Payment adjustment up to ±5% based on Total Performance Score (TPS). CY2022 pre-implementation benchmarks, CY2023 performance year, CY2025 payment adjustments. Confirmed via CMS Innovation Center page (HTTP 200). Claim type: verified.", "pmid": null, "pmcid": null }, { "id": "cit_42cfr_484_55", "title": "42 CFR §484.55 — Home Health Conditions of Participation: Comprehensive Assessment", "author": "U.S. Government (CMS)", "year": 2024, "publisher": "GovInfo (CFR-2024-title42-vol3)", "url": "https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec484-55.xml", "accessDate": "2026-07-07", "notes": "Home Health Conditions of Participation requiring a comprehensive assessment of the patient's needs. HTTP 200 confirmed via govinfo.gov. Claim type: verified (regulatory text).", "pmid": null, "pmcid": null }, { "id": "cit_lupu_hpm_2018", "title": "The Growing Demand for Hospice and Palliative Medicine Physicians: Will the Supply Keep Up?", "author": "Lupu D, Quigley L, Mehfoud N, Salsberg ES", "year": 2018, "journal": "Journal of Pain and Symptom Management", "url": "https://pubmed.ncbi.nlm.nih.gov/29410071/", "accessDate": "2026-07-07", "notes": "PMID 29410071. Workforce projections for hospice and palliative medicine physicians in the United States; confirms growing gap between supply and demand for specialist palliative care providers. Claim type: verified (published workforce analysis).", "pmid": "29410071", "pmcid": null }, { "id": "cit_support_jama_1995", "title": "A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT)", "author": "SUPPORT Principal Investigators", "year": 1995, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/7474243/", "accessDate": "2026-08-04", "notes": "PMID 7474243. JAMA 1995;274(20):1591-1598. The SUPPORT null trial: a large RCT of communication and care-planning interventions showed no statistically significant improvement in end-of-life care outcomes. Foundational null finding that shaped subsequent palliative care research. Claim type: verified (null RCT finding). No DOI: the PubMed record for this 1995 article carries no DOI, so the PMID is the canonical identifier.", "pmid": "7474243", "pmcid": null }, { "id": "cit_kavalieratos_jama_2016", "title": "Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis", "author": "Kavalieratos D, Corbelli J, Zhang D, et al.", "year": 2016, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/27893131/", "accessDate": "2026-07-07", "doi": "10.1001/jama.2016.16840", "notes": "PMID 27893131. JAMA 2016;316(20):2104-2114. Systematic review and meta-analysis of 43 RCTs. Palliative care associated with significant improvements in patient QoL and symptom burden; survival benefit in some analyses. Claim type: verified (peer-reviewed systematic review and meta-analysis).", "pmid": "27893131", "pmcid": null }, { "id": "cit_lustbader_jpm_2017", "title": "The Impact of a Home-Based Palliative Care Program in an Accountable Care Organization", "author": "Lustbader D, Mitchell N, Kirsner RS, et al.", "year": 2017, "journal": "Journal of Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/27574868/", "accessDate": "2026-07-07", "notes": "PMID 27574868. PMC5178024. Reports that a home-based palliative care program embedded in a Medicare Shared Savings Program ACO reduced total costs and hospitalizations. 'Satisfaction' in paper body references a background Kaiser Permanente study (ref 21), not a measured outcome of the Lustbader ACO program; satisfaction clause trimmed (CC-8). Claim type: verified (published observational study).", "pmid": "27574868", "pmcid": null }, { "id": "cit_mitchell_lancet_2011", "title": "Prevalence of Depression, Anxiety, and Adjustment Disorder in Oncological, Haematological, and Palliative-Care Settings: A Meta-Analysis of 94 Interview-Based Studies", "author": "Mitchell AJ, Chan M, Bhatti H, et al.", "year": 2011, "journal": "Lancet Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/21251875/", "accessDate": "2026-07-07", "doi": "10.1016/S1470-2045(11)70002-X", "notes": "PMID 21251875. Lancet Oncol 2011;12(2):160-174. Meta-analysis of 94 studies; depression prevalence ~29% across palliative settings (interview-based DSM criteria). Foundational prevalence estimate for psychological morbidity in palliative care. Claim type: verified (peer-reviewed meta-analysis).", "pmid": "21251875", "pmcid": null }, { "id": "cit_nowels_jpsm_2023", "title": "Psychological Distress in Patients Receiving Palliative Care: Systematic Review and Meta-Analysis", "author": "Nowels D, Kutner JS, Kilbourn K, et al.", "year": 2023, "journal": "Journal of Pain and Symptom Management", "url": "https://pubmed.ncbi.nlm.nih.gov/36764410/", "accessDate": "2026-07-07", "notes": "PMID 36764410. PMC11292728. J Pain Symptom Manage 2023. Full text confirms 'many studies had heterogeneity statistics indicating substantial to considerable heterogeneity.' Main finding: no statistically significant improvements in patient/caregiver anxiety (P=0.96), depression (P=0.25), or psychological distress (P=0.59) across 38 RCTs. CC-8 verdict: KEEP (heterogeneity language verbatim-confirmed). Claim type: verified (peer-reviewed systematic review — null and heterogeneous findings).", "pmid": "36764410", "pmcid": null }, { "id": "cit_rodin_calm_jco_2018", "title": "Managing Cancer and Living Meaningfully (CALM): A Randomized Controlled Trial of a Psychological Intervention for Patients with Advanced Cancer", "author": "Rodin G, Lo C, Rydall A, et al.", "year": 2018, "journal": "Journal of Clinical Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/29958037/", "accessDate": "2026-08-04", "doi": "10.1200/JCO.2017.77.1097", "notes": "PMID 29958037. JCO 2018;36(23):2422-2432. CALM RCT: a brief, individual psychotherapy reduced depressive symptoms and improved death preparation in patients with advanced cancer compared to usual care. Claim type: verified (RCT positive finding).", "pmid": "29958037", "pmcid": null }, { "id": "cit_mehnert_psychooncol_2020", "title": "Efficacy of the Managing Cancer and Living Meaningfully (CALM) individual psychotherapy for patients with advanced cancer: A single-blind randomized controlled trial", "author": "Mehnert A, Koranyi S, Philipp R, et al.", "year": 2020, "journal": "Psycho-Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/32803815/", "accessDate": "2026-08-16", "doi": "10.1002/pon.5521", "notes": "PMID 32803815. Psycho-Oncology 2020;29(11):1895-1904. N=206 randomized to CALM (n=99) or non-manualized supportive psycho-oncological counselling (n=107). Depressive symptoms fell in both arms by 6 months (P<.001), with no significant between-group difference on the primary outcome (BDI-II P=.62; PHQ-9 P=.998); secondary outcomes were likewise non-significant. Claim type: verified (null comparative finding requiring contextual reading).", "pmid": "32803815", "pmcid": null }, { "id": "cit_chochinov_lancet_2011", "title": "Effect of Dignity Therapy on Distress and End-of-Life Experience in Terminally Ill Patients: A Randomised Controlled Trial", "author": "Chochinov HM, Kristjanson LJ, Breitbart W, et al.", "year": 2011, "journal": "Lancet Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/21741309/", "accessDate": "2026-07-07", "doi": "10.1016/S1470-2045(11)70153-X", "notes": "PMID 21741309. PMC3185066. Lancet Oncol 2011;12(8):753-762. Primary quantitative endpoints null (distress, depression). Full text confirms: '67%, a heightened sense of meaning; 47%, an increased will to live' (patient-rated outcomes); 'Will to Live' is a measured outcome in Table 2. CC-8 verdict: KEEP ('meaning' and 'will to live' verbatim in full text). Claim type: verified (null primary endpoint + positive qualitative finding).", "pmid": "21741309", "pmcid": null }, { "id": "cit_breitbart_jco_2015", "title": "Meaning-Centered Group Psychotherapy: An Effective Intervention for Improving Psychological Well-Being in Patients with Advanced Cancer", "author": "Breitbart W, Rosenfeld B, Pessin H, et al.", "year": 2015, "journal": "Journal of Clinical Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/25646186/", "accessDate": "2026-07-07", "doi": "10.1200/JCO.2014.57.2198", "notes": "PMID 25646186. PMC4334778 (restricted). JCO 2015;33(7):749-754. MCGP RCT: significant reduction in spiritual distress and hopelessness; improved spiritual well-being (FACIT-Sp primary outcome, P<.001). 'Sense of meaning' not in abstract; full text inaccessible (publisher restriction); trimmed per CC-8. Claim type: verified (RCT positive finding).", "pmid": "25646186", "pmcid": null }, { "id": "cit_kissane_pallcare_2001", "title": "Demoralization Syndrome — A Relevant Psychiatric Diagnosis for Palliative Care", "author": "Kissane DW, Clarke DM, Street AF", "year": 2001, "journal": "Journal of Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/11324179/", "accessDate": "2026-07-07", "notes": "PMID 11324179. J Palliat Care 2001;17(1):12-21. Abstract confirms: 'Hopelessness, loss of meaning, and existential distress are proposed as the core features'; also confirms 'sense of impotence or helplessness' and 'This syndrome can be differentiated from depression.' No PMC; 'without neurovegetative features' is paper body language absent from abstract; trimmed per CC-8. Claim type: verified (peer-reviewed clinical description).", "pmid": "11324179", "pmcid": null }, { "id": "cit_mitchell_jad_2010", "title": "Diagnostic Validity of the Hospital Anxiety and Depression Scale (HADS) in Cancer and Palliative Settings: A Meta-Analysis", "author": "Mitchell AJ, Meader N, Symonds P", "year": 2010, "journal": "Journal of Affective Disorders", "url": "https://pubmed.ncbi.nlm.nih.gov/20207007/", "accessDate": "2026-07-07", "notes": "PMID 20207007. J Affect Disord 2010;126(3):335-348. Meta-analysis of HADS diagnostic accuracy in oncology and palliative settings. HADS shows moderate sensitivity/specificity for detecting depression and anxiety. Supports HADS as screening (not diagnostic) instrument. Claim type: verified (peer-reviewed diagnostic meta-analysis).", "pmid": "20207007", "pmcid": null }, { "id": "cit_cms_cocm_pfs_2025", "title": "Calendar Year (CY) 2025 Medicare Physician Fee Schedule Final Rule — Behavioral Health Integration and Caregiver Training Services", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS", "url": "https://www.cms.gov/newsroom/fact-sheets/calendar-year-cy-2025-medicare-physician-fee-schedule-final-rule", "accessDate": "2026-07-07", "notes": "CMS CY2025 PFS Final Rule (CMS-1807-F). Confirms Collaborative Care Model (CoCM) billing codes and Behavioral Health Integration (BHI) CPT codes under the physician fee schedule. Also establishes Caregiver Training Services (CTS) codes G0541, G0542, G0543 for functional impairment caregiver training. HTTP 200 confirmed. Substituted for MLN909432 (404). Claim type: verified (regulatory final rule).", "pmid": null, "pmcid": null }, { "id": "cit_hope_manual_v100", "title": "Hospice Outcomes and Patient Evaluation (HOPE) Guidance Manual v1.00", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS", "url": "https://www.cms.gov/files/document/hope-guidance-manualv100.pdf", "accessDate": "2026-07-07", "notes": "HOPE Guidance Manual v1.00. PDF confirmed HTTP 200. Contains F3000 item (Spiritual, Religious, and Existential Concerns). Confirmed: HOPE does NOT include PHQ-2/9, GAD-7, HADS, or any standardized depression or anxiety severity instrument — HOPE captures spiritual/existential process items only. Claim type: verified (official CMS manual).", "pmid": null, "pmcid": null }, { "id": "cit_rayner_pm_2011", "title": "Antidepressants for the Treatment of Depression in Palliative Care: Systematic Review and Meta-Analysis", "author": "Rayner L, Price A, Evans A, et al.", "year": 2011, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/20935027/", "accessDate": "2026-07-07", "doi": "10.1177/0269216310380764", "notes": "PMID 20935027. Palliat Med 2011;25(1):36-51. Systematic review and meta-analysis finding antidepressants are more effective than placebo for depression in palliative populations, but with limited high-quality evidence and significant trial heterogeneity. Claim type: verified (peer-reviewed meta-analysis).", "pmid": "20935027", "pmcid": null }, { "id": "cit_aarp_caregiving_2020", "title": "Caregiving in the United States 2020", "author": "National Alliance for Caregiving and AARP Public Policy Institute", "year": 2020, "publisher": "AARP", "url": "https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-united-states/", "accessDate": "2026-07-07", "notes": "AARP/NAC 2020 report. Estimates ~53 million unpaid family caregivers in the United States. 2025 report URL not accessible; 2020 report used (HTTP 200 confirmed). 63M figure from 2025 report excluded (see excluded-citations.md). Claim type: verified (survey report, 2020 data).", "pmid": null, "pmcid": null }, { "id": "cit_cms_guide_model", "title": "Guiding an Improved Dementia Experience (GUIDE) Model", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS Innovation Center", "url": "https://www.cms.gov/priorities/innovation/innovation-models/guide", "accessDate": "2026-07-07", "notes": "GUIDE Model launched July 2024; 8-year demonstration. Provides $2,500/year respite benefit for family caregivers of dementia patients. Residential component scope for July 2026 NOT confirmed in available documentation — excluded from claims. HTTP 200 confirmed. Claim type: verified (CMS model page).", "pmid": null, "pmcid": null }, { "id": "cit_dionne_odom_jco_2015", "title": "Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients with Advanced Cancer: Outcomes from the ENABLE III Randomized Controlled Trial", "author": "Dionne-Odom JN, Azuero A, Lyons KD, et al.", "year": 2015, "journal": "Journal of Clinical Oncology", "url": "https://pubmed.ncbi.nlm.nih.gov/25800762/", "accessDate": "2026-07-07", "doi": "10.1200/JCO.2014.58.7824", "notes": "PMID 25800762. JCO 2015;33(13):1446-1452. ENABLE III RCT: early palliative care significantly improved caregiver quality of life and reduced depression compared to delayed palliative care. Evidence that caregiver outcomes are modifiable through early PC intervention. Claim type: verified (RCT positive finding).", "pmid": "25800762", "pmcid": null }, { "id": "cit_zhang_aim_2012", "title": "Health Care Costs in the Last Week of Life: Associations with End-of-Life Conversations", "author": "Zhang B, Wright AA, Huskamp HA, et al.", "year": 2009, "journal": "Archives of Internal Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/19273778/", "accessDate": "2026-07-08", "doi": "10.1001/archinternmed.2008.587", "notes": "PMID 19273778 (corrected from 22777380 — prior entry had wrong PMID/year). Arch Intern Med. 2009 Mar 9;169(5):480-8. DOI 10.1001/archinternmed.2008.587. Coping With Cancer cohort (n=603 with EOL data). Patients who reported EOL discussions had 35.7% lower aggregate costs in the final week ($1876 vs $2917, P=.002). Higher costs were associated with worse quality of death (partial r=-0.17, P=.006). CwC cohort — cohort-overlap disclosure required alongside Wright 2008. Claim type: verified (CwC cohort observational study). Live-verified 2026-07-08 via PubMed eUtils efetch.", "pmid": "19273778", "pmcid": null }, { "id": "cit_in_peace_jama_2025", "title": "Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial", "author": "Sachs GA, Johnson NM, Gao S, et al.", "year": 2025, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/39878993/", "accessDate": "2026-07-08", "doi": "10.1001/jama.2024.25845", "notes": "PMID 39878993. JAMA. 2025 Mar 18;333(11):962-971. DOI 10.1001/jama.2024.25845. First author: Sachs GA (corrected from Patel K). Primary outcome: NPI-Q severity score — NOT MET (between-group difference at 24 months -0.24 [95% CI, -2.33 to 1.84]; P=.87 for group×time interaction). No significant differences in most secondary outcomes. One secondary outcome significant: combined ED and hospitalization events — dementia PC group 1.06 vs usual care 2.37 mean events/patient (difference -1.31 [95% CI, -1.93 to -0.69]; RR 0.45 [95% CI, 0.31 to 0.65]). Conclusion: 'dementia palliative care did not significantly improve patients' neuropsychiatric symptoms through 24 months.' Claim type: verified (null-primary RCT with one significant secondary outcome). Live-verified 2026-07-08 via PubMed eUtils efetch.", "pmid": "39878993", "pmcid": null }, { "id": "cit_morrison_jama_2021", "title": "What's Wrong With Advance Care Planning?", "author": "Morrison RS, Meier DE, Arnold RM", "year": 2021, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/34623373/", "accessDate": "2026-07-07", "doi": "10.1001/jama.2021.16430", "notes": "PMID 34623373. JAMA 2021;326(16):1575-1576. Viewpoint arguing that ACP as currently practiced is not consistently associated with reduced aggressive EOL care. Contested interpretation — other evidence supports ACP benefit in specific contexts. Claim type: verified (published viewpoint — contested finding, not conclusive).", "pmid": "34623373", "pmcid": null }, { "id": "cit_yadav_healthaff_2017", "title": "Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care", "author": "Yadav KN, Gabler NB, Cooney E, et al.", "year": 2017, "journal": "Health Affairs", "url": "https://pubmed.ncbi.nlm.nih.gov/28679811/", "accessDate": "2026-07-07", "doi": "10.1377/hlthaff.2017.0175", "notes": "PMID 28679811. Health Aff 2017;36(7):1244-1251. Nationally representative study finding 36.7% of U.S. adults have completed any type of advance directive. Substantially lower in younger and minority populations. Claim type: verified (peer-reviewed national study).", "pmid": "28679811", "pmcid": null }, { "id": "cit_cms_vbid_two_dates", "title": "Medicare Advantage Value-Based Insurance Design (VBID) Model — Hospice Benefit Component Termination", "author": "Centers for Medicare & Medicaid Services", "year": 2025, "publisher": "CMS Innovation Center", "url": "https://www.cms.gov/priorities/innovation/innovation-models/vbid", "accessDate": "2026-07-07", "notes": "CMS VBID page. Two-date termination structure: (1) Hospice Benefit Component (HBC) terminated December 31, 2024; (2) entire VBID Model terminated December 31, 2025. Both dates confirmed on CMS VBID page. Claim type: verified.", "pmid": null, "pmcid": null }, { "id": "cit_cms_fy2026_hospice_rule", "title": "Hospice Wage Index and Payment Rate Update FY2026 (CMS-1835-F)", "author": "Centers for Medicare & Medicaid Services", "year": 2025, "publisher": "CMS", "url": "https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1835-f", "accessDate": "2026-07-07", "notes": "CMS-1835-F FY2026 final rule. Payment rate update confirmed via CMS regulations page (HTTP 200). Aggregate cap for FY2026: $35,361 per beneficiary — cross-confirmed via MedPAC March 2026 Ch10 (cit_medpac_ch10_2026). Claim type: verified (rule existence + cap amount cross-referenced).", "pmid": null, "pmcid": null }, { "id": "cit_cms_fy2027_hospice_proposed", "title": "Hospice Wage Index and Payment Rate Update FY2027 Final Rule (CMS-1851-F)", "author": "Centers for Medicare & Medicaid Services", "year": 2026, "publisher": "CMS", "url": "https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1851-f", "accessDate": "2026-08-31", "notes": "CMS-1851-F FY2027 final rule, issued July 30, 2026. CMS finalized a Medicare.gov Care Compare icon for hospices that submit no quality data or less than the required 90% under HQRP, effective no earlier than FY2028. Stable citation id retained for link compatibility after the proposal advanced to final rule.", "pmid": null, "pmcid": null }, { "id": "cit_cms_hope_reporting", "title": "Hospice Outcomes and Patient Evaluation (HOPE) — Quality Reporting and Public Reporting Timeline", "author": "Centers for Medicare & Medicaid Services", "year": 2025, "publisher": "CMS", "url": "https://www.cms.gov/medicare/quality/hospice/hope", "accessDate": "2026-07-07", "notes": "HOPE quality reporting page. Confirms October 2025 data collection start date. HTTP 200 confirmed. Claim type: verified.", "pmid": null, "pmcid": null }, { "id": "cit_medpac_ch10_2026", "title": "Report to the Congress: Medicare Payment Policy, Chapter 10 — Hospice Services (March 2026)", "author": "Medicare Payment Advisory Commission (MedPAC)", "year": 2026, "publisher": "MedPAC", "url": "https://www.medpac.gov/document/march-2026-report-to-the-congress-medicare-payment-policy/", "accessDate": "2026-07-07", "notes": "MedPAC March 2026 Report to Congress, Chapter 10 (Hospice). PDF downloaded and text extracted. Confirms: aggregate cap $35,361 in FY2026; ESRD patients as growing share of hospice with historically lower access (31.4% lower in 2024); concurrent care access barriers documented; payment adequacy assessment. Claim type: verified (MedPAC analysis — analyst interpretation where noted).", "pmid": null, "pmcid": null }, { "id": "cit_greene_jco_cci_2025", "title": "Using Natural Language Processing to Assess Goals-of-Care Conversations for Patients With Cancer", "author": "Greene, M.K., Broadwater, G., LeBlanc, T.W., et al.", "year": 2025, "journal": "JCO Clinical Cancer Informatics", "url": "https://pubmed.ncbi.nlm.nih.gov/41100788/", "accessDate": "2026-07-10", "doi": "10.1200/CCI-24-00239", "notes": "PMID 41100788. JCO Clin Cancer Inform. 2025;9:e2400239. Duke single-center NLP study, 2,031 patients with cancer who died 2018–2022. Family involvement most documented (75.0%); fears least (21.1%); only 5.4% had all 8 components. 73.2% received aggressive EOL care with 0/8 components; 50.3% with 7/8. HTTP 200 confirmed via PubMed.", "pmid": "41100788", "pmcid": null }, { "id": "cit_hope_v102_allitem", "title": "HOPE All-Item Set v1.02 (Hospice Outcomes and Patient Evaluation)", "author": "Centers for Medicare & Medicaid Services", "year": 2025, "publisher": "CMS", "url": "https://www.cms.gov/files/document/hope-v1-02-all-item.pdf", "accessDate": "2026-07-10", "notes": "HOPE All-Item Set v1.02. Contains F3000 item: 'Spiritual/Existential Concerns' — coded 0=No/skip, 1=Yes and discussion occurred, 2=Yes but refused — with accompanying date field. HTTP 200 confirmed.", "pmid": null, "pmcid": null }, { "id": "cit_cms_fy2025_hqrp_rule", "title": "FY 2025 Hospice Wage Index and Payment Rate Update Final Rule (CMS-1810-F) — 89 FR 64202, FR doc 2024-16910", "author": "Centers for Medicare & Medicaid Services", "year": 2024, "publisher": "CMS / Federal Register", "url": "https://www.federalregister.gov/documents/2024/08/09/2024-16910/medicare-program-fy-2025-hospice-wage-index-and-payment-rate-update-and-hospice-quality-reporting", "accessDate": "2026-07-10", "notes": "CMS-1810-F. Established HOPE as the mandated hospice quality reporting tool effective October 1, 2025. Public reporting of HOPE-based measures anticipated no earlier than November 2027 (FY 2028); two process measures no sooner than FY 2028, using four quarters of CY 2026 data. HTTP 200 confirmed via Federal Register (302 redirect to canonical).", "pmid": null, "pmcid": null }, { "id": "cit_cms_fy2026_fact_sheet", "title": "FY 2026 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Final Rule (CMS-1835-F) — Fact Sheet", "author": "Centers for Medicare & Medicaid Services", "year": 2025, "publisher": "CMS", "url": "https://www.cms.gov/newsroom/fact-sheets/fy-2026-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program-requirements-final", "accessDate": "2026-07-10", "notes": "CMS-1835-F fact sheet. FY2026 hospice payment update: 2.6% (~$750M); aggregate cap $35,361.44 per beneficiary. HTTP 200 confirmed.", "pmid": null, "pmcid": null }, { "id": "cit_cms_fy2027_fact_sheet", "title": "Fiscal Year (FY) 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Proposed Rule (CMS-1851-P) — Fact Sheet", "author": "Centers for Medicare & Medicaid Services", "year": 2026, "publisher": "CMS", "url": "https://www.cms.gov/newsroom/fact-sheets/fiscal-year-fy-2027-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program", "accessDate": "2026-07-10", "notes": "CMS-1851-P fact sheet. Proposed FY2027 payment: 2.4% (~$785M); aggregate cap $36,210.11. Proposes icon on Medicare.gov Compare Tool identifying hospices failing HOPE reporting, effective no earlier than FY2028. HTTP 200 confirmed.", "pmid": null, "pmcid": null }, { "id": "cit_capc_mi_scorecard_2024", "title": "Palliative Care in Michigan — CAPC Serious Illness Scorecard State Report", "author": "Center to Advance Palliative Care (CAPC)", "year": 2024, "publisher": "CAPC", "url": "https://scorecard.capc.org/state/michigan/", "accessDate": "2026-07-10", "notes": "CAPC Serious Illness Scorecard Michigan state report (2024 edition; 2024 and 2025 editions carry identical figures). Hospital PC by bed size: <50 (67.4%), 50–149 (68.4%), 150–299 (86.7%), 300+ (92.6%); est. 92.1% of MI inpatients have access. 286 certified palliative-care prescribers (2.9/100K). No standalone Medicaid palliative benefit; no legislative PC advisory council. C-TAC ACT Index rank 17/51; AARP LTSS Scorecard rank 31/51. HTTP 200 confirmed.", "pmid": null, "pmcid": null }, { "id": "cit_chua_gcc_jama_2025", "title": "Patient-Centered Measures of Goal Concordance in Geriatrics and Palliative Care: A Scoping Review", "author": "Chua, I.S., Berler, A., Ritchie, C.S., et al.", "year": 2025, "journal": "JAMA Network Open", "url": "https://pubmed.ncbi.nlm.nih.gov/40906477/", "accessDate": "2026-07-10", "doi": "10.1001/jamanetworkopen.2025.30370", "notes": "PMID 40906477. JAMA Netw Open 2025;8(9):e2530370. Scoping review: 4,801 articles screened; 63 studies; 44 unique goal-concordance measures. Finding: 'a criterion standard for measurement is lacking.' HTTP 200 confirmed.", "pmid": "40906477", "pmcid": null }, { "id": "cit_auriemma_gcc_jama_2025", "title": "Measuring Goal-Concordant Care Using Electronic Clinical Notes", "author": "Auriemma, C.L., Song, A., Courtright, K.R., et al.", "year": 2025, "journal": "JAMA Network Open", "url": "https://pubmed.ncbi.nlm.nih.gov/40608339/", "accessDate": "2026-07-10", "doi": "10.1001/jamanetworkopen.2025.18967", "notes": "PMID 40608339. JAMA Netw Open 2025;8(7):e2518967. EHR clinical-notes method for GCC classification; inter-rater agreement κ=0.92 (95% CI, 0.86–0.99). 109 seriously ill adults, 3 urban hospitals, University of Pennsylvania health system. HTTP 200 confirmed.", "pmid": "40608339", "pmcid": null }, { "id": "cit_heyland_canhelp_pallmed_2010", "title": "The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire", "author": "Heyland, D.K., Cook, D.J., Rocker, G.M., et al.", "year": 2010, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/20605850/", "accessDate": "2026-07-10", "doi": "10.1177/0269216310373168", "notes": "PMID 20605850. Palliat Med 2010;24(7):682-95. CANHELP validation study (N=361 patients, 193 caregivers). Instrument measures satisfaction with end-of-life care — NOT goal concordance. Cronbach's α 0.69–0.94; correlation with GRS 0.49 (patient) and 0.63 (caregiver). HTTP 200 confirmed.", "pmid": "20605850", "pmcid": null }, { "id": "cit_volandes_acp_jama_2025", "title": "An Intervention to Increase Advance Care Planning Among Older Adults With Advanced Cancer: A Randomized Clinical Trial", "author": "Volandes, A.E., Chang, Y., Lakin, J.R., et al.", "year": 2025, "journal": "JAMA Network Open", "url": "https://pubmed.ncbi.nlm.nih.gov/40343696/", "accessDate": "2026-07-10", "doi": "10.1001/jamanetworkopen.2025.9150", "notes": "PMID 40343696. JAMA Netw Open 2025;8(5):e259150. NCT03609177 (ACP PEACE). Stepped-wedge cluster RCT, 29 oncology practices, N=13,800 patients ≥65 with advanced cancer, 3 US health systems. Primary outcome (POSITIVE): ACP documentation +6.8pp (25.3% vs 20.8%; P<.001). Palliative care enrollment: 9.6% vs 9.5% (not significant). Hospice enrollment: 5.4% vs 5.3% (not significant). HTTP 200 confirmed.", "pmid": "40343696", "pmcid": null }, { "id": "cit_nct06307535_mcpc", "title": "Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C) — ClinicalTrials.gov NCT06307535", "author": "Applebaum, A.J., et al. (Mount Sinai)", "year": 2024, "publisher": "ClinicalTrials.gov", "url": "https://clinicaltrials.gov/study/NCT06307535", "accessDate": "2026-07-10", "notes": "NCT06307535. Active multi-site RCT; planned N=200 caregivers of stage III/IV solid tumor patients. Sites: Mount Sinai, Sylvester/Miami, community. Primary outcomes: personal meaning (MLQ) and spiritual well-being (FACIT-Sp). Active comparator: Supportive Psychotherapy for Cancer Caregivers. HTTP 200 confirmed.", "pmid": null, "pmcid": null }, { "id": "cit_arch_valued_living_2026", "title": "Valued Living intervention to increase advance care planning and well-being in depressed and anxious adults with advanced cancer: Randomized trial in community oncology clinics", "author": "Arch JJ, Mitchell JL, Schmiege SJ, et al.", "year": 2026, "journal": "Cancer", "url": "https://pubmed.ncbi.nlm.nih.gov/41848105/", "accessDate": "2026-07-10", "doi": "10.1002/cncr.70349", "notes": "PMID 41848105. N=240 adults with advanced solid tumor + significant depression/anxiety. 5 videoconference sessions delivered by social workers. PRIMARY: ACP steps completed. SECONDARY: spiritual well-being (FACIT-Sp).", "pmid": "41848105", "pmcid": null }, { "id": "cit_neo_enable_hf_2026", "title": "Feasibility, acceptability and efficacy of a nurse-led palliative care health coaching intervention (Educate, Nurture, Advise before Life Ends) for patients with heart failure and their caregivers in Singapore: a randomised wait-list controlled pilot study of health coaching in Asian heart failure", "author": "Neo, S.H., et al.", "year": 2026, "journal": "BMJ Open", "url": "https://pubmed.ncbi.nlm.nih.gov/42152453/", "accessDate": "2026-08-04", "doi": "10.1136/bmjopen-2025-113749", "notes": "PMID 42152453. Pilot RCT; heart failure population. PRIMARY: KCCQ at 6 months. SECONDARY: FACIT-Sp (spiritual well-being); caregiver QOL (null at 3 and 6 months).", "pmid": "42152453", "pmcid": null }, { "id": "cit_iturri_music_sr_2026", "title": "Music therapy interventions on symptom management in adults with advanced cancer - multisession longitudinal impact: systematic review", "author": "Iturri A, Najún M, Vázquez N, Alonso-Babarro A", "year": 2026, "journal": "BMJ Supportive & Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/41922094/", "accessDate": "2026-08-16", "doi": "10.1136/spcare-2025-005913", "notes": "PMID 41922094. Systematic review (PROSPERO CRD42024613493) of six controlled trials, 438 participants, narrative synthesis. Global quality of life showed no significant change; spiritual well-being (P=0.04) and ego-integrity (P<.01) improved, all six trials reported reduced anxiety, and sleep quality improved (P=0.006 to P=0.012).", "pmid": "41922094", "pmcid": null }, { "id": "cit_rodrigues_mil_sr_2026", "title": "Meaning-in-Life Centered Interventions in Palliative Care: A Systematic Review", "author": "Rodrigues-Fouto, A., Reis-Pina, P.", "year": 2026, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/41762175/", "accessDate": "2026-07-10", "notes": "PMID 41762175. 8 studies reviewed; 7/8 high risk of bias. Conclusion: evidence insufficient to recommend MIL-centered interventions for routine clinical practice.", "pmid": "41762175", "pmcid": null }, { "id": "cit_creech_mayo_chaplaincy_2026", "title": "The Efficacy of Spiritual Care Intervention on Readmissions of Hospitalized Patients Receiving Palliative Care: A Quasi-Experimental Pilot Study Proposal", "author": "Creech GG, Bieck RL, Bolint BX, et al.", "year": 2026, "journal": "American Journal of Hospice and Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/42381114/", "accessDate": "2026-07-10", "doi": "10.1177/10499091261465367", "notes": "PMID 42381114. Quasi-experimental N=200; 30-day readmission primary endpoint. Published protocol; no efficacy results available as of 2026-07-10.", "pmid": "42381114", "pmcid": null }, { "id": "cit_agaronnik_gpt4o_acp_2025", "title": "Large Language Models to Identify Advance Care Planning in Patients With Advanced Cancer", "author": "Agaronnik ND, Davis J, Manz CR, et al.", "year": 2025, "journal": "Journal of Pain and Symptom Management", "url": "https://pubmed.ncbi.nlm.nih.gov/39586429/", "accessDate": "2026-07-10", "doi": "10.1016/j.jpainsymman.2024.11.016", "notes": "PMID 39586429. N=60 patients; single institution retrospective. Sensitivity 0.85–1.0; specificity 0.80–0.91 across ACP domains. Hallucination index <0.5 (low). Limitations: small N, single-site, retrospective.", "pmid": "39586429", "pmcid": null }, { "id": "cit_sorin_llm_hospice_2026", "title": "Alignment of Large Language Models with Medical and Hospice Ethical Principles in End-of-Life Dilemmas", "author": "Sorin, V., et al.", "year": 2026, "journal": "Digital Health", "url": "https://pubmed.ncbi.nlm.nih.gov/41767866/", "accessDate": "2026-07-10", "doi": "10.1177/20552076261428395", "notes": "PMID 41767866. Structured stress test of 14 LLMs on hospice/medical ethical dilemmas. 7/14 endorsed ethically impermissible actions; 6.3% of outputs endorsed involuntary hospice transfer. Authors note findings do not generalize to routine clinical use.", "pmid": "41767866", "pmcid": null }, { "id": "cit_tan_ai_acp_sr_2026", "title": "Artificial Intelligence in Advance Care Planning: A Scoping Review", "author": "Tan, M., et al.", "year": 2026, "journal": "Artificial Intelligence in Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/41352175/", "accessDate": "2026-07-10", "doi": "10.1016/j.artmed.2025.103315", "notes": "PMID 41352175. 42 studies reviewed. Key finding: generative AI use 'limited'; rule-based NLP dominates; no RCTs of AI-delivered ACP conversations with patients identified.", "pmid": "41352175", "pmcid": null }, { "id": "cit_peerawong_ai_palliative_sr_2026", "title": "Artificial Intelligence in Palliative Care: A Scoping Review", "author": "Peerawong, T., et al.", "year": 2026, "journal": "BMC Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/42366389/", "accessDate": "2026-07-10", "doi": "10.1186/s12904-026-02191-0", "notes": "PMID 42366389. 15 studies reviewed. Evidence described as 'geographically skewed, methodologically immature, and ethically underdeveloped.' Only 2/15 studies measured QOL directly.", "pmid": "42366389", "pmcid": null }, { "id": "cit_patel_ai_palliative_tips_2026", "title": "Top Ten Tips Palliative Care Clinicians Should Know About Artificial Intelligence", "author": "Patel, P., et al. (MSK, MGH, Mayo Clinic, Johns Hopkins)", "year": 2026, "journal": "Journal of Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/40824746/", "accessDate": "2026-07-10", "doi": "10.1177/10966218251366117", "notes": "PMID 40824746. Interdisciplinary guidance document from four major academic centers. Not a formal society position statement.", "pmid": "40824746", "pmcid": null }, { "id": "cit_idf_dar_guidelines_2021", "title": "Diabetes and Ramadan: Practical guidelines 2021", "author": "Hassanein, M., Afandi, B., Yakoob Ahmedani, M., et al.", "year": 2022, "journal": "Diabetes Research and Clinical Practice", "url": "https://pubmed.ncbi.nlm.nih.gov/35016991/", "accessDate": "2026-07-11", "doi": "10.1016/j.diabres.2021.109185", "notes": "PMID 35016991. IDF + DAR International Alliance update covering T1D fasting, elderly/pregnant management, and macro/microvascular risk stratification.", "pmid": "35016991", "pmcid": null }, { "id": "cit_idf_dar_guidelines_2017", "title": "Diabetes and Ramadan: Practical guidelines", "author": "Hassanein, M., Al-Arouj, M., Hamdy, O., et al.", "year": 2017, "journal": "Diabetes Research and Clinical Practice", "url": "https://pubmed.ncbi.nlm.nih.gov/28347497/", "accessDate": "2026-07-11", "doi": "10.1016/j.diabres.2017.03.003", "notes": "PMID 28347497. Original IDF-DAR guidelines: exemptions exist for serious medical conditions but many patients fast against medical advice; covers risk stratification and medication adjustment.", "pmid": "28347497", "pmcid": null }, { "id": "cit_epidiar_salti_2004", "title": "A Population-Based Study of Diabetes and Its Characteristics During the Fasting Month of Ramadan in 13 Countries: Results of the EPIDIAR Study", "author": "Salti, I., Bénard, E., Detournay, B., et al.", "year": 2004, "journal": "Diabetes Care", "url": "https://pubmed.ncbi.nlm.nih.gov/15451892/", "accessDate": "2026-07-11", "doi": "10.2337/diacare.27.10.2306", "notes": "PMID 15451892. 12,243 patients across 13 countries. Severe hypoglycemia significantly more frequent during Ramadan (T1D 0.14 vs 0.03 episodes/month, P=.0174); under 50% of patients adjusted medication dose.", "pmid": "15451892", "pmcid": null }, { "id": "cit_loh_ramadan_t2d_treatment_2020", "title": "Treatment Options for Patients with Type 2 Diabetes Mellitus during the Fasting Month of Ramadan", "author": "Loh, H. H., Kamaruddin, N. A.", "year": 2020, "journal": "Annals of the Academy of Medicine, Singapore", "url": "https://pubmed.ncbi.nlm.nih.gov/33000110/", "accessDate": "2026-07-11", "notes": "PMID 33000110. Sulfonylureas (esp. glibenclamide) carry higher hypoglycemia risk during Ramadan fasting and may need dose/timing adjustment; insulin regimens need individualization.", "pmid": "33000110", "pmcid": null }, { "id": "cit_alguwaihes_idfdar_validation_2025", "title": "Assessment of the IDF-DAR Fasting Risk Assessment Tool to Predict Type 1 Diabetes-Related Complications During Ramadan in a Real-World Setting", "author": "Alguwaihes, A. M., Hassanein, M., Alzaman, N., et al.", "year": 2025, "journal": "Clinical Medicine Insights: Endocrinology and Diabetes", "url": "https://pubmed.ncbi.nlm.nih.gov/41001082/", "accessDate": "2026-07-11", "doi": "10.1177/11795514251376888", "notes": "PMID 41001082. n=963 adult T1D patients, Saudi Arabia. IDF-DAR 2021 risk calculator predicts acute complications; pre-Ramadan education associated with 47% lower ER-visit odds (OR 0.53, 95% CI 0.34-0.82, P=.005).", "pmid": "41001082", "pmcid": null }, { "id": "cit_pbm_multimodal_meta_2019", "title": "Multimodal Patient Blood Management Program Based on a Three-pillar Strategy: A Systematic Review and Meta-analysis", "author": "Althoff, F. C., Neb, H., et al.", "year": 2019, "journal": "Annals of Surgery", "url": "https://pubmed.ncbi.nlm.nih.gov/30418206/", "accessDate": "2026-07-11", "doi": "10.1097/SLA.0000000000003095", "notes": "PMID 30418206. Meta-analysis of 17 studies / 235,779 surgical patients (PROSPERO CRD42017079217): three-pillar PBM programs reduced transfusion rates by 39% (RR 0.61), RBC units per patient by 0.43, hospital length of stay, total complications (RR 0.80), and mortality (RR 0.89, P=.02).", "pmid": "30418206", "pmcid": null }, { "id": "cit_jw_cardiac_surgery_outcomes_pattakos_2012", "title": "Outcome of Patients Who Refuse Transfusion After Cardiac Surgery: A Natural Experiment With Severe Blood Conservation", "author": "Pattakos, G., Koch, C. G., et al.", "year": 2012, "journal": "Archives of Internal Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/22751620/", "accessDate": "2026-07-11", "doi": "10.1001/archinternmed.2012.2449", "notes": "PMID 22751620. Cleveland Clinic cohort, 322 Jehovah's Witnesses vs. 87,453 non-Witnesses undergoing cardiac surgery (1983-2011); propensity-matched Witnesses (who refused transfusion) had fewer acute complications, shorter ICU/hospital stay, better 1-year survival (95% vs 89%, P=.007), and statistically similar 20-year survival (34% vs 32%) versus matched transfused patients.", "pmid": "22751620", "pmcid": null }, { "id": "cit_cell_salvage_cochrane_carless_2010", "title": "Cell Salvage for Minimising Perioperative Allogeneic Blood Transfusion", "author": "Carless, P. A., Henry, D. A., et al.", "year": 2010, "journal": "Cochrane Database of Systematic Reviews", "url": "https://pubmed.ncbi.nlm.nih.gov/20393932/", "accessDate": "2026-07-11", "doi": "10.1002/14651858.CD001888.pub4", "notes": "PMID 20393932 (Cochrane review, 75 RCTs). Intraoperative cell salvage reduced allogeneic RBC transfusion exposure by a relative 38% (RR 0.62) and saved an average 0.68 units of allogeneic RBC per patient, with no adverse impact on clinical outcomes, in elective cardiac and orthopedic surgery.", "pmid": "20393932", "pmcid": null }, { "id": "cit_epo_iv_iron_perioperative_lin_2013", "title": "Efficacy and Safety of Erythropoietin and Intravenous Iron in Perioperative Blood Management: A Systematic Review", "author": "Lin, D. M., Lin, E. S., Tran, M. H.", "year": 2013, "journal": "Transfusion Medicine Reviews", "url": "https://pubmed.ncbi.nlm.nih.gov/24135037/", "accessDate": "2026-07-11", "doi": "10.1016/j.tmrv.2013.09.001", "notes": "PMID 24135037. Systematic review of 24 RCTs + 15 nonrandomized studies: a short preoperative course of erythropoietin, or a single dose of EPO plus IV iron, significantly reduced perioperative transfusion rates (number needed to treat to avoid any transfusion: 3-6); preoperative IV iron gave earlier/more robust hemoglobin recovery than oral iron in iron-deficiency anemia.", "pmid": "24135037", "pmcid": null }, { "id": "cit_preop_iv_iron_nonanemic_toledo_2025", "title": "Preoperative Iron Supplementation in Non-anemic Patients Undergoing Major Surgery: A Systematic Review and Meta-analysis", "author": "Toledo, F. V., De Carli, D., et al.", "year": 2025, "journal": "Brazilian Journal of Anesthesiology (Elsevier)", "url": "https://pubmed.ncbi.nlm.nih.gov/40189047/", "accessDate": "2026-07-11", "doi": "10.1016/j.bjane.2025.844618", "notes": "PMID 40189047 (PROSPERO CRD42024552559). Meta-analysis of 9 RCTs / 1,162 non-anemic major-surgery patients: preoperative IV iron supplementation significantly lowered the odds of receiving a blood transfusion (OR 0.54, 95% CI 0.40-0.75, P<0.001), particularly in cardiac procedures.", "pmid": "40189047", "pmcid": null }, { "id": "cit_blackhall_ethnicity_autonomy_1995", "title": "Ethnicity and attitudes toward patient autonomy", "author": "Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., Azen, S.", "year": 1995, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/7650806/", "accessDate": "2026-07-11", "notes": "PMID 7650806. Survey of 800 elderly adults across four ethnic groups (LA County): Korean-American (47%) and Mexican-American (65%) respondents were significantly less likely than European-American (87%) and African-American (88%) respondents to believe a patient should be told a metastatic-cancer diagnosis, tending instead toward family-centered decision models. The authors' own recommendation: ask each patient whether they wish to receive information and make decisions, or prefer their family handle it. Ethnicity study, not a religion study — see careFrameworkClaims scope note.", "pmid": "7650806", "pmcid": null }, { "id": "cit_karliner_interpreters_2007", "title": "Do professional interpreters improve clinical care for patients with limited English proficiency? A systematic review of the literature", "author": "Karliner, L. S., Jacobs, E. A., Chen, A. H., Mutha, S.", "year": 2007, "journal": "Health Services Research", "url": "https://pubmed.ncbi.nlm.nih.gov/17362215/", "accessDate": "2026-07-11", "doi": "10.1111/j.1475-6773.2006.00629.x", "notes": "PMID 17362215. Systematic review (28 studies): professional medical interpreters improve communication (fewer errors, better comprehension), utilization, clinical outcomes, and satisfaction for limited-English-proficiency patients versus ad hoc interpreters, raising care quality toward parity with patients facing no language barrier.", "pmid": "17362215", "pmcid": null }, { "id": "cit_kleinman_explanatory_models_1978", "title": "Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research", "author": "Kleinman, A., Eisenberg, L., Good, B.", "year": 1978, "journal": "Annals of Internal Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/626456/", "accessDate": "2026-07-11", "doi": "10.7326/0003-4819-88-2-251", "notes": "PMID 626456. Foundational framework paper: distinguishes disease (biomedical process) from illness (the patient's culturally shaped experience of it) and introduces eliciting the patient's explanatory model as a translatable clinical strategy.", "pmid": "626456", "pmcid": null }, { "id": "cit_luanerfe_lep_perioperative_2022", "title": "Limited English Proficiency and Perioperative Patient-Centered Outcomes: A Systematic Review", "author": "Luan-Erfe, B. M., Erfe, J. M., DeCaria, B., Okocha, O.", "year": 2022, "journal": "Anesthesia and Analgesia", "url": "https://pubmed.ncbi.nlm.nih.gov/36066429/", "accessDate": "2026-07-11", "doi": "10.1213/ANE.0000000000006159", "notes": "PMID 36066429. Systematic review of 10 high-quality studies: strong evidence that professional medical interpreter use or a language-concordant provider improves procedural-consent understanding for LEP patients; LEP patients are at risk of poorer postoperative pain control and poorer understanding of discharge instructions.", "pmid": "36066429", "pmcid": null }, { "id": "cit_boylen_interpreters_pediatric_2020", "title": "Impact of professional interpreters on outcomes for hospitalized children from migrant and refugee families with limited English proficiency: a systematic review", "author": "Boylen, S., Cherian, S., Gill, F. J., Leslie, G. D., Wilson, S.", "year": 2020, "journal": "JBI Evidence Synthesis", "url": "https://pubmed.ncbi.nlm.nih.gov/32813387/", "accessDate": "2026-07-11", "doi": "10.11124/JBISRIR-D-19-00300", "notes": "PMID 32813387. Systematic review (6 articles, 1,813 families): ad hoc or no interpreters are inferior to professional interpreters of any mode for hospitalized children of migrant/refugee LEP families — greater satisfaction with care, shorter ED throughput with in-person interpreters, better diagnosis understanding with video vs phone.", "pmid": "32813387", "pmcid": null }, { "id": "cit_stacey_decision_aids_cochrane_2017", "title": "Decision aids for people facing health treatment or screening decisions", "author": "Stacey D, Lewis KB, Smith M, et al.", "year": 2024, "journal": "Cochrane Database of Systematic Reviews", "url": "https://pubmed.ncbi.nlm.nih.gov/38284415/", "accessDate": "2026-09-08", "doi": "10.1002/14651858.CD001431.pub6", "notes": "PMID 38284415; PMCID PMC10823577. 2024 update of the Cochrane decision-aid review, explicitly updating the 2017 edition previously stored under this stable citation id. Total: 209 randomized studies, 107,698 participants, 71 decisions. Moderate-certainty evidence: informed values-choice congruence RR 1.75 (95% CI 1.44–2.13; 21 studies, 9,377 participants). High-certainty evidence: knowledge MD 11.90/100 (95% CI 10.60–13.19; 107 studies, 25,492), accurate risk perceptions RR 1.94 (95% CI 1.61–2.34; 25 studies, 7,796), and reductions in decisional conflict and passive decision-making. No difference in decision regret. Stable citation id retained so existing claim and permalink references do not break.", "pmid": "38284415", "pmcid": null }, { "id": "cit_tervalon_cultural_humility_1998", "title": "Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education", "author": "Tervalon, M., Murray-García, J.", "year": 1998, "journal": "Journal of Health Care for the Poor and Underserved", "url": "https://pubmed.ncbi.nlm.nih.gov/10073197/", "accessDate": "2026-07-11", "doi": "10.1353/hpu.2010.0233", "notes": "PMID 10073197. The source of the cultural-humility concept: a lifelong commitment to self-evaluation and self-critique, redressing power imbalances in the patient-physician dynamic, and nonpaternalistic partnerships with communities — proposed as a more suitable training goal than 'detached mastery' models of competence. Definitional/framework source, not an outcomes trial.", "pmid": "10073197", "pmcid": null }, { "id": "cit_searight_eol_cultural_diversity_2005", "title": "Cultural diversity at the end of life: issues and guidelines for family physicians", "author": "Searight, H. R., Gafford, J.", "year": 2005, "journal": "American Family Physician", "url": "https://pubmed.ncbi.nlm.nih.gov/15712625/", "accessDate": "2026-07-11", "notes": "PMID 15712625. Review identifying three culturally varying dimensions of end-of-life treatment: communication of 'bad news,' locus of decision-making (patient- vs family-/physician-based), and attitudes toward advance directives — with lower advance-directive completion among specific ethnic groups linked to health-system distrust and disparities.", "pmid": "15712625", "pmcid": null }, { "id": "cit_horvat_cultural_competence_cochrane_2014", "title": "Cultural competence education for health professionals", "author": "Horvat, L., Horey, D., Romios, P., Kis-Rigo, J.", "year": 2014, "journal": "Cochrane Database of Systematic Reviews", "url": "https://pubmed.ncbi.nlm.nih.gov/24793445/", "accessDate": "2026-07-11", "doi": "10.1002/14651858.CD009405.pub2", "notes": "PMID 24793445. Cochrane review (5 RCTs, 337 health professionals / 8,400 patients): cultural-competence education showed positive but low-quality evidence for improved involvement in care among culturally and linguistically diverse patients; treatment-outcome evidence was null or absent, and the review concludes evidence is insufficient for generalisable conclusions. Cited for this honest mixed result, not as proof of effectiveness.", "pmid": "24793445", "pmcid": null }, { "id": "cit_leone_collagen_islam_systematic_review_2026", "title": "Animal-derived collagen and Islamic religious prescriptions: a systematic review", "author": "Leone, R., Migliore, A., Ricciardi, W.", "year": 2026, "journal": "Clinical Rheumatology", "url": "https://pubmed.ncbi.nlm.nih.gov/42348129/", "accessDate": "2026-07-11", "doi": "10.1007/s10067-026-08247-z", "notes": "PMID 42348129. PRISMA 2020 systematic review, 56 studies from 1,035 records: collagen is predominantly porcine (~41% of global production) and a ubiquitous pharmaceutical/biomedical excipient affecting an estimated 1.9 billion Muslim patients; across mainstream Sunni jurisprudence porcine collagen is classed haram regardless of processing, bovine conditionally permissible with zabiha slaughter, fish collagen broadly accepted.", "pmid": "42348129", "pmcid": null }, { "id": "cit_taylor_culturally_sensitive_prescribing_2021", "title": "Culturally sensitive prescribing of common symptom management drugs", "author": "Taylor, B.", "year": 2021, "journal": "BMJ Supportive & Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/33436371/", "accessDate": "2026-07-11", "doi": "10.1136/bmjspcare-2020-002682", "notes": "PMID 33436371. Review of Summary of Product Characteristics for 18 common palliative medicines plus contact with 39 manufacturers: animal products used in production were not specified on labeling, gelatine was 'most often, but not always, bovine,' and excipient source varied between manufacturers and changed over time — it was 'not possible to provide definitive information,' placing the onus on prescribers to enquire.", "pmid": "33436371", "pmcid": null }, { "id": "cit_sattar_patient_physician_attitudes_2004", "title": "Patient and physician attitudes to using medications with religiously forbidden ingredients", "author": "Sattar, S. P., Ahmed, M. S., Madison, J., Olsen, D. R., Bhatia, S. C., et al.", "year": 2004, "journal": "Annals of Pharmacotherapy", "url": "https://pubmed.ncbi.nlm.nih.gov/15479773/", "accessDate": "2026-07-11", "doi": "10.1345/aph.1E001", "notes": "PMID 15479773. Survey of 100 patients + 100 physicians: over 1,000 medications contain pork/beef-derived gelatin or stearic acid; 84% of patients were unaware, 63% wanted their physician to inform them, and ~70% of physicians were themselves unaware yet thought disclosure important.", "pmid": "15479773", "pmcid": null }, { "id": "cit_mujahid_lmwh_cultural_audit_2026", "title": "A Regional Audit on Venous Thromboembolism (VTE) Prophylaxis Compliance and Cultural Considerations in Prescribing Porcine-Derived Low-Molecular-Weight Heparins", "author": "Mujahid, M., Ahmed, H., Ahmad, S., Mujahid, I., Ur-Rehman, J., et al.", "year": 2026, "journal": "Cureus", "url": "https://pubmed.ncbi.nlm.nih.gov/41631073/", "accessDate": "2026-07-11", "doi": "10.7759/cureus.100617", "notes": "PMID 41631073. Two-cycle audit across two NHS hospitals: 64% (n=50) of clinicians were unaware LMWHs are animal-derived and 94% did not inform patients; 98% (n=137) of patients prioritised medication aligned with their beliefs and nearly half would decline porcine-derived prophylaxis even to prevent serious illness.", "pmid": "41631073", "pmcid": null }, { "id": "cit_nazar_islamic_reasoning_medicines_2025", "title": "Islamic reasoning and the use of prohibited medicines among Muslim patients: a qualitative study", "author": "Nazar, Z., Ali, B., Rutter, P., Barnes, N.", "year": 2025, "journal": "International Journal of Clinical Pharmacy", "url": "https://pubmed.ncbi.nlm.nih.gov/41219623/", "accessDate": "2026-07-11", "doi": "10.1007/s11096-025-02046-3", "notes": "PMID 41219623. Reflexive thematic analysis of 13 Muslim adults: participants applied necessity (darura) and biotransformation (istihala) flexibly — accepting haram-ingredient medicines for serious illness but avoiding them for minor conditions, using workarounds like opening gelatine capsules — and valued transparent excipient disclosure, shared decision-making, and clinician religious literacy.", "pmid": "41219623", "pmcid": null }, { "id": "cit_silk_animal_content_prescribing_2023", "title": "Are vegans being overlooked in our prescribing practices: An orthopaedic perspective from Bristol, United Kingdom", "author": "Silk, G., Vetharajan, N., Blohm, A., Teeling, F., Keen, K., et al.", "year": 2023, "journal": "Journal of Clinical Orthopaedics and Trauma", "url": "https://pubmed.ncbi.nlm.nih.gov/37817761/", "accessDate": "2026-07-11", "doi": "10.1016/j.jcot.2023.102250", "notes": "PMID 37817761. Review of animal-origin content in common medicines: 'All unfractionated or standard heparin is porcine in origin; Fondaparinux is a simple alternative.' Also documents that manufacturers often cannot guarantee or differentiate animal-derived sources, which change between suppliers.", "pmid": "37817761", "pmcid": null }, { "id": "cit_patten_animal_derived_ethics_heparin_2026", "title": "When Pigs Fly into Medicine: Navigating Ethical Challenges Posed by Animal-Derived Medical Products", "author": "Patten, C., Morales, G.", "year": 2026, "journal": "The Journal of Clinical Ethics", "url": "https://pubmed.ncbi.nlm.nih.gov/41698334/", "accessDate": "2026-07-11", "doi": "10.1086/739014", "notes": "PMID 41698334. Ethics case of a 19-year-old Muslim patient on lifesaving LDL apheresis with porcine-derived heparin: frames the disclosure-vs-autonomy dilemma and notes Islamic bioethics (and other faith traditions) may permit prohibited substances in lifesaving situations, though interpretations vary widely — arguing for cultural humility over generalization.", "pmid": "41698334", "pmcid": null }, { "id": "cit_muhamad_fondaparinux_muslim_women_2022", "title": "Safety and effectiveness of fondaparinux as a postpartum thromboprophylaxis during puerperium among muslim women: A single centre prospective study", "author": "Muhamad, N., Abu, M. A., Kalok, A. H., Shafiee, M. N., Shah, S. A., Ismail, N. A. M.", "year": 2022, "journal": "Frontiers in Pharmacology", "url": "https://pubmed.ncbi.nlm.nih.gov/36210844/", "accessDate": "2026-07-11", "doi": "10.3389/fphar.2022.887020", "notes": "PMID 36210844. Prospective single-arm study of 60 Muslim women motivated by LMWH's porcine content reducing uptake in religious groups: fondaparinux 2.5 mg daily for 10 days produced no VTE and no major bleeding, supporting it as a safe alternative thromboprophylaxis.", "pmid": "36210844", "pmcid": null }, { "id": "cit_kermansaravi_ramadan_bariatric_delphi_2021", "title": "Religious Fasting of Muslim Patients After Metabolic and Bariatric Surgery: a Modified Delphi Consensus", "author": "Kermansaravi, M., Omar, I., Mahawar, K., et al.", "year": 2021, "journal": "Obesity Surgery", "url": "https://pubmed.ncbi.nlm.nih.gov/34617207/", "accessDate": "2026-07-11", "doi": "10.1007/s11695-021-05724-z", "notes": "PMID 34617207. Modified Delphi consensus of 61 bariatric surgeons across 24 countries (consensus on 40/45 statements): 100% held that post-surgical fasting needs special nutritional support and must be coordinated among surgeon, nutritionist, and patient; 70% recommended delaying Ramadan fasting 6-12 months after malabsorptive procedures — a documented religious-fasting vs. therapeutic-nutrition conflict.", "pmid": "34617207", "pmcid": null }, { "id": "cit_hartley_multicultural_catering_2002", "title": "Investigation into the suitability and accessibility of catering practices to inpatients from minority ethnic groups in Brent", "author": "Hartley, B. A., Hamid, F.", "year": 2002, "journal": "Journal of Human Nutrition and Dietetics", "url": "https://pubmed.ncbi.nlm.nih.gov/12028516/", "accessDate": "2026-07-11", "doi": "10.1046/j.1365-277x.2002.00364.x", "notes": "PMID 12028516. Five-site inpatient survey (98 patients across Hindu, Muslim, Caribbean, Jewish groups): access to multicultural meals varied by site, the African Muslim group was least satisfied with halal provision, and only 47% of nurses could accurately answer multicultural dietary-competency questions. Descriptive/observational — documents unmet need and satisfaction gaps, not a controlled improvement effect.", "pmid": "12028516", "pmcid": null }, { "id": "cit_esposito_gender_concordance_2026", "title": "Gender concordance and its association with communication and the doctor-patient relationship: a systematic review", "author": "Esposito, C. M., Bizzotto, C., Gualtierotti, R., Delvecchio, G., Bressi, C., Brambilla, P.", "year": 2026, "journal": "Health Policy", "url": "https://pubmed.ncbi.nlm.nih.gov/42107345/", "accessDate": "2026-07-11", "doi": "10.1016/j.healthpol.2026.105649", "notes": "PMID 42107345. PRISMA systematic review, 27 studies: gender concordance between doctor and patient is generally associated with better communication and trust, especially for women and particularly on sensitive health issues; patient satisfaction findings were mixed. Preferences for provider gender were more pronounced in women.", "pmid": "42107345", "pmcid": null }, { "id": "cit_sun_physician_sex_cardiac_2021", "title": "Impact of surgeon and anaesthesiologist sex on patient outcomes after cardiac surgery: a population-based study", "author": "Sun, L. Y., Boet, S., Chan, V., Lee, D. S., Mesana, T. G., et al.", "year": 2021, "journal": "BMJ Open", "url": "https://pubmed.ncbi.nlm.nih.gov/34433609/", "accessDate": "2026-07-11", "doi": "10.1136/bmjopen-2021-051192", "notes": "PMID 34433609. Population-based cohort of 79,862 cardiac-surgery patients (Ontario): physician-team sex discordance was NOT associated with overall mortality or length of stay; only a small length-of-stay signal appeared for isolated CABG with all-male teams. The honest counterweight — concordance is not a demonstrated hard-outcome benefit.", "pmid": "34433609", "pmcid": null }, { "id": "cit_zhao_concordance_surgery_review_2019", "title": "Race, gender, and language concordance in the care of surgical patients: A systematic review", "author": "Zhao, C., Dowzicky, P., Colbert, L., Roberts, S., Kelz, R. R.", "year": 2019, "journal": "Surgery", "url": "https://pubmed.ncbi.nlm.nih.gov/31375322/", "accessDate": "2026-07-11", "doi": "10.1016/j.surg.2019.06.012", "notes": "PMID 31375322. Systematic review of 16 studies: most patients preferred a provider with a similar background, but most prioritized culturally, technically, and clinically competent providers over concordance; concordance had no effect on adherence to recommendations, and effects on communication and quality were mixed (gender concordance improved quality in 2/3 studies).", "pmid": "31375322", "pmcid": null }, { "id": "cit_vahabi_muslim_cervical_screening_2016", "title": "Muslim immigrant women's views on cervical cancer screening and HPV self-sampling in Ontario, Canada", "author": "Vahabi, M., Lofters, A.", "year": 2016, "journal": "BMC Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/27557928/", "accessDate": "2026-07-11", "doi": "10.1186/s12889-016-3564-1", "notes": "PMID 27557928. Community-based mixed-methods study of 30 Muslim immigrant women: modesty, having a male physician, and cultural/language factors were among documented barriers to cervical (Pap) screening; HPV self-sampling emerged as a favorable alternative model of care, alongside access to female health professionals.", "pmid": "27557928", "pmcid": null }, { "id": "cit_guimond_modesty_cervical_muslim_2013", "title": "Modesty matters: cultural sensitivity and cervical cancer prevention in muslim women in the United States", "author": "Guimond, M. E., Salman, K.", "year": 2013, "journal": "Nursing for Women's Health", "url": "https://pubmed.ncbi.nlm.nih.gov/23773193/", "accessDate": "2026-07-11", "doi": "10.1111/1751-486X.12034", "notes": "PMID 23773193. Clinical review: lack of sensitivity to modesty is a barrier for Muslim women in the U.S. to obtain cervical cancer screening and prevention; recommends culturally sensitive strategies to discuss and encourage screening and HPV vaccination for this under-researched population.", "pmid": "23773193", "pmcid": null }, { "id": "cit_nkwo_chaperone_gynecology_2012", "title": "The perception and use of chaperones by Nigerian gynecologists", "author": "Nkwo, P. O., Chigbu, C. O., Ajah, L. O., Okoro, O. S.", "year": 2012, "journal": "International Journal of Gynaecology and Obstetrics", "url": "https://pubmed.ncbi.nlm.nih.gov/23031332/", "accessDate": "2026-07-11", "doi": "10.1016/j.ijgo.2012.07.014", "notes": "PMID 23031332. Survey of Nigerian gynecologists: 97.6% considered chaperones necessary for intimate examinations and supported a policy of routinely offering them while respecting a patient's right to decline; scarcity of personnel to serve as chaperones was the greatest barrier to implementation.", "pmid": "23031332", "pmcid": null }, { "id": "cit_osmond_chaperone_patient_perspective_2007", "title": "The use of chaperones for intimate examinations: the patient perspective based on an anonymous questionnaire", "author": "Osmond, M. K., Copas, A. J., Newey, C., Edwards, S. G., Jungmann, E., Mercey, D.", "year": 2007, "journal": "International Journal of STD & AIDS", "url": "https://pubmed.ncbi.nlm.nih.gov/17945044/", "accessDate": "2026-07-11", "doi": "10.1258/095646207782193759", "notes": "PMID 17945044. Anonymous questionnaire, 627 patients across two London GU-medicine clinics: 88% did not want a chaperone for future examinations, and those who did preferred one be offered rather than made routine; women examined by a man were most likely to accept — supporting a universal-offer, patient-choice policy over imposition.", "pmid": "17945044", "pmcid": null }, { "id": "cit_linder_tgd_chaperone_2025", "title": "Transgender and gender diverse patients' preference and comfort for having a medical chaperone present during a sensitive physical examination: a single-site study", "author": "Linder, K. E., Ramirez, J. L., Pankey, T. L., Heredia, D., Chang, A. Y., et al.", "year": 2025, "journal": "The Journal of Sexual Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/40581941/", "accessDate": "2026-07-11", "doi": "10.1093/jsxmed/qdaf147", "notes": "PMID 40581941. Cross-sectional survey of 149 transgender and gender-diverse patients at a Midwest gender clinic: ~50% were comfortable with a medical chaperone during sensitive exams and 60.5% preferred a female chaperone; routinely offering chaperones (especially female) was broadly acceptable. Medical mistrust — not gender dysphoria — predicted lower comfort.", "pmid": "40581941", "pmcid": null }, { "id": "cit_strauss_ldlt_segregation_2026", "title": "Residential and Transplant Center Neighborhood Segregation and Live Donor Liver Transplant", "author": "Strauss, A. T., Menon, G., Li, Y., Thompson, V. L., Jain, V., et al.", "year": 2026, "journal": "JAMA Network Open", "url": "https://pubmed.ncbi.nlm.nih.gov/42228371/", "accessDate": "2026-07-11", "doi": "10.1001/jamanetworkopen.2026.16148", "notes": "PMID 42228371. National cohort, 22,223 liver-transplant candidates: residing in a high-segregation neighborhood was associated with lower likelihood of living-donor liver transplant access (adjusted HR 0.81, 95% CI 0.74-0.90); Hispanic/Latino candidates in high-segregation neighborhoods had markedly lower access (AHR 0.59); disparities persisted independent of insurance type.", "pmid": "42228371", "pmcid": null }, { "id": "cit_eldaba_living_donor_hypertension_2026", "title": "Cardiovascular and Kidney Outcomes of Living Kidney Donors With Preexisting Hypertension: A Systematic Review and Meta-Analysis", "author": "Eldaba, M., Ahmed, S., Hiremath, S., Shorr, R., Clark, E. G., et al.", "year": 2026, "journal": "American Journal of Hypertension", "url": "https://pubmed.ncbi.nlm.nih.gov/40570153/", "accessDate": "2026-07-11", "doi": "10.1093/ajh/hpaf114", "notes": "PMID 40570153. Systematic review/meta-analysis, 17 studies (4,881 hypertensive + 40,565 normotensive living kidney donors): hypertensive donors had a significantly higher risk of death (RD 40.0/1,000 person-years, P=.03) but no significant difference in kidney failure, low eGFR, or major cardiovascular events — living donation carries real but selective risk, not a uniform one.", "pmid": "40570153", "pmcid": null }, { "id": "cit_wen_xenotransplant_acceptance_2026", "title": "Public awareness and acceptance of xenotransplantation in China: a cross-sectional survey", "author": "Wen, J., Li, H., Wang, D., Huang, M., Zhai, X.", "year": 2026, "journal": "BMC Medical Ethics", "url": "https://pubmed.ncbi.nlm.nih.gov/42410577/", "accessDate": "2026-07-11", "doi": "10.1186/s12910-026-01544-x", "notes": "PMID 42410577. Cross-sectional survey, 589 adults: in a hypothetical life-saving scenario 36.7% would definitely accept a xenotransplant (genetically edited pig organ) and 11.5% would definitely not; perceived religious conflict was significantly associated with lower acceptance (OR 0.22, P<.01). Top concerns were clinical-trial safety, postoperative outcomes, and cost.", "pmid": "42410577", "pmcid": null }, { "id": "cit_tarabeih_jewish_xenotransplant_2025", "title": "Jewish Perspectives on Porcine Xenotransplantation: Balancing Religious Ethics and Medical Necessity in Israel", "author": "Tarabeih, M., Amiel, A., Na'amnih, W.", "year": 2025, "journal": "Journal of Religion and Health", "url": "https://pubmed.ncbi.nlm.nih.gov/41199080/", "accessDate": "2026-07-11", "doi": "10.1007/s10943-025-02491-4", "notes": "PMID 41199080. Survey of 916 Jewish participants (Israel): despite the religious prohibition on consuming pork, Jewish law allows pig-organ use for life-saving medical procedures; degree of religious-ruling knowledge significantly shaped attitudes toward six xenotransplant applications, motivating recommendations for clearer informed-consent communication with Jewish patients.", "pmid": "41199080", "pmcid": null }, { "id": "cit_dongmo_bone_allograft_willingness_2026", "title": "Willingness to bone allograft donation and transplantation in sub-Saharan Africa: a multi-country cross-sectional study", "author": "Dongmo Mayopa, C., Kouassi, A. A. N., Buzisa Mbuku, R., Mbaga, A. C., Nkubamanu, S., et al.", "year": 2026, "journal": "Cell and Tissue Banking", "url": "https://pubmed.ncbi.nlm.nih.gov/41824135/", "accessDate": "2026-07-11", "doi": "10.1007/s10561-026-10220-8", "notes": "PMID 41824135. Multi-country survey, 600 adults (Cameroon, DR Congo, Côte d'Ivoire): 72.8% reported willingness to accept a bone allograft transplant; willingness to accept was independently associated with country of residence and religious affiliation, and belief-related/religious considerations were among the leading reasons for refusal.", "pmid": "41824135", "pmcid": null }, { "id": "cit_tuncer_ehealth_adherence_2025", "title": "Effect of eHealth Interventions on Medication Adherence in Kidney Transplant Recipients: Meta-Analysis of Randomised Controlled Trials", "author": "Tuncer, M., Tuncer, G. Z.", "year": 2025, "journal": "Journal of Renal Care", "url": "https://pubmed.ncbi.nlm.nih.gov/40196913/", "accessDate": "2026-07-11", "doi": "10.1111/jorc.70015", "notes": "PMID 40196913. Meta-analysis, 8 RCTs / 779 kidney-transplant recipients: eHealth interventions significantly increased immunosuppressant adherence rates (RR 1.19, 95% CI 1.06-1.35, P=.01) and adherence scores versus standard care — lifelong immunosuppression adherence is directly tied to graft survival.", "pmid": "40196913", "pmcid": null }, { "id": "cit_zhou_ehealth_adherence_2025", "title": "Effectiveness of eHealth for Medication Adherence in Renal Transplant Recipients: Systematic Review and Meta-Analysis", "author": "Zhou, L., Cheng, K., Chen, L., Hou, X., Wan, J.", "year": 2025, "journal": "Journal of Medical Internet Research", "url": "https://pubmed.ncbi.nlm.nih.gov/40359506/", "accessDate": "2026-07-11", "doi": "10.2196/73520", "notes": "PMID 40359506. Broader systematic review/meta-analysis, 12 RCTs / 1,234 kidney-transplant recipients: significant adherence differences appeared only with electronic-monitoring-device measurement and were unstable under sensitivity analysis; evidence quality was rated low/very low overall. Honest counterweight to Tuncer 2025 — eHealth's adherence benefit is not yet conclusively established across all measures.", "pmid": "40359506", "pmcid": null }, { "id": "cit_aggarwal_religiosity_youth_depression_2023", "title": "Religiosity and spirituality in the prevention and management of depression and anxiety in young people: a systematic review and meta-analysis", "author": "Aggarwal, S., Wright, J., Morgan, A., Patton, G., Reavley, N.", "year": 2023, "journal": "BMC Psychiatry", "url": "https://pubmed.ncbi.nlm.nih.gov/37817143/", "accessDate": "2026-07-11", "doi": "10.1186/s12888-023-05091-2", "notes": "PMID 37817143. Systematic review of 45 longitudinal + 29 intervention studies in young people (ages 10-24): meta-analysis of high-quality longitudinal studies found spiritual wellbeing protective against depression (r=-0.153) while negative religious coping (feeling abandoned by or blaming God) trended toward greater depressive symptoms over time (r=0.09); personal importance of religion alone was not associated with depression either way — the valence of religious engagement matters more than its mere presence.", "pmid": "37817143", "pmcid": null }, { "id": "cit_cinaroglu_earthquake_religious_coping_2026", "title": "Coping strategies and psychological outcomes following the 2023 Kahramanmaraş earthquakes: a systematic review with meta-analytic synthesis", "author": "Çınaroğlu, M., Yılmazer, E.", "year": 2026, "journal": "Frontiers in Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/41859264/", "accessDate": "2026-07-11", "doi": "10.3389/fpubh.2026.1776931", "notes": "PMID 41859264. Meta-analysis, 10 studies / 6,223 disaster survivors: religious coping showed a small inverse association with PTSD symptoms (pooled r=-0.21) but with substantial heterogeneity, notably weaker and less consistent than resilience (r=-0.44) or social-support-seeking (r=-0.31) as protective correlates — religious coping helps on average but is not the primary protective mechanism.", "pmid": "41859264", "pmcid": null }, { "id": "cit_na_sdoh_suicide_metaanalyses_2025", "title": "Social Determinants of Health and Suicide-Related Outcomes: A Review of Meta-Analyses", "author": "Na, P. J., Shin, J., Kwak, H. R., Lee, J., Jester, D. J., et al.", "year": 2025, "journal": "JAMA Psychiatry", "url": "https://pubmed.ncbi.nlm.nih.gov/39745761/", "accessDate": "2026-07-11", "doi": "10.1001/jamapsychiatry.2024.4241", "notes": "PMID 39745761. Review of 46 meta-analyses on social determinants of suicide-related outcomes: religious affiliation and being married were identified among the protective factors consistently associated with reduced suicide mortality risk, alongside school connectedness for suicide attempt/ideation.", "pmid": "39745761", "pmcid": null }, { "id": "cit_alhumaidan_saudi_mh_barriers_2024", "title": "Barriers to Seeking Mental Health Help in Saudi Arabia: A Systematic Review", "author": "Alhumaidan, N. I., Alotaibi, T. A., Aloufi, K. S., Althobaiti, A. A., Althobaiti, N. S. A., et al.", "year": 2024, "journal": "Cureus", "url": "https://pubmed.ncbi.nlm.nih.gov/38883041/", "accessDate": "2026-07-11", "doi": "10.7759/cureus.60363", "notes": "PMID 38883041. Systematic review, 6 studies: stigma, lack of awareness, confidentiality concerns, and cultural/religious beliefs were consistently identified barriers to formal mental health help-seeking in Saudi Arabia; stigma was the most predominant barrier reported.", "pmid": "38883041", "pmcid": null }, { "id": "cit_syafitri_asean_mh_barriers_facilitators_2025", "title": "Barriers and Facilitators of Psychological Help-Seeking of People With Depression, Anxiety, and Stress Symptoms Among ASEAN Countries: A Systematic Review", "author": "Syafitri, D. U., Mawaddah, S., Lau, J. Y. F., Brown, J. S. L.", "year": 2025, "journal": "The International Journal of Social Psychiatry", "url": "https://pubmed.ncbi.nlm.nih.gov/40928181/", "accessDate": "2026-07-11", "doi": "10.1177/00207640251367289", "notes": "PMID 40928181. Systematic review, 46 studies across ASEAN countries: religious and sociocultural factors functioned as both barriers (stigma, sociocultural/religious concerns) and facilitators (social and religious support) to formal psychological help-seeking — the same dimension cuts both ways depending on context.", "pmid": "40928181", "pmcid": null }, { "id": "cit_madsen_arab_men_mhl_2024", "title": "Mental health literacy among Arab men living in high-income Western countries: A systematic review and narrative synthesis", "author": "Madsen, J., Jobson, L., Slewa-Younan, S., Li, J. H., King, K.", "year": 2024, "journal": "Social Science & Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/38489937/", "accessDate": "2026-07-11", "doi": "10.1016/j.socscimed.2024.116718", "notes": "PMID 38489937. Systematic review, 46 studies: Arab men in high-income Western countries often attributed mental illness partly to religious reasons, favored informal help-seeking sources, and cited stigma as a barrier to formal care; recommends integrating informal support networks into treatment planning rather than treating them as obstacles.", "pmid": "38489937", "pmcid": null }, { "id": "cit_milstein_cope_framework_2025", "title": "COPE: CO&PE — a framework to bridge public mental health services with religious organizations", "author": "Milstein, G., Currier, J. M., Dent, C., McKnight, M., Eckert, D., Manierre, A.", "year": 2025, "journal": "Frontiers in Psychiatry", "url": "https://pubmed.ncbi.nlm.nih.gov/40859941/", "accessDate": "2026-07-11", "doi": "10.3389/fpsyt.2025.1461804", "notes": "PMID 40859941. Framework paper (WHO/SAMHSA/US Surgeon General evidence review): proposes a structured model for mental health service organizations to build collaborative-care partnerships with spiritual/faith-based organizations, explicitly reviewing both religion/spirituality's evidence for promoting wellbeing/recovery AND its documented potential to be a source of trauma or a barrier to care.", "pmid": "40859941", "pmcid": null }, { "id": "cit_donnenfeld_religion_fertility_treatment_2022", "title": "The Urologist's Guide to Religion and Male Factor Fertility Treatment", "author": "Donnenfeld, S. R., Mehta, A.", "year": 2022, "journal": "Urology", "url": "https://pubmed.ncbi.nlm.nih.gov/35772486/", "accessDate": "2026-07-11", "doi": "10.1016/j.urology.2022.06.016", "notes": "PMID 35772486. Reference guide compiled from primary-source religious texts across six major U.S. religions (Catholicism, LDS, Hinduism, Judaism, Buddhism, Islam): IVF/IUI are largely opposed only by the Catholic Church; surrogacy is impermissible in LDS, Catholic, and Islamic teaching; vasectomy is impermissible in Catholic, LDS, Jewish, and Islamic teaching; Buddhism and Hinduism have no reservations on IVF, IUI, surrogacy, or permanent sterilization — documented positions vary substantially by tradition, not a single 'religious view.'", "pmid": "35772486", "pmcid": null }, { "id": "cit_schenker_assisted_reproduction_religious_2005", "title": "Assisted reproductive practice: religious perspectives", "author": "Schenker, J. G.", "year": 2005, "journal": "Reproductive BioMedicine Online", "url": "https://pubmed.ncbi.nlm.nih.gov/15820035/", "accessDate": "2026-07-11", "doi": "10.1016/s1472-6483(10)61789-0", "notes": "PMID 15820035. Review of monotheistic religious perspectives on assisted reproductive technology: Judaism permits ART techniques when oocyte/sperm originate from the wife/husband; the Vatican does not accept assisted reproduction while other Christian denominations vary; Islam accepts IVF/embryo transfer only between husband and wife — confirms fertility-treatment positions differ meaningfully across and within traditions.", "pmid": "15820035", "pmcid": null }, { "id": "cit_gashaw_family_planning_religious_barriers_2025", "title": "Assessment of family planning service utilization and associated factors among female students at Assosa university, Ethiopia", "author": "Gashaw, Y., Alemu, C.", "year": 2025, "journal": "Scientific Reports", "url": "https://pubmed.ncbi.nlm.nih.gov/40185798/", "accessDate": "2026-07-11", "doi": "10.1038/s41598-025-94511-2", "notes": "PMID 40185798. Cross-sectional study, 345 female university students: 57.1% used family planning services; among non-users, religious reasons were cited as the primary reason for non-use by 75.4% — a large, directly quantified documentation of religious belief as a driver of family-planning non-use in this population.", "pmid": "40185798", "pmcid": null }, { "id": "cit_mann_postpartum_depression_religiosity_2008", "title": "Do antenatal religious and spiritual factors impact the risk of postpartum depressive symptoms?", "author": "Mann, J. R., McKeown, R. E., Bacon, J., Vesselinov, R., Bush, F.", "year": 2008, "journal": "Journal of Women's Health", "url": "https://pubmed.ncbi.nlm.nih.gov/18537478/", "accessDate": "2026-07-11", "doi": "10.1089/jwh.2007.0627", "notes": "PMID 18537478. Prospective cohort, 307 women with complete postpartum data: women participating in organized religious activities at least a few times a month were markedly less likely to exhibit high postpartum depressive symptom scores (OR 0.18), independent of antenatal depressive symptoms and social support — suggesting religious participation aids coping with early motherhood specifically, not just general mood.", "pmid": "18537478", "pmcid": null }, { "id": "cit_osman_perinatal_anxiety_religiosity_2021", "title": "Associations between religiosity and perinatal anxiety symptoms among women of Mexican descent", "author": "Osman, K. M., Lara-Cinisomo, S., D'Anna-Hernandez, K. L.", "year": 2021, "journal": "Journal of Affective Disorders", "url": "https://pubmed.ncbi.nlm.nih.gov/34274791/", "accessDate": "2026-07-11", "doi": "10.1016/j.jad.2021.06.066", "notes": "PMID 34274791. Prospective cohort, 197 pregnant women of Mexican descent: higher religiosity was associated with lower anxiety symptoms during pregnancy (b=-1.01, P=.002) and significantly buffered the relationship between acculturative stress and anxiety across early, mid, and late pregnancy and at 6 weeks postpartum.", "pmid": "34274791", "pmcid": null }, { "id": "cit_pregnancy_loss_muslim_women_review_2024", "title": "Pregnancy loss among Muslim women: A narrative review", "author": "Adeleye, K. K., Ogungbe, O., Chutiyami, M., Iradukunda, F.", "year": 2024, "journal": "International Journal of Nursing Studies Advances", "url": "https://pubmed.ncbi.nlm.nih.gov/38827821/", "accessDate": "2026-07-11", "doi": "10.1016/j.ijnsa.2024.100205", "notes": "PMID 38827821. Narrative review across six databases: Islamic beliefs strongly featured in how Muslim women processed pregnancy loss (miscarriage, stillbirth) — concepts like tawakkul and yaqeen (trusting/certainty in divine destiny) eased sorrow and facilitated acceptance for many; themes also included social isolation/stigmatization and mental health impact, underscoring real variation in grieving needs rather than a single expected response.", "pmid": "38827821", "pmcid": null }, { "id": "cit_bapm_appm_perinatal_palliative_framework_2025", "title": "Recognising uncertainty: an integrated framework for palliative care in perinatal medicine", "author": "Wilkinson, D., Bertaud, S., Mancini, A., Murdoch, E., et al. (BAPM/APPM)", "year": 2025, "journal": "Archives of Disease in Childhood — Fetal and Neonatal Edition", "url": "https://pubmed.ncbi.nlm.nih.gov/39567213/", "accessDate": "2026-07-11", "doi": "10.1136/archdischild-2024-327662", "notes": "PMID 39567213. Official joint framework (British Association of Perinatal Medicine + Association of Paediatric Palliative Medicine): recommends integrating a palliative, holistic, interdisciplinary approach into antenatal and neonatal care for babies with life-limiting or life-threatening conditions — explicitly not limited to babies certain to die in early life — to support families navigating diagnostic uncertainty.", "pmid": "39567213", "pmcid": null }, { "id": "cit_perinatal_communication_ethics_2024", "title": "Ethical issues in perinatal communication", "author": "Turchiano, F., Romiti, A., Tudisco, R., Bisanti, M., Polsinelli, V., et al.", "year": 2024, "journal": "European Journal of Pediatrics", "url": "https://pubmed.ncbi.nlm.nih.gov/39724206/", "accessDate": "2026-07-11", "doi": "10.1007/s00431-024-05928-2", "notes": "PMID 39724206. Review proposing a structured framework for counseling parents at the diagnosis of critical fetal/neonatal conditions, emphasizing that communication quality directly shapes parental decision-making experience and outcomes during prenatal and postnatal phases; recommends integrating perinatal palliative care into the treatment pathway at referral centers.", "pmid": "39724206", "pmcid": null }, { "id": "cit_he_pediatric_acp_qualitative_synthesis_2026", "title": "Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis", "author": "He, S., Shen, K., Huang, B., Zhang, J.", "year": 2026, "journal": "BMC Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/41808155/", "accessDate": "2026-07-11", "doi": "10.1186/s12904-026-02047-7", "notes": "PMID 41808155. Meta-synthesis of 9 qualitative studies: identified parents' behavioral coping patterns, their perceptions of the value of pediatric advance care planning, and the challenges/barriers they encounter — concludes effective implementation requires respecting children's own preferences alongside parental decision-making needs.", "pmid": "41808155", "pmcid": null }, { "id": "cit_van_teunenbroek_dutch_pediatric_pc_guideline_2024", "title": "A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making", "author": "van Teunenbroek, K. C., Mulder, R. L., van Heel, D. A. M., Fahner, J. C., de Vos-Broerse, M. A., et al.", "year": 2024, "journal": "BMC Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/39578755/", "accessDate": "2026-07-11", "doi": "10.1186/s12904-024-01568-3", "notes": "PMID 39578755. National guideline (20 experts + 9 bereaved parents, GRADE/CERQual methodology): identified 4 RCTs and 33 qualitative studies, yielding 28 strong recommendations for advance care planning and shared decision-making in pediatric palliative care — emphasizing involving children and families and communicating clearly about care and treatment.", "pmid": "39578755", "pmcid": null }, { "id": "cit_carr_pediatric_acp_initiation_factors_2020", "title": "Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review", "author": "Carr, K., Hasson, F., McIlfatrick, S., Downing, J.", "year": 2020, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/33372582/", "accessDate": "2026-07-11", "doi": "10.1177/0269216320983197", "notes": "PMID 33372582. Systematic integrative review, 21 studies (4,153 citations screened): healthcare professionals often avoid or delay initiating pediatric advance care planning; uncertainty regarding prognosis, unclear responsibility, and unpredictable parental reactions result in inconsistent practice.", "pmid": "33372582", "pmcid": null }, { "id": "cit_michelson_picu_eol_roles_2013", "title": "End-of-life care decisions in the PICU: roles professionals play", "author": "Michelson, K. N., Patel, R., Haber-Barker, N., Emanuel, L., Frader, J.", "year": 2013, "journal": "Pediatric Critical Care Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/23249788/", "accessDate": "2026-07-11", "doi": "10.1097/PCC.0b013e31826e7408", "notes": "PMID 23249788. Qualitative study, 18 parents of children who died in the PICU + 48 PICU healthcare professionals (incl. chaplains): identified 7 distinct roles healthcare professionals play in parental end-of-life decision-making — family supporter, family advocate, information giver, care coordinator, decision maker, EOL coordinator, and point person.", "pmid": "23249788", "pmcid": null }, { "id": "cit_superdock_religion_spirituality_pediatric_decisionmaking_2018", "title": "Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study", "author": "Superdock, A. K., Barfield, R. C., Brandon, D. H., Docherty, S. L.", "year": 2018, "journal": "BMC Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/30208902/", "accessDate": "2026-07-11", "doi": "10.1186/s12904-018-0360-y", "notes": "PMID 30208902. Longitudinal qualitative study, 16 cases of children with complex life-threatening conditions, 363 interviews with parents and 108 with healthcare professionals over a median 380 days: parents in 13/16 cases reported religion/spirituality directly influenced decision-making (themes: Hope & Faith, God is in Control, Miracles, Prayer), but most healthcare professionals were unaware of this influence — R&S shaped how decisions were made more than what was decided.", "pmid": "30208902", "pmcid": null }, { "id": "cit_friedrich_eberl_catholic_pediatric_decisionmaking_2022", "title": "Catholic Perspective on Decision-Making for Critically Ill Newborns and Infants", "author": "Friedrich, A. B., Eberl, J. T.", "year": 2022, "journal": "Children", "url": "https://pubmed.ncbi.nlm.nih.gov/35204927/", "accessDate": "2026-07-11", "doi": "10.3390/children9020207", "notes": "PMID 35204927. Peer-reviewed article presenting the Catholic perspective on decision-making for critically ill newborns/infants: the 'technocratic paradigm' of medicine can drive decision-making conflicts and communication breakdowns between parents and providers; recommends focusing on the inherent relationality of all persons regardless of debility and Christian hope in the life to come as a way to navigate — not reject — medical technology.", "pmid": "35204927", "pmcid": null }, { "id": "cit_ali_sheikhi_religious_leaders_covid_vaccine_2025", "title": "The role of religious leaders in the acceptance of COVID-19 vaccinations: a systematic review", "author": "Ali Sheikhi, R., Heidari, M., Doosti, P.", "year": 2025, "journal": "BMC Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/40770695/", "accessDate": "2026-07-11", "doi": "10.1186/s12889-025-23947-y", "notes": "PMID 40770695. PRISMA systematic review, 7 articles: religious leaders played both positive (trust-building, collaboration with health providers, community dialogue) and negative/neutral roles in COVID-19 vaccine acceptance — engaging religious leaders is identified as a powerful strategy to advance public-health vaccination goals, but their influence is not uniformly positive.", "pmid": "40770695", "pmcid": null }, { "id": "cit_akrong_ghana_covid_vaccine_hesitancy_2024", "title": "COVID-19 vaccine acceptance and hesitancy in Ghana: A systematic review", "author": "Akrong, G. B., Hiadzi, R. A., Donkor, A. B., Anafo, D. K.", "year": 2024, "journal": "PLOS ONE", "url": "https://pubmed.ncbi.nlm.nih.gov/38917063/", "accessDate": "2026-07-11", "doi": "10.1371/journal.pone.0305993", "notes": "PMID 38917063. Systematic review, acceptance rates ranging from 17.5% to 82.6% across reviewed studies: spiritual and religious beliefs (alongside mistrust, safety concerns, and religious affiliation as a demographic factor) played a significant role in influencing COVID-19 vaccine hesitancy in Ghana.", "pmid": "38917063", "pmcid": null }, { "id": "cit_achimas_hpv_hesitancy_european_parents_2024", "title": "Vaccine Hesitancy among European Parents-Psychological and Social Factors Influencing the Decision to Vaccinate against HPV: A Systematic Review and Meta-Analysis", "author": "Achimaș-Cadariu, T., Pașca, A., Jiboc, N. M., Puia, A., Dumitrașcu, D. L.", "year": 2024, "journal": "Vaccines", "url": "https://pubmed.ncbi.nlm.nih.gov/38400111/", "accessDate": "2026-07-11", "doi": "10.3390/vaccines12020127", "notes": "PMID 38400111. Systematic review/meta-analysis, 25 studies / 385,460 responders: religion was among the socio-demographic and psychological factors significantly influencing European parents' decision to vaccinate their children against HPV, alongside immigrant/employment status and parental age.", "pmid": "38400111", "pmcid": null }, { "id": "cit_herzig_anthroposophy_vaccine_hesitancy_2023", "title": "Understanding and explaining the link between anthroposophy and vaccine hesitancy: a systematic review", "author": "Herzig van Wees, S., Abunnaja, K., Mounier-Jack, S.", "year": 2023, "journal": "BMC Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/37957574/", "accessDate": "2026-07-11", "doi": "10.1186/s12889-023-17081-w", "notes": "PMID 37957574. Systematic review: found a broad spectrum of vaccine beliefs within anthroposophic communities (not uniform refusal), concerns about toxicity/system trust, strong emphasis on individual informed choice, and stigma directed at vaccine-hesitant members from both outside AND inside the community — the review concludes popular assumptions about vaccine beliefs in values-based communities are challenged by the actual data.", "pmid": "37957574", "pmcid": null }, { "id": "cit_olagoke_scripture_hpv_message_rct_2023", "title": "The effectiveness of a religiously framed HPV vaccination message among Christian parents of unvaccinated adolescents in the United States", "author": "Olagoke, A., Hebert-Beirne, J., Floyd, B., Caskey, R., Boyd, A., Molina, Y.", "year": 2023, "journal": "Journal of Communication in Healthcare", "url": "https://pubmed.ncbi.nlm.nih.gov/37401883/", "accessDate": "2026-07-11", "doi": "10.1080/17538068.2023.2171613", "notes": "PMID 37401883. Randomized controlled trial, 342 Christian parents of unvaccinated adolescents: a scripture-embedded HPV vaccination message (mapping the Noah's Ark narrative onto vaccination) produced significantly higher vaccination intention than the standard CDC Vaccine Information Statement (β=0.31, 95% CI 0.11-0.52, P=.003) — faith-congruent messaging measurably outperforms secular messaging for this population.", "pmid": "37401883", "pmcid": null }, { "id": "cit_walton_moss_spirituality_religion_substance_recovery_2013", "title": "Relationship of spirituality or religion to recovery from substance abuse: a systematic review", "author": "Walton-Moss, B., Ray, E. M., Woodruff, K.", "year": 2013, "journal": "Journal of Addictions Nursing", "url": "https://pubmed.ncbi.nlm.nih.gov/24335768/", "accessDate": "2026-07-11", "doi": "10.1097/JAN.0000000000000001", "notes": "PMID 24335768. Systematic review, 29 studies across three databases: for most studies, at least some support was found for a beneficial relationship between spirituality or religion and recovery from substance use disorders, most commonly measured via abstinence, treatment retention, and use severity — reviewed with attention to each study's strengths and limitations, not presented as uniform or conclusive.", "pmid": "24335768", "pmcid": null }, { "id": "cit_kane_spiritual_wellbeing_black_aa_substance_2023", "title": "The impact of spiritual well-being and social support on substance use treatment outcomes within a sample of predominantly Black/African American adults", "author": "Kane, L., Benson, K., Stewart, Z. J., Daughters, S. B.", "year": 2023, "journal": "Journal of Substance Use and Addiction Treatment", "url": "https://pubmed.ncbi.nlm.nih.gov/38061630/", "accessDate": "2026-07-11", "doi": "10.1016/j.josat.2023.209238", "notes": "PMID 38061630. Longitudinal study, 262 adults (95.4% Black/African American) in residential SUD treatment: higher spiritual well-being predicted significantly less frequent substance use during early recovery (β=0.00, P=.03), and 12-step involvement predicted significantly fewer substance use consequences (β=0.00, P=.02) — but both effects diminished by 3.5-6.6 months post-treatment, an honest limit on how far the association extends.", "pmid": "38061630", "pmcid": null }, { "id": "cit_al_ghafri_muslim_communities_treatment_harm_reduction_barriers_2023", "title": "Barriers and facilitators to accessing inpatient and community substance use treatment and harm reduction services for people who use drugs in the Muslim communities: A systematic narrative review", "author": "Al-Ghafri, Q., Radcliffe, P., Gilchrist, G.", "year": 2023, "journal": "Drug and Alcohol Dependence", "url": "https://pubmed.ncbi.nlm.nih.gov/36805826/", "accessDate": "2026-07-11", "doi": "10.1016/j.drugalcdep.2023.109790", "notes": "PMID 36805826. Systematic narrative review, 24 studies from Muslim-majority countries and settings: identified denial of problem severity, lack of trust in the treatment system, fear of confidentiality breach, and stigma as recurring barriers to treatment and harm-reduction access, alongside a documented need for community support — recommends engaging mosques to raise awareness and reduce stigma rather than treating religiosity itself as the barrier.", "pmid": "36805826", "pmcid": null }, { "id": "cit_asare_doku_cald_religious_leaders_aod_2025", "title": "'Oh! It's Like Taboo': Perspectives of Religious and Community Leaders on AOD Use, Harms and Treatment in CALD Communities, Sydney", "author": "Asare-Doku, W., Stirling, R., Peprah, P., Foley, C., De Silva, N., Syahbahar, T., Kelly, D., Settumba, S.", "year": 2025, "journal": "Health Promotion Journal of Australia", "url": "https://pubmed.ncbi.nlm.nih.gov/40987609/", "accessDate": "2026-07-11", "doi": "10.1002/hpja.70105", "notes": "PMID 40987609. Qualitative study, 8 religious/community leaders across Sub-Saharan African, North African, Middle Eastern, East Asian, and Pacific Islander communities in Sydney: identified both barriers (cultural/religious values shaping attitudes toward AOD use, community-wide reputational impact) and enablers to service access and engagement — leaders are documented as playing a role on both sides, not solely as gatekeepers of stigma.", "pmid": "40987609", "pmcid": null }, { "id": "cit_fischer_naloxone_community_distribution_meta_2025", "title": "Effectiveness of naloxone distribution in community settings to reduce opioid overdose deaths among people who use drugs: a systematic review and meta-analysis", "author": "Fischer, L. S., Asher, A., Stein, R., Becasen, J., Doreson, A., Mermin, J., Meltzer, M. I., Edlin, B. R.", "year": 2025, "journal": "BMC Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/40133970/", "accessDate": "2026-07-11", "doi": "10.1186/s12889-025-22210-8", "notes": "PMID 40133970. Systematic review and meta-analysis, 44 studies (2003-2018) plus 5 more recent studies (2018-2022): community-based overdose education and naloxone distribution (OEND) programs were associated with high survival rates following naloxone administration — 98.3% (95% CI 97.5-98.8) for programs serving people who use drugs directly — with results sustained despite rising fentanyl-driven overdose rates.", "pmid": "40133970", "pmcid": null }, { "id": "cit_oleary_abstinence_harm_reduction_homelessness_meta_2024", "title": "The effectiveness of abstinence-based and harm reduction-based interventions in reducing problematic substance use in adults who are experiencing homelessness in high income countries: A systematic review and meta-analysis", "author": "O'Leary, C., Ralphs, R., Stevenson, J., Smith, A., Harrison, J., Kiss, Z., Armitage, H.", "year": 2024, "journal": "Campbell Systematic Reviews", "url": "https://pubmed.ncbi.nlm.nih.gov/38645303/", "accessDate": "2026-07-11", "doi": "10.1002/cl2.1396", "notes": "PMID 38645303. Campbell systematic review and meta-analysis, 48 papers / 34 studies / 15,255 participants: compared to treatment-as-usual, abstinence-based interventions showed an average effect of -0.28 SD (95% CI -0.65 to 0.09) and harm-reduction interventions showed an average effect of 0.03 SD (95% CI -0.08 to 0.14) on substance use — both confidence intervals cross zero, and the review concludes neither approach category shows a clear overall advantage over the other; individual interventions varied more than the category they belonged to.", "pmid": "38645303", "pmcid": null }, { "id": "cit_earl_va_chaplains_addiction_training_2025", "title": "Veteran Affairs chaplains and addiction care: Current training gaps and needs", "author": "Earl, B. S. W., Wortmann, J. H., Edens, E. L.", "year": 2025, "journal": "Journal of Health Care Chaplaincy", "url": "https://pubmed.ncbi.nlm.nih.gov/41069225/", "accessDate": "2026-07-11", "doi": "10.1080/08854726.2025.2564599", "notes": "PMID 41069225. Survey, 151 VA chaplains: many provide addiction care weekly despite varying comfort and training, most commonly using foundational chaplaincy skills (active listening, grief counseling) alongside occasional 12-step-informed or motivational-interviewing approaches and referrals to mental health services — respondents wanted more training in evidence-based modalities, identifying a real but under-resourced chaplaincy role in addiction care.", "pmid": "41069225", "pmcid": null }, { "id": "cit_wangliu_dementia_caregiver_coping_grief_review_2025", "title": "A systematic review of coping and pre-death grief among dementia family caregivers", "author": "Wangliu, Y.-Q., Che, R.-P.", "year": 2025, "journal": "Palliative & Supportive Care", "url": "https://pubmed.ncbi.nlm.nih.gov/40171778/", "accessDate": "2026-07-11", "doi": "10.1017/S1478951525000082", "notes": "PMID 40171778. Systematic review, 12 studies: positive coping strategies were effective in alleviating pre-death grief and caregiving burden among dementia family caregivers; coping resources including self-efficacy, sense of coherence, and social support were beneficial — spiritual and religious beliefs, along with community faith, were identified as crucial elements in alleviating caregiver grief.", "pmid": "40171778", "pmcid": null }, { "id": "cit_stolz_care_dependent_religiosity_euthanasia_attitudes_2017", "title": "Attitudes towards assisted suicide and euthanasia among care-dependent older adults (50+) in Austria: the role of socio-demographics, religiosity, physical illness, psychological distress, and social isolation", "author": "Stolz, E., Mayerl, H., Gasser-Steiner, P., Freidl, W.", "year": 2017, "journal": "BMC Medical Ethics", "url": "https://pubmed.ncbi.nlm.nih.gov/29212490/", "accessDate": "2026-07-11", "doi": "10.1186/s12910-017-0233-6", "notes": "PMID 29212490. Nationwide cross-sectional survey, 493 care-dependent older adults (50+) in Austria: about a quarter approved of assisted suicide/euthanasia availability or would hypothetically use it; religiosity was one of the central determinants of euthanasia acceptance specifically (alongside living alone and fear of dying) — reported descriptively as a documented correlate, not a policy position.", "pmid": "29212490", "pmcid": null }, { "id": "cit_rodrigues_brazil_intellectual_disability_spiritual_coping_2023", "title": "Exploring spiritual/religious coping strategies among mothers of children with severe or profound intellectual disability during genetic counseling in Brazil", "author": "Rodrigues, S. A., de Carvalho, E. Z. N., Campos, C. A., Fontanella, B. J. B., Melo, D. G.", "year": 2023, "journal": "Journal of Genetic Counseling", "url": "https://pubmed.ncbi.nlm.nih.gov/37665163/", "accessDate": "2026-07-11", "doi": "10.1002/jgc4.1783", "notes": "PMID 37665163. Qualitative study, 15 Brazilian mothers of children with severe/profound intellectual disability: identified five spiritual/religious coping themes — spirituality as a source of resilience, surrender to God's plan, a feeling of predestination, the child perceived as a blessing, and pleading for divine intervention — these coping mechanisms appeared to help mothers adjust to their child's condition and attribute meaning to it.", "pmid": "37665163", "pmcid": null }, { "id": "cit_manalo_catholic_social_teaching_disability_philippines_2026", "title": "A Proposed Pastoral Response Challenging the Exclusion of Persons with Disabilities (PWDs) Within the Philippine Social Context", "author": "Manalo, R., Behan, S. J. E., Constantino, C. B., Gozum, I. E.", "year": 2026, "journal": "Journal of Religion and Health", "url": "https://pubmed.ncbi.nlm.nih.gov/41779260/", "accessDate": "2026-07-11", "doi": "10.1007/s10943-026-02610-9", "notes": "PMID 41779260. Peer-reviewed analysis grounded in Catholic Social Teaching (CST — human dignity, the common good, solidarity, preferential concern for the marginalized): despite legal protections, persons with disabilities in the Philippines continue to face structural, social, and cultural exclusion; the paper articulates concrete pastoral/ecclesial responses centered on advocacy, accompaniment, and inclusive community-building. Ships at PASS tier directly (compiles primary Catholic teaching in a peer-reviewed venue — same pattern as CC-21's Friedrich & Eberl and CC-20's Donnenfeld/Schenker).", "pmid": "41779260", "pmcid": null }, { "id": "cit_sande_zimbabwe_disability_spirituality_belonging_2026", "title": "Disability, spirituality and the politics of belonging in postcolonial Zimbabwe", "author": "Sande, N.", "year": 2026, "journal": "African Journal of Disability", "url": "https://pubmed.ncbi.nlm.nih.gov/41647329/", "accessDate": "2026-07-11", "doi": "10.4102/ajod.v15i0.1720", "notes": "PMID 41647329. Qualitative study, Zimbabwe: cultural, African indigenous religious, and spiritual framings of disability were documented as a source of exclusion of persons with disabilities from social positions, economic empowerment, and rites of passage — but the same religious/cultural landscape also contains the Ubuntu ethic of human interconnection, which the study identifies as a counter-framework offering hope for inclusion. Disability experience is shaped by overlapping identities (gender, class, religion), not religion alone.", "pmid": "41647329", "pmcid": null }, { "id": "cit_snethen_welcoming_places_mental_illness_2020", "title": "Welcoming places: Perspectives of individuals with mental illnesses", "author": "Snethen, G., Jeffries, V., Thomas, E., Salzer, M.", "year": 2020, "journal": "American Journal of Orthopsychiatry", "url": "https://pubmed.ncbi.nlm.nih.gov/33411553/", "accessDate": "2026-07-11", "doi": "10.1037/ort0000519", "notes": "PMID 33411553. Survey, 75 individuals with serious mental illness: asked to identify locations where they felt welcomed; religious communities were among the settings most frequently named as welcoming, alongside restaurants/cafes, parks, and libraries — a documented counterweight to exclusion-focused findings, showing faith communities functioning as an inclusion resource for this population.", "pmid": "33411553", "pmcid": null }, { "id": "cit_marella_philippines_disability_prevalence_wellbeing_2016", "title": "Rapid assessment of disability in the Philippines: understanding prevalence, well-being, and access to the community for people with disabilities to inform the W-DARE project", "author": "Marella, M., Devine, A., Armecin, G. F., Zayas, J., Marco, M. J., Vaughan, C.", "year": 2016, "journal": "Population Health Metrics", "url": "https://pubmed.ncbi.nlm.nih.gov/27489509/", "accessDate": "2026-07-11", "doi": "10.1186/s12963-016-0096-y", "notes": "PMID 27489509. Population-based survey, two Philippine cities: people with disabilities had significantly lower well-being and reduced access to community life than matched controls; having a disability combined with negative family attitudes was reported as a barrier to participating in work, community meetings, religious activities, and social activities specifically.", "pmid": "27489509", "pmcid": null }, { "id": "cit_ferrell_oncology_caregiver_spirituality_synthesis_2024", "title": "Research Synthesis Related to Oncology Family Caregiver Spirituality in Palliative Care", "author": "Ferrell, B. R., Borneman, T., Koczywas, M., Galchutt, P.", "year": 2024, "journal": "Journal of Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/39429141/", "accessDate": "2026-07-11", "doi": "10.1089/jpm.2024.0209", "notes": "PMID 39429141. Research synthesis, 1,039 family caregivers of cancer patients across seven studies: spirituality was important to most family caregivers and most reported a religious affiliation; living with uncertainty was consistently the worst-rated aspect of caregiver quality of life, while having a sense of purpose and meaning was the highest-rated aspect.", "pmid": "39429141", "pmcid": null }, { "id": "cit_white_genetic_uncertainty_religion_spirituality_2009", "title": "Making sense of genetic uncertainty: the role of religion and spirituality", "author": "White, M. T.", "year": 2009, "journal": "American Journal of Medical Genetics Part C: Seminars in Medical Genetics", "url": "https://pubmed.ncbi.nlm.nih.gov/19170081/", "accessDate": "2026-07-11", "doi": "10.1002/ajmg.c.30196", "notes": "PMID 19170081. Analysis of research on religious/spiritual beliefs in genetic decision-making: religious and spiritual beliefs function as a heuristic some clients use to cope with the inherent uncertainty of genetic risk information; a limited spiritual assessment is recommended in genetic counseling, while noting some religious/spiritual beliefs can conflict with medicine's values, leaving some decisions genuinely unresolved.", "pmid": "19170081", "pmcid": null }, { "id": "cit_murray_genetic_counseling_rs_training_2020", "title": "Genetic counseling graduate training to address religion and spirituality in clinical practice: A qualitative exploration of programs in North America", "author": "Murray, A., Warren, N. S., Bosanko, K., Williamson Dean, L.", "year": 2020, "journal": "Journal of Genetic Counseling", "url": "https://pubmed.ncbi.nlm.nih.gov/32472736/", "accessDate": "2026-07-11", "doi": "10.1002/jgc4.1289", "notes": "PMID 32472736. Qualitative study, 12 of 33 eligible North American genetic counseling graduate programs: almost all programs include information on pastoral care services, but most offer little to no training on specific religious/spiritual beliefs or spiritual-assessment tools; program directors called training on this critical but reported it as inconsistent and rarely evaluated.", "pmid": "32472736", "pmcid": null }, { "id": "cit_wells_genetic_counselors_meaning_2015", "title": "Development, Experience, and Expression of Meaning in Genetic Counselors' Lives: an Exploratory Analysis", "author": "Wells, D. M., McCarthy Veach, P., Martyr, M. A., LeRoy, B. S.", "year": 2015, "journal": "Journal of Genetic Counseling", "url": "https://pubmed.ncbi.nlm.nih.gov/26498971/", "accessDate": "2026-07-11", "doi": "10.1007/s10897-015-9901-1", "notes": "PMID 26498971. Qualitative study, 25 practicing genetic counselors (from a national sample of 298): religious and/or spiritual foundations emerged as one of five major themes in how genetic counselors personally construct meaning in their clinical work, alongside helping others, relationships, value conflicts, and resilience — documenting the profession's own engagement with meaning, not just patients'.", "pmid": "26498971", "pmcid": null }, { "id": "cit_daharli_religious_officials_newborn_screening_vaccine_2026", "title": "Vaccine hesitancy and attitudes toward newborn heel-prick screening among religious officials: A mixed-methods study, Erzurum, Türkiye", "author": "Daharli, E., Çoruh, E.", "year": 2026, "journal": "Human Vaccines & Immunotherapeutics", "url": "https://pubmed.ncbi.nlm.nih.gov/42246680/", "accessDate": "2026-07-11", "doi": "10.1080/21645515.2026.2684831", "notes": "PMID 42246680. Mixed-methods study, 200 Muslim religious officials in Erzurum, Türkiye: hesitancy toward both vaccination and newborn bloodspot screening clustered around safety and institutional-trust concerns, reinforced by privacy/biomaterial and fertility/genetic-harm beliefs; only 19% were aware of the Organization of Islamic Cooperation's fatwa supporting vaccination, and that awareness was not itself associated with lower hesitancy.", "pmid": "42246680", "pmcid": null }, { "id": "cit_jedwab_germline_gene_editing_public_attitudes_2020", "title": "Genetics experience impacts attitudes towards germline gene editing: a survey of over 1500 members of the public", "author": "Jedwab, A., Vears, D. F., Tse, C., Gyngell, C.", "year": 2020, "journal": "Journal of Human Genetics", "url": "https://pubmed.ncbi.nlm.nih.gov/32737393/", "accessDate": "2026-07-11", "doi": "10.1038/s10038-020-0810-2", "notes": "PMID 32737393. Survey, 1,537 members of the public across 67 countries: respondents were generally supportive of germline gene editing, particularly for medical applications, but the most opposition observed was among religious respondents (alongside those with professional genetics experience) — support and opposition varied by demographic and experiential factors, not religion alone.", "pmid": "32737393", "pmcid": null }, { "id": "cit_critchley_gene_editing_moral_hereditary_concern_2019", "title": "Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications", "author": "Critchley, C., Nicol, D., Bruce, G., Walshe, J., Treleaven, T., Tuch, B.", "year": 2019, "journal": "Frontiers in Genetics", "url": "https://pubmed.ncbi.nlm.nih.gov/30687386/", "accessDate": "2026-07-11", "doi": "10.3389/fgene.2018.00704", "notes": "PMID 30687386. Survey, 1,004 Australians: Australians were generally comfortable with editing human/animal embryos for research and human-health purposes; moral concern (stronger than hereditary concern overall) was accentuated among more religious individuals, while hereditary concern was strongest among those with stronger trust in scientists and, separately, among more religious respondents.", "pmid": "30687386", "pmcid": null }, { "id": "cit_solomon_religious_groups_gene_editing_attitudes_2026", "title": "Which religious and personal characteristics predict attitudes toward gene editing? Findings from a survey of 4,939 adults in the U.S.", "author": "Solomon, E. D., Chin, E. G., Baldwin, K., Baker, L. L., DuBois, J. M.", "year": 2026, "journal": "Journal of Community Genetics", "url": "https://pubmed.ncbi.nlm.nih.gov/42151625/", "accessDate": "2026-07-11", "doi": "10.1007/s12687-026-00898-4", "notes": "PMID 42151625. Survey, 4,939 U.S. adults across 9 stratified religious/non-religious groups: atheist participants reported the highest support for gene editing and lowest concerns, Muslim participants the highest concerns, and Mainline Protestants the lowest support; predictors included views on evolution, belief that one's body is a manifestation of God, religious discrimination, and distrust — the study explicitly cautions that generalizations must be avoided given the range of attitudes within each religious group.", "pmid": "42151625", "pmcid": null }, { "id": "cit_thaldar_ai_healthcare_trust_religion_south_africa_2025", "title": "Public trust of AI in healthcare in South Africa: results of a survey", "author": "Thaldar, D., Bottomley, D.", "year": 2025, "journal": "BMC Medical Ethics", "url": "https://pubmed.ncbi.nlm.nih.gov/40855295/", "accessDate": "2026-07-11", "doi": "10.1186/s12910-025-01272-8", "notes": "PMID 40855295. Cross-sectional survey, 341 South African residents: 73.7% (weighted) preferred a human doctor over an AI doctor for serious health decisions; the importance of religion significantly predicted this preference (P<.001) — respondents for whom religion was 'not too important' were significantly more likely to prefer an AI doctor.", "pmid": "40855295", "pmcid": null }, { "id": "cit_weng_dignity_conserving_therapy_existential_distress_2022", "title": "Dignity Conserving Therapy: An Intervention for Addressing Psychosocial and Existential Distress in Patients with Serious Illness", "author": "Weng, J., Pachman, D. R., Wild, E., Ingram, C. J.", "year": 2022, "journal": "Palliative Medicine Reports", "url": "https://pubmed.ncbi.nlm.nih.gov/36203715/", "accessDate": "2026-07-11", "doi": "10.1089/pmr.2022.0016", "notes": "PMID 36203715. Clinical framework article: meaning-centered psychotherapy and dignity therapy address existential distress (loss of dignity, narrative foreclosure — the premature conviction one's life story has ended) in patients with serious illness through secular, structured clinical interventions rather than religious counsel; associated with greater will to live and reduced stress in the source literature it synthesizes.", "pmid": "36203715", "pmcid": null }, { "id": "cit_wierstra_interfaith_chaplaincy_worldview_boundary_2024", "title": "Interfaith Collaboration: Boundary Crossing in a Participatory Action Research Project with Health Care Chaplains in The Netherlands", "author": "Wierstra, I. R., Schuhmann, C., Collard, J., Oosterom, B., Jacobs, G.", "year": 2024, "journal": "Journal of Religion and Health", "url": "https://pubmed.ncbi.nlm.nih.gov/39613936/", "accessDate": "2026-07-11", "doi": "10.1007/s10943-024-02185-3", "notes": "PMID 39613936. Participatory action research, Dutch multifaith chaplaincy team: diverse worldviews (including secular/humanist) and contradictory visions of chaplaincy's role initially caused misunderstanding, but open dialogue built a shared professional identity — finding that in secular contexts, worldview (not only organized religion) remains a legitimate basis for chaplaincy identity and dialogue.", "pmid": "39613936", "pmcid": null }, { "id": "cit_smit_secular_age_chaplaincy_model_2024", "title": "Responding to Life Itself: A Proposed Understanding of Domain, Goal and Interventions for Chaplaincy in a Secular Age", "author": "Smit, J., Schuhmann, C., Damen, A.", "year": 2024, "journal": "Journal of Pastoral Care & Counseling", "url": "https://pubmed.ncbi.nlm.nih.gov/39497556/", "accessDate": "2026-07-11", "doi": "10.1177/15423050241296785", "notes": "PMID 39497556. Theoretical model: proposes chaplaincy's domain in a secular age as 'responding to life itself,' with 'existential well-being' (not religious salvation or observance) as the corresponding goal — an explicit first-class framework for chaplaincy that does not presuppose religious belief as the baseline.", "pmid": "39497556", "pmcid": null }, { "id": "cit_layson_faith_based_chaplaincy_secularist_humanist_2023", "title": "The Impact of Faith-Based Pastoral Care in Decreasingly Religious Contexts: The Australian Chaplaincy Advantage in Critical Environments", "author": "Layson, M. D., Carey, L. B., Best, M. C.", "year": 2023, "journal": "Journal of Religion and Health", "url": "https://pubmed.ncbi.nlm.nih.gov/36976458/", "accessDate": "2026-07-11", "doi": "10.1007/s10943-023-01791-x", "notes": "PMID 36976458. Position article: argues faith-based chaplaincy provides distinct organizational and care advantages in critical environments (military, first responders, hospitals) even amid declining religiosity, presented explicitly as 'an alternative argument to the secularist-humanist perspective.' Included as a documented counterpoint — this topic does not resolve the underlying debate about whether faith-based or secular/humanist models serve patients better; both positions are documented.", "pmid": "36976458", "pmcid": null }, { "id": "cit_potts_spiritual_caregiving_religious_nones_2023", "title": "Spiritual Caregiving and Assessments for America's Religious 'Nones': A Chaplaincy Perspective", "author": "Potts, G., Hewitt, S., Moore, M., Mui, A., Lubrano, B.", "year": 2023, "journal": "Journal of Religion and Health", "url": "https://pubmed.ncbi.nlm.nih.gov/36749461/", "accessDate": "2026-07-11", "doi": "10.1007/s10943-023-01757-z", "notes": "PMID 36749461. Qualitative study, 5 chaplains at a cancer research institution: one in four American patients now identify as religiously unaffiliated; chaplains described how spiritual caregiving still contributes to holistic wellbeing for patients who are spiritual-but-not-religious, secular humanist, atheist, or agnostic, and the authors propose a spirituality-assessment tool designed for this population specifically rather than adapted from religious frameworks.", "pmid": "36749461", "pmcid": null }, { "id": "cit_cai_nonreligious_theistic_pediatric_spiritual_needs_2020", "title": "Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study", "author": "Cai, S., Guo, Q., Luo, Y., Zhou, Y., Abbas, A., Zhou, X., Peng, X.", "year": 2020, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/31971068/", "accessDate": "2026-07-11", "doi": "10.1177/0269216319896747", "notes": "PMID 31971068. Qualitative study, 16 bereaved parents in Beijing: parents who described themselves as nonreligious still sought religious support and psychological/spiritual comfort facing their child's death, but stated spiritual needs also required nonreligious supports (bereavement services, death education, family support groups) — nonreligious identity was not monolithic, and a child's understanding of death was described as more complex, related to atheism.", "pmid": "31971068", "pmcid": null }, { "id": "cit_pesut_chaplaincy_nonreligious_spiritual_care_2016", "title": "Recovering Religious Voice and Imagination: A Response to Nolan's Case Study \"He Needs to Talk!\"", "author": "Pesut, B.", "year": 2016, "journal": "Journal of Health Care Chaplaincy", "url": "https://pubmed.ncbi.nlm.nih.gov/26789337/", "accessDate": "2026-07-11", "doi": "10.1080/08854726.2015.1113809", "notes": "PMID 26789337. Scholarly commentary responding to a chaplaincy case study on nonreligious spiritual care: examines what is distinctive about a chaplain's role in working with nonreligious patients in a society where more people define themselves as not religious, arguing case studies reveal what chaplains actually do rather than relying on thin, stereotyped accounts of religion.", "pmid": "26789337", "pmcid": null }, { "id": "cit_hodgkinson_nice_ng31_dying_adults_2016", "title": "Care of dying adults in the last days of life", "author": "Hodgkinson, S., Ruegger, J., Field-Smith, A., Latchem, S., Ahmedzai, S. H.", "year": 2016, "journal": "Clinical Medicine (London, England)", "url": "https://pubmed.ncbi.nlm.nih.gov/27251915/", "accessDate": "2026-07-12", "doi": "10.7861/clinmedicine.16-3-254", "notes": "PMID 27251915. Concise Guideline overview of NICE Clinical Guideline NG31 (England): recognising dying, communication and shared decision-making, maintaining hydration, and pharmacological symptom control including anticipatory prescribing. Documents that the Liverpool Care Pathway was withdrawn after an independent government report found its uncritical implementation could lead to poor care, and discusses implementation barriers (training, 24/7 specialist support).", "pmid": "27251915", "pmcid": null }, { "id": "cit_anderson_five_priorities_dying_2014", "title": "Getting the priorities right in end-of-life care", "author": "Anderson, P.", "year": 2014, "journal": "Nursing Times", "url": "https://pubmed.ncbi.nlm.nih.gov/25188966/", "accessDate": "2026-07-12", "notes": "PMID 25188966. Describes the Leadership Alliance for the Care of Dying People's five priorities for care of dying people (England), which replaced the Liverpool Care Pathway after criticism that it promoted a tick-box approach: recognising dying, sensitive communication, involving patients/family in decisions, support, and an individualised care plan including nutrition and hydration.", "pmid": "25188966", "pmcid": null }, { "id": "cit_partridge_nonmalignant_palliative_access_2009", "title": "Palliative care services for those with chronic lung disease", "author": "Partridge, M. R., Khatri, A., Sutton, L., Welham, S., Ahmedzai, S. H.", "year": 2009, "journal": "Chronic Respiratory Disease", "url": "https://pubmed.ncbi.nlm.nih.gov/19176708/", "accessDate": "2026-07-12", "doi": "10.1177/1479972308100538", "notes": "PMID 19176708. Survey of 210 respiratory physicians across England, Wales, and Northern Ireland (107 responses, 51% rate): patients with advanced nonmalignant respiratory disease (COPD, asbestosis, diffuse parenchymal lung disease) had markedly less access to hospice in-patient/day care than those with malignant lung disease; only 21.5% of respondents had formal end-of-life policies for chronic respiratory disease, and 87.9% had no formal process for initiating end-of-life discussions.", "pmid": "19176708", "pmcid": null }, { "id": "cit_selman_bereavement_inequities_uk_2022", "title": "'Sadly I think we are sort of still quite white, middle-class really' - Inequities in access to bereavement support: Findings from a mixed methods study", "author": "Selman, L. E., Sutton, E., Medeiros Mirra, R., Stone, T., Gilbert, E., Rolston, Y., Murray, K., Longo, M., Seddon, K., Penny, A., Mayland, C. R., Wakefield, D., Byrne, A., Harrop, E.", "year": 2022, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/36337051/", "accessDate": "2026-07-12", "doi": "10.1177/02692163221133665", "notes": "PMID 36337051. UK mixed-methods study, 147 bereavement services surveyed + 24 interviews: 67.3% of services reported groups with unmet needs before the pandemic, most frequently people from minoritised ethnic communities (49%), sexual minority groups (26.5%), and deprived areas (24.5%); 25.2% of services did not collect ethnicity data at all.", "pmid": "36337051", "pmcid": null }, { "id": "cit_rolls_payne_childhood_bereavement_uk_2003", "title": "Childhood bereavement services: a survey of UK provision", "author": "Rolls, L., Payne, S.", "year": 2003, "journal": "Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/12882261/", "accessDate": "2026-07-12", "doi": "10.1191/0269216303pm776oa", "notes": "PMID 12882261. Survey of 127 UK childhood bereavement services (108 responses, 85% rate): 85% of services are located in the voluntary/charitable sector, and 44% of host organizations are hospices — documenting the voluntary-sector funding structure distinctive to UK hospice and bereavement provision, unlike the US's primarily Medicare-funded hospice benefit.", "pmid": "12882261", "pmcid": null }, { "id": "cit_cerni_rural_eol_cancer_sr_2020", "title": "End-of-Life Cancer Care Resource Utilisation in Rural Versus Urban Settings: A Systematic Review", "author": "Cerni, J., Rhee, J., Hosseinzadeh, H.", "year": 2020, "journal": "International Journal of Environmental Research and Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/32660146/", "accessDate": "2026-08-17", "doi": "10.3390/ijerph17144955", "notes": "PMID 32660146. Systematic review of 24 mortality follow-back studies: rurality was strongly associated with higher rates of emergency-department visits and hospitalisations and lower rates of hospice care at the end of life in cancer; proximity to services, age, gender, and survival time explained the largest urban-rural inequities.", "pmid": "32660146", "pmcid": null }, { "id": "cit_deforge_nh_hospice_disparities_sr_2025", "title": "Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review", "author": "DeForge, C. E., Ma, H. S., Dick, A. W., et al.", "year": 2025, "journal": "American Journal of Hospice and Palliative Care", "url": "https://pubmed.ncbi.nlm.nih.gov/39787275/", "accessDate": "2026-08-17", "doi": "10.1177/10499091251313761", "notes": "PMID 39787275. Systematic review (13 studies, 2008-2023) of hospice use in U.S. nursing homes: adjusted analyses found lower hospice use among male residents, Black/non-white residents, and residents of rural nursing homes; only about one-third of eligible residents enroll.", "pmid": "39787275", "pmcid": null }, { "id": "cit_bakitas_enable2_jama_2009", "title": "Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial", "author": "Bakitas, M., Lyons, K. D., Hegel, M. T., et al.", "year": 2009, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/19690306/", "accessDate": "2026-08-17", "doi": "10.1001/jama.2009.1198", "notes": "PMID 19690306. RCT (N=322) at a rural NCI-designated cancer center, affiliated outreach clinics, and a VA medical center: a nurse-led, largely telephone-delivered early palliative care intervention improved quality of life (+4.6, P=.02) and depressed mood (P=.02) vs usual care; symptom intensity (P=.06) and hospital/ICU/ED utilization did not differ. Evidence that structured palliative support can be delivered where no specialist team is nearby.", "pmid": "19690306", "pmcid": null }, { "id": "cit_pless_kaiser_ptsd_eol_2023", "title": "Factors Associated With Distress Related to Posttraumatic Stress Disorder at the End of Life Among U.S. Veterans", "author": "Pless Kaiser, A., Moye, J., Baird, L., Sager, Z., Wachterman, M.", "year": 2023, "journal": "Journal of Pain and Symptom Management", "url": "https://pubmed.ncbi.nlm.nih.gov/37084828/", "accessDate": "2026-08-17", "doi": "10.1016/j.jpainsymman.2023.04.011", "notes": "PMID 37084828. Retrospective cohort of 42,474 veterans who died in VA inpatient settings (Bereaved Family Survey): 8.9% experienced PTSD-related distress at end of life; combat exposure, younger age, male sex, non-white race, dementia, and co-occurring substance use disorder with depression were associated with higher odds. Palliative care consultation and emotional support were associated with decreased odds; unmanaged pain with increased odds.", "pmid": "37084828", "pmcid": null }, { "id": "cit_kutney_lee_vietnam_eol_2021", "title": "Quality of end-of-life care for Vietnam-era Veterans: Implications for practice and policy", "author": "Kutney-Lee, A., Smith, D., Griffin, H., et al.", "year": 2021, "journal": "Healthcare (Amsterdam)", "url": "https://pubmed.ncbi.nlm.nih.gov/33992224/", "accessDate": "2026-08-17", "doi": "10.1016/j.hjdsi.2020.100494", "notes": "PMID 33992224. VA medical-record and bereaved-family-survey study, FY2013-2017: compared with WWII/Korea-era decedents, higher percentages of Vietnam-era veterans had mental-health/substance-use diagnoses and disability; overall end-of-life care ratings were similar, but family ratings of PTSD management were significantly lower — the basis for tailored end-of-life protocols for this cohort.", "pmid": "33992224", "pmcid": null }, { "id": "cit_garrido_veteran_mh_hosp_2017", "title": "Mental Illness and Mental Healthcare Receipt among Hospitalized Veterans with Serious Physical Illnesses", "author": "Garrido, M. M., Prigerson, H. G., Neupane, S., et al.", "year": 2017, "journal": "Journal of Palliative Medicine", "url": "https://pubmed.ncbi.nlm.nih.gov/27835066/", "accessDate": "2026-08-17", "doi": "10.1089/jpm.2016.0261", "notes": "PMID 27835066. Retrospective study of 11,286 veterans hospitalized with advanced cancer, CHF, COPD, or advanced HIV/AIDS (FY2011): at least one-quarter had a mental illness or substance use disorder (depression 11.4%, alcohol use disorder 5.5%, PTSD 4.9%); of those with depression or anxiety incident at hospitalization, fewer than half received mental health care before discharge.", "pmid": "27835066", "pmcid": null }, { "id": "cit_census_acs_c16001_language", "title": "C16001: Language Spoken at Home for the Population 5 Years and Over — American Community Survey 2022 5-Year Estimates", "author": "U.S. Census Bureau", "year": 2023, "publisher": "U.S. Census Bureau", "url": "https://data.census.gov/table/ACSDT5Y2022.C16001", "accessDate": "2026-08-28", "notes": "County-level counts of households and people speaking a language other than English at home, including limited-English-proficiency detail. Live check blocked by build-environment egress (connect_rejected at proxy) — WARN. Dataset-level corroboration: api.census.gov/data/2022/acs/acs5 verified live 2026-04-08 in OurIntel's source registry. Claim type: dataset existence, no figures cited.", "pmid": null, "pmcid": null }, { "id": "cit_census_acs_b28002_broadband", "title": "B28002: Presence and Types of Internet Subscriptions in Household — American Community Survey 2022 5-Year Estimates", "author": "U.S. Census Bureau", "year": 2023, "publisher": "U.S. Census Bureau", "url": "https://data.census.gov/table/ACSDT5Y2022.B28002", "accessDate": "2026-08-28", "notes": "County- and ZCTA-level household broadband-subscription estimates. Live check blocked by build-environment egress — WARN. Table-level corroboration: the B28002 cells appear in OurIntel's fetched artifact acs_broadband_zctas.json (_meta.fetched_at 2026-08-03, classification verified, US Public Domain). Claim type: dataset existence, no figures cited.", "pmid": null, "pmcid": null }, { "id": "cit_hrsa_hpsa_shortage_areas", "title": "Health Workforce Shortage Areas — HPSA designations for primary care, dental health, and mental health", "author": "Health Resources and Services Administration", "year": 2026, "publisher": "HRSA", "url": "https://data.hrsa.gov/topics/health-workforce/shortage-areas", "accessDate": "2026-08-28", "notes": "Continuously updated federal designations of geographic areas, populations, and facilities with clinician shortages, downloadable per discipline. Live check blocked by build-environment egress — WARN. Corroboration: same URL verified_live 2026-07-14 in OurIntel's source registry (hrsa_hpsa). Claim type: dataset existence, no figures cited.", "pmid": null, "pmcid": null }, { "id": "cit_va_facility_directory", "title": "VA Facility Directory", "author": "U.S. Department of Veterans Affairs", "year": 2026, "publisher": "VA", "url": "https://www.va.gov/directory/guide/home.asp", "accessDate": "2026-08-28", "notes": "Official directory of VA medical centers, clinics, and Vet Centers by location. Live check blocked by build-environment egress — WARN. Corroboration: verified_live 2026-04-09 in OurIntel's source registry (va_facilities). Claim type: resource existence, no figures cited.", "pmid": null, "pmcid": null }, { "id": "cit_gamble_tuskegee_shadow_1997", "title": "Under the Shadow of Tuskegee: African Americans and Health Care", "author": "Gamble, Vanessa Northington", "year": 1997, "journal": "American Journal of Public Health", "url": "https://pubmed.ncbi.nlm.nih.gov/9366634/", "accessDate": "2026-08-28", "notes": "PMID 9366634. Am J Public Health. 1997 Nov;87(11):1773-1778. Argues that African American mistrust of biomedicine predates and extends beyond the Tuskegee Syphilis Study, situating it within a longer history of unequal treatment. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing and the publisher (AJPH) abstract page. Claim type: historical scholarship, no figures cited.", "pmid": "9366634", "pmcid": null }, { "id": "cit_white_tuskegee_misinformation_2005", "title": "Misinformation and Misbeliefs in the Tuskegee Study of Untreated Syphilis Fuel Mistrust in the Healthcare System", "author": "White, Robert M.", "year": 2005, "journal": "Journal of the National Medical Association", "url": "https://pubmed.ncbi.nlm.nih.gov/16334509/", "accessDate": "2026-08-28", "notes": "PMID 16334509. J Natl Med Assoc. 2005 Nov;97(11):1566-1573. Documents how misinformation about the Tuskegee Study circulates and contributes to healthcare mistrust. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing and PMC record (PMC2594917). Claim type: historical scholarship, no figures cited.", "pmid": "16334509", "pmcid": null }, { "id": "cit_saunders_st_christophers_history", "title": "Dame Cicely Saunders", "author": "St Christopher's Hospice", "year": 2026, "publisher": "St Christopher's Hospice", "url": "https://www.stchristophers.org.uk/about/damecicelysaunders/", "accessDate": "2026-08-28", "notes": "Institutional history page: Cicely Saunders founded St Christopher's Hospice, opened 1967, combining pain and symptom control with psychosocial and spiritual support and clinical teaching and research. Live check blocked by build-environment egress — WARN. Corroborated by the independently peer-reviewed Cureus history below and multiple secondary historical accounts. Claim type: institutional history, no figures cited.", "pmid": null, "pmcid": null }, { "id": "cit_redwine_ganti_cicely_saunders_cureus_2024", "title": "Dame Cicely Saunders: Pioneering Palliative Care and the Evolution of Hospice Services", "author": "Redwine, Hannah M., Ganti, Latha", "year": 2024, "journal": "Cureus", "url": "https://pubmed.ncbi.nlm.nih.gov/39759695/", "accessDate": "2026-08-28", "notes": "PMID 39759695. Peer-reviewed review of Cicely Saunders's founding of St Christopher's Hospice (1967) and its influence on the international hospice and palliative-care movement. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing, PMC (PMC11700540), and the Cureus publisher page. Claim type: historical scholarship, no figures cited.", "pmid": "39759695", "pmcid": null }, { "id": "cit_support_principal_investigators_jama_1995", "title": "A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT)", "author": "The SUPPORT Principal Investigators", "year": 1995, "journal": "JAMA", "url": "https://pubmed.ncbi.nlm.nih.gov/7474243/", "accessDate": "2026-08-28", "notes": "PMID 7474243. JAMA. 1995 Nov 22-29;274(20):1591-1598. Landmark study of over 9,000 seriously ill hospitalized adults documenting shortcomings in communication and end-of-life care and under-recognition of patient preferences; widely cited as a catalyst for the modern palliative-care and advance-care-planning field. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing, JAMA Network's own article page, and Experts@Minnesota. Claim type: historical/landmark study, no percentage figures cited.", "pmid": "7474243", "pmcid": null }, { "id": "cit_psda_congress_1990", "title": "Patient Self Determination Act of 1990 (H.R. 4449, 101st Congress)", "author": "United States Congress", "year": 1990, "publisher": "Library of Congress", "url": "https://www.congress.gov/bill/101st-congress/house-bill/4449", "accessDate": "2026-08-28", "notes": "Signed into law November 5, 1990, effective December 1, 1991. Requires hospitals, skilled-nursing facilities, hospices, home health and personal care agencies, and HMOs receiving Medicare or Medicaid funds to inform adult patients of their right to accept or refuse treatment and to complete an advance directive. Live check blocked by build-environment egress — WARN. Corroborated across Congress.gov's own bill record and NCBI Bookshelf's StatPearls summary. Claim type: primary legislative record, no figures cited.", "pmid": null, "pmcid": null } ], "claims": [ { "id": "bc_cop_mandate", "claimText": "Medicare-certified hospices are required by federal regulation (42 CFR §418.64(d)) to provide bereavement counseling services to family members and others identified in the bereavement plan of care for at least one year following the death of the patient.", "claimType": "verified", "topicLabel": "Bereavement", "pageUrl": "https://valuesincare.com/bereavement#claim-bc_cop_mandate", "citationIds": [ "cit_42cfr_418_64" ], "caveats": [] }, { "id": "bc_eol_discussions_bereavement", "claimText": "The Wright et al. (2008) prospective cohort (n=332 advanced cancer dyads) found that patients who reported end-of-life discussions were significantly more likely to receive comfort-focused care near death and to enroll in hospice earlier — the study's primary outcomes. Among bereaved caregivers (N=202), aggressive medical care was associated with higher risk for Major Depressive Disorder (AOR 3.37; 95% CI, 1.12–10.13; P=.03) and more caregiver regret (β=0.17; P=.01). Caregiver bereavement adjustment was a secondary outcome; these are associations between care intensity and bereavement, not direct effects of EOL discussions.", "claimType": "verified", "topicLabel": "Bereavement", "pageUrl": "https://valuesincare.com/bereavement#claim-bc_eol_discussions_bereavement", "citationIds": [ "cit_wright_jama_2008" ], "caveats": [ "Wright et al. (2008) and associated findings by Phelps and Balboni derive from the same Dana-Farber Coping with Cancer parent cohort. 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health-related suffering increased by about 74%.", "source": "Lancet Global Health", "url": "https://www.hematologyadvisor.com/news/palliative-care-lancet-commission-extended-data-global-access-treatment-risk/", "snapshotDate": "2026-03-03", "citationId": "cit_lancet_evolution_shs" }, { "stat": "~80% of cancer patients experience moderate to severe pain in advanced stages.", "source": "NOSM University", "url": "https://www.nosm.ca/wp-content/uploads/2021/06/ComplexPain.pdf", "snapshotDate": "2026-03-03", "citationId": "cit_complex_pain_nosm" }, { "stat": "In 2022, 1.72 million Medicare beneficiaries were enrolled in hospice care.", "source": "NHPCO Facts & Figures 2024", "url": "https://allianceforcareathome.org/wp-content/uploads/2024/09/Facts-Figures-2024_FINAL.pdf", "snapshotDate": "2026-03-03", "citationId": "cit_nhpco_facts_2024" }, { "stat": "49.1% of all Medicare decedents received at least one day of hospice care in 2022.", "source": "NHPCO Facts & Figures 2024", "url": 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It is a quality assessment, not a values history.", "source": "CMS Hospice Quality Reporting Program", "url": "https://www.cms.gov/medicare/quality/hospice/hope", "snapshotDate": "2026-08-30", "citationId": "cit_cms_hope_reporting" }, { "stat": "The NCP Guidelines identify eight domains of quality palliative care, including spiritual, religious, and existential aspects.", "source": "NCP Guidelines 4th Ed.", "url": "https://www.nationalcoalitionhpc.org/ncp-guidelines/", "snapshotDate": "2026-03-03", "citationId": "cit_ncp_guidelines_4e" }, { "stat": "Spiritual care is recognized as an integral component of palliative care by EAPC.", "source": "EAPC white paper", "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC6964109/", "snapshotDate": "2026-03-03", "citationId": "cit_eapc_spiritual_education" } ], "resources": [ { "id": "res_ncp_guidelines_4e", "title": "Clinical Practice Guidelines for Quality Palliative Care, 4th edition", "org": "National Coalition for Hospice and Palliative Care", "year": 2018, "url": "https://www.nationalcoalitionhpc.org/ncp-guidelines/", "description": "National consensus guidelines outlining eight domains of quality palliative care." }, { "id": "res_capc_spiritual_toolkit", "title": "Spiritual Care: Tools and Resources", "org": "Center to Advance Palliative Care", "year": 2024, "url": "https://www.capc.org/toolkits/spiritual-care/", "description": "CAPC toolkit with research, tools, and training resources for spiritual care in serious illness." }, { "id": "res_capc_comm_skills", "title": "Communication Skills Training", "org": "Center to Advance Palliative Care", "year": 2024, "url": "https://www.capc.org/training/communication-skills/", "description": "CAPC online curriculum on serious-illness communication." }, { "id": "res_capc_goals_course", "title": "Leading Goals of Care Conversations", "org": "Center to Advance Palliative Care", "year": 2026, "url": "https://www.capc.org/training/communication-skills/leading-goals-of-care-conversations/", "description": "Course and conversation script for structuring goals-of-care discussions." }, { "id": "res_capc_goals_script", "title": "Conversation Script: Goals of Care", "org": "Center to Advance Palliative Care", "year": 2024, "url": "https://www.capc.org/conversation-script-goals-of-care/", "description": "Practical script and language examples for goals-of-care conversations." }, { "id": "res_who_palliative_factsheet", "title": "Palliative care – Fact sheet", "org": "World Health Organization", "year": 2020, "url": "https://www.who.int/news-room/fact-sheets/detail/palliative-care", "description": "Global WHO fact sheet summarizing palliative care needs, access gaps, and policy priorities." }, { "id": "res_global_atlas_2014", "title": "Global Atlas of Palliative Care at the End of Life", "org": "WHO & Worldwide Hospice Palliative Care Alliance", "year": 2014, "url": "https://www.iccp-portal.org/sites/default/files/resources/Global_Atlas_of_Palliative_Care.pdf", "description": "Foundational atlas quantifying global need for palliative care at the end of life." }, { "id": "res_spiritual_care_guide", "title": "Spiritual Care Guide in Hospice Palliative Care", "org": "Journal of Hospice and Palliative Care", "year": 2023, "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC10703561/", "description": "Guide describing a spiritual care model and process for adult hospice and palliative patients." }, { "id": "res_eapc_spiritual_white_paper", "title": "An EAPC white paper on multi-disciplinary education for spiritual care in palliative care", "org": "European Association for Palliative Care", "year": 2020, "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC6964109/", "description": "EAPC consensus paper on spiritual care education competencies." }, { "id": "res_dcp3_pain_cancer_aids", "title": "Pain Control for People with Cancer and AIDS", "org": "Disease Control Priorities Project", "year": 2006, "url": "https://www.dcp-3.org/sites/default/files/dcp2/DCP52.pdf", "description": "Global cancer and AIDS pain burden, WHO analgesic ladder, and opioid access issues." }, { "id": "res_global_opioids_cancer", "title": "Global Outlook on Palliative Care in Cancer", "org": "The American Journal of Managed Care", "year": 2015, "url": "https://www.ajmc.com/view/global-outlook-on-palliative-care-in-cancer-", "description": "Review of global access to opioids for cancer pain." }, { "id": "res_unnews_palliative_gap", "title": "Only 1 in 10 people who need palliative care, receive it", "org": "United Nations / WHO", "year": 2021, "url": "https://news.un.org/en/story/2021/10/1102262", "description": "UN News article summarizing WHO data on global palliative care need and access." }, { "id": "res_lancet_commission_shs", "title": "Alleviating the access abyss in palliative care and pain relief", "org": "The Lancet Commission", "year": 2018, "url": "https://mia.as.miami.edu/_assets/pdf/lancet-palliative-care-report-overview.pdf", "description": "Overview of the Lancet Commission's serious health-related suffering framework." }, { "id": "res_nhpco_facts_2024", "title": "NHPCO Facts and Figures, 2024 Edition", "org": "NHPCO / National Alliance for Care at Home", "year": 2024, "url": "https://allianceforcareathome.org/wp-content/uploads/2024/09/Facts-Figures-2024_FINAL.pdf", "description": "Annual U.S. hospice statistics including Medicare hospice beneficiaries and utilization." }, { "id": "res_religious_good_death", "title": "Religious Understandings of a Good Death in Hospice Palliative Care", "org": "SUNY Press", "year": 2012, "url": "https://hamdir.ir/wp-content/uploads/2021/10/Religious-Understandings-of-a-Good-Death-in-Hospice-Palliative-Care.pdf", "description": "Edited volume comparing religious concepts of a good death across major traditions." }, { "id": "res_mypcnow_muslim_EOL", "title": "End-of-Life Care Considerations for Muslim Patients", "org": "Palliative Care Network of Wisconsin", "year": 2025, "url": "https://www.mypcnow.org/fast-fact/end-of-life-care-considerations-for-muslim-patients/", "description": "Clinical Fast Fact on Islamic perspectives on suffering, opioids, life support, and DNR." }, { "id": "res_topten_muslim_palliative", "title": "Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims", "org": "Journal of Palliative Medicine", "year": 2022, "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC9715378/", "description": "Practical tips on prayer, opioids, sedation, life support, and organ donation for Muslim patients." }, { "id": "res_fcna_organ_donation", "title": "The Moral Status of Organ Donation and Transplantation Within Islamic Law", "org": "Fiqh Council of North America", "year": 2024, "url": "https://fiqhcouncil.org/the-moral-status-of-organ-donation-and-transplantation-within-islamic-law-the-fiqh-council-of-north-america/", "description": "Detailed FCNA fatwa on organ donation and transplantation in Islam." }, { "id": "res_brain_death_islam_review", "title": "Do not resuscitate, brain death, and organ transplantation: Islamic perspectives", "org": "Journal of Anaesthesiology Clinical Pharmacology", "year": 2017, "url": "https://www.thieme-connect.com/products/ejournals/abstract/10.4103/2231-0770.203608", "description": "Review of Islamic legal and ethical perspectives on DNR, brain death, and organ transplantation." }, { "id": "res_candc_faith_engagement", "title": "Faith Engagement – Faith Communities for End of Life Options", "org": "Compassion & Choices", "year": 2024, "url": "https://compassionandchoices.org/take-action/community-engagement/faith-outreach/", "description": "Toolkit and stories for faith leaders addressing end-of-life options." }, { "id": "res_njsp_inequities_palliative", "title": "Healthcare Inequities in Palliative Care", "org": "New Jersey State Policy Lab", "year": 2025, "url": "https://policylab.rutgers.edu/publication/healthcare-inequities-in-palliative-care/", "description": "Policy brief on inequities in palliative care access among underserved populations." }, { "id": "res_shs_global_assessment", "title": "Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology", "org": "BMC Palliative Care", "year": 2024, "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC11253038/", "description": "Updated analysis of serious health-related suffering and palliative care need." }, { "id": "res_community_based_interventions", "title": "Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022", "org": "International Journal of Environmental Research and Public Health", "year": 2024, "url": "https://pmc.ncbi.nlm.nih.gov/articles/PMC11311615/", "description": "Review of community-based palliative interventions and WHO estimates of global need." }, { "id": 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