TY - ELEC ID - cit_who_palliative_factsheet TI - Palliative care AU - World Health Organization PY - 2020 PB - WHO UR - https://www.who.int/news-room/fact-sheets/detail/palliative-care Y2 - 2026/03/03 N1 - WHO fact sheet with global estimates of palliative care need and access gaps. ER - TY - ELEC ID - cit_who_kap_ncd_palliative TI - Palliative care | Knowledge Action Portal on NCDs AU - World Health Organization PY - 2020 PB - WHO UR - https://www.knowledge-action-portal.com/en/content/palliative-care-0 Y2 - 2026/03/03 ER - TY - ELEC ID - cit_global_atlas_palliative TI - Global Atlas of Palliative Care at the End of Life AU - WHO & WHPCA PY - 2014 PB - WHO UR - https://thewhpca.org/resources/who-global-atlas-on-palliative-care-at-the-end-of-life/ Y2 - 2026/09/14 ER - TY - ELEC ID - cit_unnews_palliative_2021 TI - Only 1 in 10 people who need palliative care, receive it AU - WHO PY - 2021 PB - UN News UR - https://news.un.org/en/story/2021/10/1102262 Y2 - 2026/03/03 ER - TY - JOUR ID - cit_lancet_commission_SHS TI - Alleviating the access abyss in palliative care and pain relief AU - Knaul, F. M., Farmer, P. E., et al. PY - 2018 JO - The Lancet UR - https://mia.as.miami.edu/_assets/pdf/lancet-palliative-care-report-overview.pdf Y2 - 2026/03/03 ER - TY - JOUR ID - cit_lancet_evolution_shs TI - The evolution of serious health-related suffering from 1990 to 2021: an update to The Lancet Commission on global access to palliative care and pain relief AU - Knaul, F. M., Arreola-Ornelas, H., Kwete, X. J., et al. PY - 2025 JO - The Lancet Global Health DO - 10.1016/S2214-109X(24)00476-5 UR - https://pubmed.ncbi.nlm.nih.gov/40021301/ Y2 - 2026/09/14 N1 - PMID 40021301. PMC11868779. Lancet Glob Health 2025;13(3):e422-e436. SHS burden rose 74% from 1990 to 2021 to about 73.5 million; LMICs 80%; non-decedents 63% by 2021. The data-hub figures come from this abstract. ER - TY - JOUR ID - cit_shs_global_assessment TI - Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology AU - Best, M., Knaul, F. M., et al. PY - 2024 JO - BMC Palliative Care UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC11253038/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_ncp_guidelines_4e TI - Clinical Practice Guidelines for Quality Palliative Care, 4th edition AU - National Consensus Project PY - 2018 PB - National Coalition for Hospice and Palliative Care UR - https://www.nationalcoalitionhpc.org/ncp-guidelines/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_capc_spiritual_toolkit TI - Spiritual Care – Tools and Resources AU - Center to Advance Palliative Care PY - 2024 PB - CAPC UR - https://www.capc.org/toolkits/spiritual-care/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_capc_comm_skills_unit TI - Communication Skills Training AU - CAPC PY - 2024 PB - CAPC UR - https://www.capc.org/training/communication-skills/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_capc_goals_course TI - Leading Goals of Care Conversations AU - CAPC PY - 2026 PB - CAPC UR - https://www.capc.org/training/communication-skills/leading-goals-of-care-conversations/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_capc_goals_script TI - Conversation Script: Goals of Care AU - CAPC PY - 2024 PB - CAPC UR - https://www.capc.org/conversation-script-goals-of-care/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_capc_learning_pathway TI - Communication Skills for Conversations About Serious Illness AU - CAPC PY - 2026 PB - CAPC UR - https://www.capc.org/training/learning-pathways/communication-skills-conversations-about-serious-illness/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_spiritual_care_guide TI - Spiritual Care Guide in Hospice Palliative Care AU - Kim, S. J., et al. PY - 2023 JO - Journal of Hospice and Palliative Care UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC10703561/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_eapc_spiritual_education TI - An EAPC white paper on multi-disciplinary education for spiritual care in palliative care AU - Best, M., et al. PY - 2020 JO - BMC Palliative Care DO - 10.1186/s12904-019-0508-4 UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC6964109/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_spiritual_care_core_palliative TI - Spiritual Care as a Core Component of Palliative Nursing AU - Beaussant, Y., et al. PY - 2023 JO - Journal of Hospice and Palliative Nursing UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC9983559/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_dcp3_pain_cancer_aids TI - Pain Control for People with Cancer and AIDS AU - Foley, K., et al. PY - 2006 PB - Disease Control Priorities Project UR - https://www.dcp-3.org/sites/default/files/dcp2/DCP52.pdf Y2 - 2026/03/03 ER - TY - JOUR ID - cit_global_opioids_cancer TI - Global Outlook on Palliative Care in Cancer AU - Johnson, M. J., et al. PY - 2015 JO - Evidence-Based Oncology UR - https://www.ajmc.com/view/global-outlook-on-palliative-care-in-cancer- Y2 - 2026/03/03 ER - TY - JOUR ID - cit_asco_pain_opioids TI - Pain and Opioids in Cancer Care: Benefits, Risks, and Alternatives AU - Bennett, M., Paice, J. A., & Wallace, M. PY - 2017 JO - American Society of Clinical Oncology Educational Book DO - 10.1200/EDBK_180469 UR - https://pubmed.ncbi.nlm.nih.gov/28561731/ Y2 - 2026/09/25 N1 - PMID 28561731. Am Soc Clin Oncol Educ Book 2017;37:705-713. Corrected 2026-09-25 against the PubMed record for this DOI, which the 2026-09-09 citation check had flagged (title sim 0.66, year 2018 vs 2017). Three fields were wrong: the authors were recorded as Paice and Ferrell, but Ferrell is not an author and Bennett M is first author; the year was 2018 for a 2017 volume; the title omitted its subtitle. The DOI was correct throughout. ER - TY - ELEC ID - cit_complex_pain_nosm TI - Complex Pain Management in Palliative Care AU - NOSM University PY - 2021 PB - NOSM University UR - https://www.nosm.ca/wp-content/uploads/2021/06/ComplexPain.pdf Y2 - 2026/03/03 ER - TY - ELEC ID - cit_nhpco_facts_2024 TI - NHPCO Facts and Figures 2024 AU - NHPCO PY - 2024 PB - National Alliance for Care at Home UR - https://allianceforcareathome.org/wp-content/uploads/2024/09/Facts-Figures-2024_FINAL.pdf Y2 - 2026/03/03 ER - TY - ELEC ID - cit_njsp_inequities_palliative TI - Healthcare Inequities in Palliative Care AU - Huang, Y., et al. PY - 2025 PB - NJ State Policy Lab UR - https://policylab.rutgers.edu/publication/healthcare-inequities-in-palliative-care/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_religious_good_death_review TI - Review of Religious Understandings of a Good Death AU - Journal of Hindu-Christian Studies PY - 2013 JO - Journal of Hindu-Christian Studies UR - https://digitalcommons.butler.edu/cgi/viewcontent.cgi?article=1592&context=jhcs Y2 - 2026/03/03 ER - TY - ELEC ID - cit_mypcnow_muslim_EOL TI - End-of-Life Care Considerations for Muslim Patients AU - Palliative Care Network of Wisconsin PY - 2025 PB - PCNOW Fast Facts UR - https://www.mypcnow.org/fast-fact/end-of-life-care-considerations-for-muslim-patients/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_ncbi_endoflife_bioethics TI - End-of-Life Care AU - Sachedina, A., et al. PY - 2015 PB - NCBI Bookshelf UR - https://www.ncbi.nlm.nih.gov/books/NBK500176/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_islamic_moral_values_EOL TI - Islamic Moral Values and End-of-Life Care AU - Padela, A. I., et al. PY - 2017 JO - Southern Anthropologist UR - https://southernanthro.org/wp-content/uploads/2017/12/islamic-moral-values-article.pdf Y2 - 2026/03/03 ER - TY - JOUR ID - cit_topten_muslim_palliative TI - Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims AU - Mahmood, M., et al. PY - 2022 JO - Journal of Palliative Medicine UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC9715378/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_fcna_organ_donation TI - The Moral Status of Organ Donation and Transplantation Within Islamic Law AU - Auda, J., & FCNA PY - 2024 PB - FCNA UR - https://fiqhcouncil.org/the-moral-status-of-organ-donation-and-transplantation-within-islamic-law-the-fiqh-council-of-north-america/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_brain_death_islam_review TI - Do not resuscitate, brain death, and organ transplantation: Islamic perspective AU - Chamsi-Pasha, H., Albar, M. A. PY - 2017 JO - Avicenna Journal of Medicine DO - 10.4103/2231-0770.203608 UR - https://pubmed.ncbi.nlm.nih.gov/28469984/ Y2 - 2026/10/01 N1 - PMID 28469984. PMC5398001 (open access). Avicenna J Med 2017;7(2):35-45. Corrected 2026-09-13 against the PubMed record for this DOI. Three fields were wrong: the journal was recorded as J Anaesthesiol Clin Pharmacol, which does not publish this article; Chamsi-Pasha H, the first author, was missing, leaving the second author credited alone; and the title was a paraphrase. The DOI matches the PubMed metadata. The previous URL was a Thieme abstract page that returns 404 for this DOI, so the URL now points at the PubMed record, which resolves. Network check 2026-10-01: the published integrity report records HTTP 404 from DOI resolution while PubMed matches the title and year. The DOI is retained as recorded by PubMed; successful record access does not establish successful DOI resolution. ER - TY - ELEC ID - cit_islam_organ_lifecenter TI - Islam and Organ Donation AU - LifeCenter Northwest PY - 2025 PB - LifeCenter Northwest UR - https://lcnw.org/islam-and-organ-donation/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_catholic_answers_anointing TI - Anointing of the Sick AU - Catholic Answers PY - 2025 PB - Catholic Answers UR - https://www.catholic.com/tract/anointing-of-the-sick Y2 - 2026/03/03 ER - TY - ELEC ID - cit_osv_anointing_2024 TI - The special graces offered in the Sacrament of Anointing AU - Our Sunday Visitor PY - 2024 PB - OSV UR - https://www.oursundayvisitor.com/reflections-and-teachings-on-the-churchs-pastoral-care-of-the-sick-and-dying/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_rabbi_shamash_jewish_EOL TI - Jewish End of Life Practices AU - Shamash, S. PY - 2023 PB - Memorial Society of BC UR - https://memorialsocietybc.org/jewish-end-of-life-practices-by-rabbi-susan-shamash/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_kavodvnichum_shmirah TI - Shmirah & Taharah AU - Kavod v'Nichum PY - 2022 PB - Kavod v'Nichum UR - https://kavodvnichum.org/taharah-shmirah/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_myjewishlearning_death_mourning TI - Jewish Death and Mourning 101 AU - My Jewish Learning PY - 2024 PB - My Jewish Learning UR - https://www.myjewishlearning.com/article/death-mourning-101/ Y2 - 2026/07/04 ER - TY - ELEC ID - cit_ehospice_buddhist_death TI - Buddhist perspectives on end of life care AU - ehospice PY - 2016 PB - ehospice UR - https://ehospice.com/usa_posts/buddhist-perspectives-on-end-of-life-care-a-conversation-with-phra-paisal-visalo/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_hom_locations TI - Locations AU - Hospice of Michigan PY - 2024 PB - Hospice of Michigan UR - https://www.hom.org/locations/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_hom_training_semi TI - Training Locations – Southeast Michigan AU - Hospice of Michigan PY - 2024 PB - Hospice of Michigan UR - https://www.hom.org/training-locations/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_henry_ford_hospice_contact TI - Contact Us – Henry Ford Hospice AU - Henry Ford Health PY - 2025 PB - Henry Ford Health UR - https://www.henryford.com/Services/At-Home/Hospice/Contact-Us Y2 - 2026/03/03 ER - TY - ELEC ID - cit_henry_ford_hospice TI - Hospice AU - Henry Ford Health PY - 2025 PB - Henry Ford Health UR - https://www.henryford.com/Services/At-Home/Hospice Y2 - 2026/03/03 ER - TY - ELEC ID - cit_henry_ford_palliative TI - Palliative Care AU - Henry Ford Health PY - 2025 PB - Henry Ford Health UR - https://www.henryford.com/Services/Palliative Y2 - 2026/03/03 ER - TY - ELEC ID - cit_corewell_hospice TI - Hospice Care Services AU - Corewell Health PY - 2024 PB - Corewell Health UR - https://corewellhealth.org/care-and-specialties/continuing-care/hospice-care Y2 - 2026/03/03 ER - TY - ELEC ID - cit_corewell_palliative_home TI - Palliative Care | At Home AU - Corewell Health PY - 2024 PB - Corewell Health UR - https://corewellhealth.org/care-and-specialties/continuing-care/palliative-care Y2 - 2026/03/03 ER - TY - ELEC ID - cit_compassus_mi_locations TI - Compassus Locations – Michigan AU - Compassus PY - 2025 PB - Compassus UR - https://www.compassus.com/locations/michigan/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_angela_hospice_why TI - Why Choose Angela Hospice AU - Angela Hospice PY - 2025 PB - Angela Hospice UR - https://angelahospice.org/why-choose-angela-hospice/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_ccsem_overview TI - Catholic Charities of Southeast Michigan AU - Catholic Charities USA PY - 2024 PB - Catholic Charities USA UR - https://www.catholiccharitiesusa.org/members/catholic-charities-of-southeast-michigan/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_jfs_detroit_home TI - Jewish Family Service of Metro Detroit AU - JFS of Metro Detroit PY - 2026 PB - JFS UR - https://www.jfsdetroit.org Y2 - 2026/03/03 ER - TY - ELEC ID - cit_arb_hospice_site TI - Arbor Hospice AU - Arbor Hospice PY - 2023 PB - Arbor Hospice UR - https://arborhospice.org Y2 - 2026/03/03 ER - TY - ELEC ID - cit_candc_faith_engagement TI - Faith Engagement AU - Compassion & Choices PY - 2024 PB - Compassion & Choices UR - https://compassionandchoices.org/take-action/community-engagement/faith-outreach/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_candc_accomplishments TI - Our Accomplishments AU - Compassion & Choices PY - 2020 PB - Compassion & Choices UR - https://compassionandchoices.org/resource/accomplishments-improving-care-expanding-options-end-life/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_goals_care_blog TI - Goals-of-Care Conversations: 3 Ways to Improve Your Skills AU - ACP Decisions PY - 2020 PB - ACP Decisions UR - https://www.acpdecisions.org/goals-of-care-conversations-3-ways-to-improve-your-skills/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_promedica_hospice_sem TI - ProMedica Hospice Care AU - Senior Resource Connect PY - 2024 PB - Senior Resource Connect UR - https://seniorresourceconnectmi.org/resource-directory/listing/heartland-hospice-care/ Y2 - 2026/03/03 ER - TY - JOUR ID - cit_community_interventions_palliative TI - Community-Based Interventions in People with Palliative Care Needs: An Integrative Review of Studies from 2017 to 2022 AU - IJERPH PY - 2024 JO - Int J Environ Res Public Health UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC11311615/ Y2 - 2026/03/03 ER - TY - ELEC ID - cit_42cfr_418_64 TI - 42 CFR §418.64 — Hospice Conditions of Participation: Bereavement Counseling AU - U.S. Government (CMS) PY - 2023 PB - Electronic Code of Federal Regulations (eCFR) UR - https://www.ecfr.gov/current/title-42/chapter-IV/subchapter-G/part-418/subpart-D/section-418.64 Y2 - 2026/07/06 N1 - Regulatory text requiring Medicare-certified hospices to provide bereavement counseling for at least 1 year following the death of the patient. Claim type: verified (regulatory text). ER - TY - JOUR ID - cit_wright_jama_2008 TI - Associations between End-of-Life Discussions, Patient Mental Health, Medical Care near Death, and Caregiver Bereavement Adjustment AU - Wright, A. A., Zhang, B., Ray, A., et al. PY - 2008 JO - JAMA DO - 10.1001/jama.300.14.1665 UR - https://pubmed.ncbi.nlm.nih.gov/18840840/ Y2 - 2026/07/06 N1 - JAMA 2008;300(14):1665-1673. PMID 18840840. PMC2853806. Prospective cohort, n=332 advanced cancer dyads. Primary outcomes: aggressive medical care and hospice use in the final week. Secondary outcomes: patients' mental health and caregivers' bereavement adjustment (N=202 bereaved caregivers in Table 4). Confirmed figures (CC-8b, 2026-07-10): aggressive medical care associated with caregiver MDD AOR 3.37 (95% CI 1.12-10.13; P=.03) and caregiver regret β=0.17 (P=.01); no mediation analysis run. Derived from the Dana-Farber Coping with Cancer parent cohort; cohort-overlap disclosure required when cited alongside Phelps or Balboni findings from the same dataset. ER - TY - JOUR ID - cit_dsm5tr_pgd_2023 TI - DSM-5-TR: Rationale, Process, and Overview of Changes AU - First, M. B., Clarke, D. E., Yousif, L., et al. PY - 2023 JO - Psychiatric Services DO - 10.1176/appi.ps.20220334 UR - https://pubmed.ncbi.nlm.nih.gov/36510761/ Y2 - 2026/07/06 N1 - Psychiatr Serv. 2023 Aug 1;74(8):869-875. PMID 36510761. Published by APA-affiliated authors. Confirms Prolonged Grief Disorder (PGD) was added as a new diagnostic category in DSM-5-TR (2022). Source used in lieu of psychiatry.org which blocks automated access. ER - TY - JOUR ID - cit_lundorff_pgd_2017 TI - Prevalence of Prolonged Grief Disorder in Adult Bereavement: A Systematic Review and Meta-Analysis AU - Lundorff, M., Holmgren, H., Zachariae, R., et al. PY - 2017 JO - Journal of Affective Disorders DO - 10.1016/j.jad.2017.01.030 UR - https://pubmed.ncbi.nlm.nih.gov/28167398/ Y2 - 2026/07/06 N1 - J Affect Disord. 2017 Apr 1;209:306-312. PMID 28167398. First systematic review and meta-analysis of PGD prevalence. Conclusion: approximately 1 in 10 bereaved adults meets criteria for PGD. Claim type: verified (peer-reviewed meta-analysis). ER - TY - ELEC ID - cit_42cfr_418_56 TI - 42 CFR §418.56 — Hospice Conditions of Participation: Interdisciplinary Group AU - U.S. Government (CMS) PY - 2024 PB - GovInfo (CFR-2024-title42-vol3) UR - https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-56.xml Y2 - 2026/07/07 N1 - Regulatory text specifying the composition and functions of the hospice interdisciplinary group (IDG): nurse, physician, social worker, pastoral or counseling services. Claim type: verified (regulatory text). HTTP 200 confirmed via govinfo.gov. ER - TY - ELEC ID - cit_42cfr_418_302 TI - 42 CFR §418.302 — Hospice Service Intensity Add-on (SIA) Payment AU - U.S. Government (CMS) PY - 2024 PB - GovInfo (CFR-2024-title42-vol3) UR - https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec418-302.xml Y2 - 2026/07/07 N1 - Establishes the Service Intensity Add-on (SIA) payment for RN and social worker visits in the last 7 days of life for patients on the Routine Home Care level of care. Claim type: verified (regulatory text). HTTP 200 confirmed via govinfo.gov. ER - TY - ELEC ID - cit_cms_hvldl_measure TI - Hospice Visits in the Last Days of Life (HVLDL) — CMS Hospice Quality Reporting Measure AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS UR - https://www.cms.gov/medicare/quality/hospice Y2 - 2026/07/07 N1 - Claims-based quality measure tracking whether patients received a skilled nursing or social work visit in the last 3 days of life. Measure existence confirmed at CMS hospice quality page (HTTP 200). Claim type: verified (measure existence). ER - TY - ELEC ID - cit_cms_hci_measure TI - Hospice Care Index (HCI) — CMS Claims-Based Composite Quality Measure AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS UR - https://www.cms.gov/medicare/quality/hospice Y2 - 2026/07/07 N1 - Composite claims-based measure assessing ten indicators of hospice care quality. Measure existence confirmed at CMS hospice quality page (HTTP 200). Claim type: verified (measure existence). ER - TY - ELEC ID - cit_cms_hhvbp_2025 TI - Home Health Value-Based Purchasing (HHVBP) Model — Expanded Nationwide AU - Centers for Medicare & Medicaid Services PY - 2023 PB - CMS Innovation Center UR - https://www.cms.gov/priorities/innovation/innovation-models/expanded-home-health-value-based-purchasing-model Y2 - 2026/07/07 N1 - HHVBP expanded nationwide January 2023. Payment adjustment up to ±5% based on Total Performance Score (TPS). CY2022 pre-implementation benchmarks, CY2023 performance year, CY2025 payment adjustments. Confirmed via CMS Innovation Center page (HTTP 200). Claim type: verified. ER - TY - ELEC ID - cit_42cfr_484_55 TI - 42 CFR §484.55 — Home Health Conditions of Participation: Comprehensive Assessment AU - U.S. Government (CMS) PY - 2024 PB - GovInfo (CFR-2024-title42-vol3) UR - https://www.govinfo.gov/content/pkg/CFR-2024-title42-vol3/xml/CFR-2024-title42-vol3-sec484-55.xml Y2 - 2026/07/07 N1 - Home Health Conditions of Participation requiring a comprehensive assessment of the patient's needs. HTTP 200 confirmed via govinfo.gov. Claim type: verified (regulatory text). ER - TY - JOUR ID - cit_lupu_hpm_2018 TI - The Growing Demand for Hospice and Palliative Medicine Physicians: Will the Supply Keep Up? AU - Lupu D, Quigley L, Mehfoud N, Salsberg ES PY - 2018 JO - Journal of Pain and Symptom Management UR - https://pubmed.ncbi.nlm.nih.gov/29410071/ Y2 - 2026/07/07 N1 - PMID 29410071. Workforce projections for hospice and palliative medicine physicians in the United States; confirms growing gap between supply and demand for specialist palliative care providers. Claim type: verified (published workforce analysis). ER - TY - JOUR ID - cit_support_jama_1995 TI - A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT) AU - SUPPORT Principal Investigators PY - 1995 JO - JAMA UR - https://pubmed.ncbi.nlm.nih.gov/7474243/ Y2 - 2026/08/04 N1 - PMID 7474243. JAMA 1995;274(20):1591-1598. The SUPPORT null trial: a large RCT of communication and care-planning interventions showed no statistically significant improvement in end-of-life care outcomes. Foundational null finding that shaped subsequent palliative care research. Claim type: verified (null RCT finding). No DOI: the PubMed record for this 1995 article carries no DOI, so the PMID is the canonical identifier. ER - TY - JOUR ID - cit_kavalieratos_jama_2016 TI - Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis AU - Kavalieratos D, Corbelli J, Zhang D, et al. PY - 2016 JO - JAMA DO - 10.1001/jama.2016.16840 UR - https://pubmed.ncbi.nlm.nih.gov/27893131/ Y2 - 2026/07/07 N1 - PMID 27893131. JAMA 2016;316(20):2104-2114. Systematic review and meta-analysis of 43 RCTs. Palliative care associated with significant improvements in patient QoL and symptom burden; survival benefit in some analyses. Claim type: verified (peer-reviewed systematic review and meta-analysis). ER - TY - JOUR ID - cit_lustbader_jpm_2017 TI - The Impact of a Home-Based Palliative Care Program in an Accountable Care Organization AU - Lustbader D, Mitchell N, Kirsner RS, et al. PY - 2017 JO - Journal of Palliative Medicine UR - https://pubmed.ncbi.nlm.nih.gov/27574868/ Y2 - 2026/07/07 N1 - PMID 27574868. PMC5178024. Reports that a home-based palliative care program embedded in a Medicare Shared Savings Program ACO reduced total costs and hospitalizations. 'Satisfaction' in paper body references a background Kaiser Permanente study (ref 21), not a measured outcome of the Lustbader ACO program; satisfaction clause trimmed (CC-8). Claim type: verified (published observational study). ER - TY - JOUR ID - cit_mitchell_lancet_2011 TI - Prevalence of Depression, Anxiety, and Adjustment Disorder in Oncological, Haematological, and Palliative-Care Settings: A Meta-Analysis of 94 Interview-Based Studies AU - Mitchell AJ, Chan M, Bhatti H, et al. PY - 2011 JO - Lancet Oncology DO - 10.1016/S1470-2045(11)70002-X UR - https://pubmed.ncbi.nlm.nih.gov/21251875/ Y2 - 2026/07/07 N1 - PMID 21251875. Lancet Oncol 2011;12(2):160-174. Meta-analysis of 94 studies; depression prevalence ~29% across palliative settings (interview-based DSM criteria). Foundational prevalence estimate for psychological morbidity in palliative care. Claim type: verified (peer-reviewed meta-analysis). ER - TY - JOUR ID - cit_nowels_jpsm_2023 TI - Palliative Care Interventions Effects on Psychological Distress: A Systematic Review & Meta-Analysis AU - Nowels MA, Kalra S, Duberstein PR, Coakley E, Saraiya B, George L, Kozlov E PY - 2023 JO - Journal of Pain and Symptom Management DO - 10.1016/j.jpainsymman.2023.02.001 UR - https://pubmed.ncbi.nlm.nih.gov/36764410/ Y2 - 2026/09/13 N1 - PMID 36764410. PMC11292728. J Pain Symptom Manage 2023;65(6):e691-e713. Full text confirms 'many studies had heterogeneity statistics indicating substantial to considerable heterogeneity.' Main finding: no statistically significant improvements in patient/caregiver anxiety (P=0.96), depression (P=0.25), or psychological distress (P=0.59) across 38 RCTs. CC-8 verdict: KEEP (heterogeneity language verbatim-confirmed). Claim type: verified (peer-reviewed systematic review — null and heterogeneous findings). Title and author list corrected 2026-09-13 against the PubMed record for this PMID: the stored title described a prevalence review rather than this paper's effects meta-analysis, and the stored authors (Nowels D, Kutner JS, Kilbourn K) were a different research group. The PMID, the claim drawn from it, and the null finding recorded above were all correct and are unchanged. ER - TY - JOUR ID - cit_rodin_calm_jco_2018 TI - Managing Cancer and Living Meaningfully (CALM): A Randomized Controlled Trial of a Psychological Intervention for Patients with Advanced Cancer AU - Rodin G, Lo C, Rydall A, et al. PY - 2018 JO - Journal of Clinical Oncology DO - 10.1200/JCO.2017.77.1097 UR - https://pubmed.ncbi.nlm.nih.gov/29958037/ Y2 - 2026/08/04 N1 - PMID 29958037. JCO 2018;36(23):2422-2432. CALM RCT: a brief, individual psychotherapy reduced depressive symptoms and improved death preparation in patients with advanced cancer compared to usual care. Claim type: verified (RCT positive finding). ER - TY - JOUR ID - cit_mehnert_psychooncol_2020 TI - Efficacy of the Managing Cancer and Living Meaningfully (CALM) individual psychotherapy for patients with advanced cancer: A single-blind randomized controlled trial AU - Mehnert A, Koranyi S, Philipp R, et al. PY - 2020 JO - Psycho-Oncology DO - 10.1002/pon.5521 UR - https://pubmed.ncbi.nlm.nih.gov/32803815/ Y2 - 2026/08/16 N1 - PMID 32803815. Psycho-Oncology 2020;29(11):1895-1904. N=206 randomized to CALM (n=99) or non-manualized supportive psycho-oncological counselling (n=107). Depressive symptoms fell in both arms by 6 months (P<.001), with no significant between-group difference on the primary outcome (BDI-II P=.62; PHQ-9 P=.998); secondary outcomes were likewise non-significant. Claim type: verified (null comparative finding requiring contextual reading). ER - TY - JOUR ID - cit_chochinov_lancet_2011 TI - Effect of Dignity Therapy on Distress and End-of-Life Experience in Terminally Ill Patients: A Randomised Controlled Trial AU - Chochinov HM, Kristjanson LJ, Breitbart W, et al. PY - 2011 JO - Lancet Oncology DO - 10.1016/S1470-2045(11)70153-X UR - https://pubmed.ncbi.nlm.nih.gov/21741309/ Y2 - 2026/07/07 N1 - PMID 21741309. PMC3185066. Lancet Oncol 2011;12(8):753-762. Primary quantitative endpoints null (distress, depression). Full text confirms: '67%, a heightened sense of meaning; 47%, an increased will to live' (patient-rated outcomes); 'Will to Live' is a measured outcome in Table 2. CC-8 verdict: KEEP ('meaning' and 'will to live' verbatim in full text). Claim type: verified (null primary endpoint + positive qualitative finding). ER - TY - JOUR ID - cit_breitbart_jco_2015 TI - Meaning-Centered Group Psychotherapy: An Effective Intervention for Improving Psychological Well-Being in Patients with Advanced Cancer AU - Breitbart W, Rosenfeld B, Pessin H, et al. PY - 2015 JO - Journal of Clinical Oncology DO - 10.1200/JCO.2014.57.2198 UR - https://pubmed.ncbi.nlm.nih.gov/25646186/ Y2 - 2026/07/07 N1 - PMID 25646186. PMC4334778 (restricted). JCO 2015;33(7):749-754. MCGP RCT: significant reduction in spiritual distress and hopelessness; improved spiritual well-being (FACIT-Sp primary outcome, P<.001). 'Sense of meaning' not in abstract; full text inaccessible (publisher restriction); trimmed per CC-8. Claim type: verified (RCT positive finding). ER - TY - JOUR ID - cit_kissane_pallcare_2001 TI - Demoralization Syndrome — A Relevant Psychiatric Diagnosis for Palliative Care AU - Kissane DW, Clarke DM, Street AF PY - 2001 JO - Journal of Palliative Care UR - https://pubmed.ncbi.nlm.nih.gov/11324179/ Y2 - 2026/07/07 N1 - PMID 11324179. J Palliat Care 2001;17(1):12-21. Abstract confirms: 'Hopelessness, loss of meaning, and existential distress are proposed as the core features'; also confirms 'sense of impotence or helplessness' and 'This syndrome can be differentiated from depression.' No PMC; 'without neurovegetative features' is paper body language absent from abstract; trimmed per CC-8. Claim type: verified (peer-reviewed clinical description). ER - TY - JOUR ID - cit_mitchell_jad_2010 TI - Diagnostic Validity of the Hospital Anxiety and Depression Scale (HADS) in Cancer and Palliative Settings: A Meta-Analysis AU - Mitchell AJ, Meader N, Symonds P PY - 2010 JO - Journal of Affective Disorders UR - https://pubmed.ncbi.nlm.nih.gov/20207007/ Y2 - 2026/07/07 N1 - PMID 20207007. J Affect Disord 2010;126(3):335-348. Meta-analysis of HADS diagnostic accuracy in oncology and palliative settings. HADS shows moderate sensitivity/specificity for detecting depression and anxiety. Supports HADS as screening (not diagnostic) instrument. Claim type: verified (peer-reviewed diagnostic meta-analysis). ER - TY - ELEC ID - cit_cms_cocm_pfs_2025 TI - Calendar Year (CY) 2025 Medicare Physician Fee Schedule Final Rule — Behavioral Health Integration and Caregiver Training Services AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS UR - https://www.cms.gov/newsroom/fact-sheets/calendar-year-cy-2025-medicare-physician-fee-schedule-final-rule Y2 - 2026/07/07 N1 - CMS CY2025 PFS Final Rule (CMS-1807-F). Confirms Collaborative Care Model (CoCM) billing codes and Behavioral Health Integration (BHI) CPT codes under the physician fee schedule. Also establishes Caregiver Training Services (CTS) codes G0541, G0542, G0543 for functional impairment caregiver training. HTTP 200 confirmed. Substituted for MLN909432 (404). Claim type: verified (regulatory final rule). ER - TY - ELEC ID - cit_hope_manual_v100 TI - Hospice Outcomes and Patient Evaluation (HOPE) Guidance Manual v1.00 AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS UR - https://www.cms.gov/files/document/hope-guidance-manualv100.pdf Y2 - 2026/07/07 N1 - HOPE Guidance Manual v1.00. PDF confirmed HTTP 200. Contains F3000 item (Spiritual, Religious, and Existential Concerns). Confirmed: HOPE does NOT include PHQ-2/9, GAD-7, HADS, or any standardized depression or anxiety severity instrument — HOPE captures spiritual/existential process items only. Claim type: verified (official CMS manual). ER - TY - JOUR ID - cit_rayner_pm_2011 TI - Antidepressants for the Treatment of Depression in Palliative Care: Systematic Review and Meta-Analysis AU - Rayner L, Price A, Evans A, et al. PY - 2011 JO - Palliative Medicine DO - 10.1177/0269216310380764 UR - https://pubmed.ncbi.nlm.nih.gov/20935027/ Y2 - 2026/07/07 N1 - PMID 20935027. Palliat Med 2011;25(1):36-51. Systematic review and meta-analysis finding antidepressants are more effective than placebo for depression in palliative populations, but with limited high-quality evidence and significant trial heterogeneity. Claim type: verified (peer-reviewed meta-analysis). ER - TY - ELEC ID - cit_aarp_caregiving_2020 TI - Caregiving in the United States 2020 AU - National Alliance for Caregiving and AARP Public Policy Institute PY - 2020 PB - AARP UR - https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-united-states/ Y2 - 2026/07/07 N1 - AARP/NAC 2020 report. Estimates ~53 million unpaid family caregivers in the United States. 2025 report URL not accessible; 2020 report used (HTTP 200 confirmed). 63M figure from 2025 report excluded (see excluded-citations.md). Claim type: verified (survey report, 2020 data). ER - TY - ELEC ID - cit_cms_guide_model TI - Guiding an Improved Dementia Experience (GUIDE) Model AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS Innovation Center UR - https://www.cms.gov/priorities/innovation/innovation-models/guide Y2 - 2026/07/07 N1 - GUIDE Model launched July 2024; 8-year demonstration. Provides $2,500/year respite benefit for family caregivers of dementia patients. Residential component scope for July 2026 NOT confirmed in available documentation — excluded from claims. HTTP 200 confirmed. Claim type: verified (CMS model page). ER - TY - JOUR ID - cit_dionne_odom_jco_2015 TI - Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients with Advanced Cancer: Outcomes from the ENABLE III Randomized Controlled Trial AU - Dionne-Odom JN, Azuero A, Lyons KD, et al. PY - 2015 JO - Journal of Clinical Oncology DO - 10.1200/JCO.2014.58.7824 UR - https://pubmed.ncbi.nlm.nih.gov/25800762/ Y2 - 2026/07/07 N1 - PMID 25800762. JCO 2015;33(13):1446-1452. ENABLE III RCT (122 caregivers): early vs delayed telephone coaching. Quality of life did not differ (P=.39); depression was lower in the early group at 3 months (P=.02, secondary outcome). ER - TY - JOUR ID - cit_zhang_aim_2012 TI - Health Care Costs in the Last Week of Life: Associations with End-of-Life Conversations AU - Zhang B, Wright AA, Huskamp HA, et al. PY - 2009 JO - Archives of Internal Medicine DO - 10.1001/archinternmed.2008.587 UR - https://pubmed.ncbi.nlm.nih.gov/19273778/ Y2 - 2026/07/08 N1 - PMID 19273778 (corrected from 22777380 — prior entry had wrong PMID/year). Arch Intern Med. 2009 Mar 9;169(5):480-8. DOI 10.1001/archinternmed.2008.587. Coping With Cancer cohort (n=603 with EOL data). Patients who reported EOL discussions had 35.7% lower aggregate costs in the final week ($1876 vs $2917, P=.002). Higher costs were associated with worse quality of death (partial r=-0.17, P=.006). CwC cohort — cohort-overlap disclosure required alongside Wright 2008. Claim type: verified (CwC cohort observational study). Live-verified 2026-07-08 via PubMed eUtils efetch. ER - TY - JOUR ID - cit_in_peace_jama_2025 TI - Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial AU - Sachs GA, Johnson NM, Gao S, et al. PY - 2025 JO - JAMA DO - 10.1001/jama.2024.25845 UR - https://pubmed.ncbi.nlm.nih.gov/39878993/ Y2 - 2026/07/08 N1 - PMID 39878993. JAMA. 2025 Mar 18;333(11):962-971. DOI 10.1001/jama.2024.25845. First author: Sachs GA (corrected from Patel K). Primary outcome: NPI-Q severity score — NOT MET (between-group difference at 24 months -0.24 [95% CI, -2.33 to 1.84]; P=.87 for group×time interaction). No significant differences in most secondary outcomes. One secondary outcome significant: combined ED and hospitalization events — dementia PC group 1.06 vs usual care 2.37 mean events/patient (difference -1.31 [95% CI, -1.93 to -0.69]; RR 0.45 [95% CI, 0.31 to 0.65]). Conclusion: 'dementia palliative care did not significantly improve patients' neuropsychiatric symptoms through 24 months.' Claim type: verified (null-primary RCT with one significant secondary outcome). Live-verified 2026-07-08 via PubMed eUtils efetch. ER - TY - JOUR ID - cit_morrison_jama_2021 TI - What's Wrong With Advance Care Planning? AU - Morrison RS, Meier DE, Arnold RM PY - 2021 JO - JAMA DO - 10.1001/jama.2021.16430 UR - https://pubmed.ncbi.nlm.nih.gov/34623373/ Y2 - 2026/07/07 N1 - PMID 34623373. JAMA 2021;326(16):1575-1576. Viewpoint arguing that ACP as currently practiced is not consistently associated with reduced aggressive EOL care. Contested interpretation — other evidence supports ACP benefit in specific contexts. Claim type: verified (published viewpoint — contested finding, not conclusive). ER - TY - JOUR ID - cit_yadav_healthaff_2017 TI - Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care AU - Yadav KN, Gabler NB, Cooney E, et al. PY - 2017 JO - Health Affairs DO - 10.1377/hlthaff.2017.0175 UR - https://pubmed.ncbi.nlm.nih.gov/28679811/ Y2 - 2026/07/07 N1 - PMID 28679811. Health Aff 2017;36(7):1244-1251. Nationally representative study finding 36.7% of U.S. adults have completed any type of advance directive. Substantially lower in younger and minority populations. Claim type: verified (peer-reviewed national study). ER - TY - ELEC ID - cit_cms_vbid_two_dates TI - Medicare Advantage Value-Based Insurance Design (VBID) Model — Hospice Benefit Component Termination AU - Centers for Medicare & Medicaid Services PY - 2025 PB - CMS Innovation Center UR - https://www.cms.gov/priorities/innovation/innovation-models/vbid Y2 - 2026/07/07 N1 - CMS VBID page. Two-date termination structure: (1) Hospice Benefit Component (HBC) terminated December 31, 2024; (2) entire VBID Model terminated December 31, 2025. Both dates confirmed on CMS VBID page. Claim type: verified. ER - TY - ELEC ID - cit_cms_fy2026_hospice_rule TI - Hospice Wage Index and Payment Rate Update FY2026 (CMS-1835-F) AU - Centers for Medicare & Medicaid Services PY - 2025 PB - CMS UR - https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1835-f Y2 - 2026/07/07 N1 - CMS-1835-F FY2026 final rule. Payment rate update confirmed via CMS regulations page (HTTP 200). Aggregate cap for FY2026: $35,361 per beneficiary — cross-confirmed via MedPAC March 2026 Ch10 (cit_medpac_ch10_2026). Claim type: verified (rule existence + cap amount cross-referenced). ER - TY - ELEC ID - cit_cms_fy2027_hospice_proposed TI - Hospice Wage Index and Payment Rate Update FY2027 Final Rule (CMS-1851-F) AU - Centers for Medicare & Medicaid Services PY - 2026 PB - CMS UR - https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice/hospice-regulations-and-notices/cms-1851-f Y2 - 2026/08/31 N1 - CMS-1851-F FY2027 final rule, issued July 30, 2026. CMS finalized a Medicare.gov Care Compare icon for hospices that submit no quality data or less than the required 90% under HQRP, effective no earlier than FY2028. Stable citation id retained for link compatibility after the proposal advanced to final rule. ER - TY - ELEC ID - cit_cms_hope_reporting TI - Hospice Outcomes and Patient Evaluation (HOPE) — Quality Reporting and Public Reporting Timeline AU - Centers for Medicare & Medicaid Services PY - 2025 PB - CMS UR - https://www.cms.gov/medicare/quality/hospice/hope Y2 - 2026/07/07 N1 - HOPE quality reporting page. Confirms October 2025 data collection start date. HTTP 200 confirmed. Claim type: verified. ER - TY - ELEC ID - cit_medpac_ch10_2026 TI - Report to the Congress: Medicare Payment Policy, Chapter 10 — Hospice Services (March 2026) AU - Medicare Payment Advisory Commission (MedPAC) PY - 2026 PB - MedPAC UR - https://www.medpac.gov/document/march-2026-report-to-the-congress-medicare-payment-policy/ Y2 - 2026/07/07 N1 - MedPAC March 2026 Report to Congress, Chapter 10 (Hospice). PDF downloaded and text extracted. Confirms: aggregate cap $35,361 in FY2026; ESRD patients as growing share of hospice with historically lower access (31.4% lower in 2024); concurrent care access barriers documented; payment adequacy assessment. Claim type: verified (MedPAC analysis — analyst interpretation where noted). ER - TY - JOUR ID - cit_greene_jco_cci_2025 TI - Using Natural Language Processing to Assess Goals-of-Care Conversations for Patients With Cancer AU - Greene, M.K., Broadwater, G., LeBlanc, T.W., et al. PY - 2025 JO - JCO Clinical Cancer Informatics DO - 10.1200/CCI-24-00239 UR - https://pubmed.ncbi.nlm.nih.gov/41100788/ Y2 - 2026/07/10 N1 - PMID 41100788. JCO Clin Cancer Inform. 2025;9:e2400239. Duke single-center NLP study, 2,031 patients with cancer who died 2018–2022. Family involvement most documented (75.0%); fears least (21.1%); only 5.4% had all 8 components. 73.2% received aggressive EOL care with 0/8 components; 50.3% with 7/8. HTTP 200 confirmed via PubMed. ER - TY - ELEC ID - cit_hope_v102_allitem TI - HOPE All-Item Set v1.02 (Hospice Outcomes and Patient Evaluation) AU - Centers for Medicare & Medicaid Services PY - 2025 PB - CMS UR - https://www.cms.gov/files/document/hope-v1-02-all-item.pdf Y2 - 2026/07/10 N1 - HOPE All-Item Set v1.02. Contains F3000 item: 'Spiritual/Existential Concerns' — coded 0=No/skip, 1=Yes and discussion occurred, 2=Yes but refused — with accompanying date field. HTTP 200 confirmed. ER - TY - ELEC ID - cit_cms_fy2025_hqrp_rule TI - FY 2025 Hospice Wage Index and Payment Rate Update Final Rule (CMS-1810-F) — 89 FR 64202, FR doc 2024-16910 AU - Centers for Medicare & Medicaid Services PY - 2024 PB - CMS / Federal Register UR - https://www.federalregister.gov/documents/2024/08/09/2024-16910/medicare-program-fy-2025-hospice-wage-index-and-payment-rate-update-and-hospice-quality-reporting Y2 - 2026/07/10 N1 - CMS-1810-F. Established HOPE as the mandated hospice quality reporting tool effective October 1, 2025. Public reporting of HOPE-based measures anticipated no earlier than November 2027 (FY 2028); two process measures no sooner than FY 2028, using four quarters of CY 2026 data. HTTP 200 confirmed via Federal Register (302 redirect to canonical). ER - TY - ELEC ID - cit_cms_fy2026_fact_sheet TI - FY 2026 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Final Rule (CMS-1835-F) — Fact Sheet AU - Centers for Medicare & Medicaid Services PY - 2025 PB - CMS UR - https://www.cms.gov/newsroom/fact-sheets/fy-2026-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program-requirements-final Y2 - 2026/07/10 N1 - CMS-1835-F fact sheet. FY2026 hospice payment update: 2.6% (~$750M); aggregate cap $35,361.44 per beneficiary. HTTP 200 confirmed. ER - TY - ELEC ID - cit_cms_fy2027_fact_sheet TI - Fiscal Year (FY) 2027 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program Requirements Proposed Rule (CMS-1851-P) — Fact Sheet AU - Centers for Medicare & Medicaid Services PY - 2026 PB - CMS UR - https://www.cms.gov/newsroom/fact-sheets/fiscal-year-fy-2027-hospice-wage-index-payment-rate-update-hospice-quality-reporting-program Y2 - 2026/07/10 N1 - CMS-1851-P fact sheet. Proposed FY2027 payment: 2.4% (~$785M); aggregate cap $36,210.11. Proposes icon on Medicare.gov Compare Tool identifying hospices failing HOPE reporting, effective no earlier than FY2028. HTTP 200 confirmed. ER - TY - ELEC ID - cit_capc_mi_scorecard_2024 TI - Palliative Care in Michigan — CAPC Serious Illness Scorecard State Report AU - Center to Advance Palliative Care (CAPC) PY - 2024 PB - CAPC UR - https://scorecard.capc.org/state/michigan/ Y2 - 2026/07/10 N1 - CAPC Serious Illness Scorecard Michigan state report (2024 edition; 2024 and 2025 editions carry identical figures). Hospital PC by bed size: <50 (67.4%), 50–149 (68.4%), 150–299 (86.7%), 300+ (92.6%); est. 92.1% of MI inpatients have access. 286 certified palliative-care prescribers (2.9/100K). No standalone Medicaid palliative benefit; no legislative PC advisory council. C-TAC ACT Index rank 17/51; AARP LTSS Scorecard rank 31/51. HTTP 200 confirmed. ER - TY - JOUR ID - cit_chua_gcc_jama_2025 TI - Patient-Centered Measures of Goal Concordance in Geriatrics and Palliative Care: A Scoping Review AU - Chua, I.S., Berler, A., Ritchie, C.S., et al. PY - 2025 JO - JAMA Network Open DO - 10.1001/jamanetworkopen.2025.30370 UR - https://pubmed.ncbi.nlm.nih.gov/40906477/ Y2 - 2026/07/10 N1 - PMID 40906477. JAMA Netw Open 2025;8(9):e2530370. Scoping review: 4,801 articles screened; 63 studies; 44 unique goal-concordance measures. Finding: 'a criterion standard for measurement is lacking.' HTTP 200 confirmed. ER - TY - JOUR ID - cit_auriemma_gcc_jama_2025 TI - Measuring Goal-Concordant Care Using Electronic Clinical Notes AU - Auriemma, C.L., Song, A., Courtright, K.R., et al. PY - 2025 JO - JAMA Network Open DO - 10.1001/jamanetworkopen.2025.18967 UR - https://pubmed.ncbi.nlm.nih.gov/40608339/ Y2 - 2026/07/10 N1 - PMID 40608339. JAMA Netw Open 2025;8(7):e2518967. EHR clinical-notes method for GCC classification; inter-rater agreement κ=0.92 (95% CI, 0.86–0.99). 109 seriously ill adults, 3 urban hospitals, University of Pennsylvania health system. HTTP 200 confirmed. ER - TY - JOUR ID - cit_heyland_canhelp_pallmed_2010 TI - The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire AU - Heyland, D.K., Cook, D.J., Rocker, G.M., et al. PY - 2010 JO - Palliative Medicine DO - 10.1177/0269216310373168 UR - https://pubmed.ncbi.nlm.nih.gov/20605850/ Y2 - 2026/07/10 N1 - PMID 20605850. Palliat Med 2010;24(7):682-95. CANHELP validation study (N=361 patients, 193 caregivers). Instrument measures satisfaction with end-of-life care — NOT goal concordance. Cronbach's α 0.69–0.94; correlation with GRS 0.49 (patient) and 0.63 (caregiver). HTTP 200 confirmed. ER - TY - JOUR ID - cit_volandes_acp_jama_2025 TI - An Intervention to Increase Advance Care Planning Among Older Adults With Advanced Cancer: A Randomized Clinical Trial AU - Volandes, A.E., Chang, Y., Lakin, J.R., et al. PY - 2025 JO - JAMA Network Open DO - 10.1001/jamanetworkopen.2025.9150 UR - https://pubmed.ncbi.nlm.nih.gov/40343696/ Y2 - 2026/07/10 N1 - PMID 40343696. JAMA Netw Open 2025;8(5):e259150. NCT03609177 (ACP PEACE). Stepped-wedge cluster RCT, 29 oncology practices, N=13,800 patients ≥65 with advanced cancer, 3 US health systems. Primary outcome (POSITIVE): ACP documentation +6.8pp (25.3% vs 20.8%; P<.001). Palliative care enrollment: 9.6% vs 9.5% (not significant). Hospice enrollment: 5.4% vs 5.3% (not significant). HTTP 200 confirmed. ER - TY - ELEC ID - cit_nct06307535_mcpc TI - Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C) — ClinicalTrials.gov NCT06307535 AU - Applebaum, A.J., et al. (Mount Sinai) PY - 2024 PB - ClinicalTrials.gov UR - https://clinicaltrials.gov/study/NCT06307535 Y2 - 2026/07/10 N1 - NCT06307535. Active multi-site RCT; planned N=200 caregivers of stage III/IV solid tumor patients. Sites: Mount Sinai, Sylvester/Miami, community. Primary outcomes: personal meaning (MLQ) and spiritual well-being (FACIT-Sp). Active comparator: Supportive Psychotherapy for Cancer Caregivers. HTTP 200 confirmed. ER - TY - JOUR ID - cit_arch_valued_living_2026 TI - Valued Living intervention to increase advance care planning and well-being in depressed and anxious adults with advanced cancer: Randomized trial in community oncology clinics AU - Arch JJ, Mitchell JL, Schmiege SJ, et al. PY - 2026 JO - Cancer DO - 10.1002/cncr.70349 UR - https://pubmed.ncbi.nlm.nih.gov/41848105/ Y2 - 2026/07/10 N1 - PMID 41848105. N=240 adults with advanced solid tumor + significant depression/anxiety. 5 videoconference sessions delivered by social workers. PRIMARY: ACP steps completed. SECONDARY: spiritual well-being (FACIT-Sp). ER - TY - JOUR ID - cit_neo_enable_hf_2026 TI - Feasibility, acceptability and efficacy of a nurse-led palliative care health coaching intervention (Educate, Nurture, Advise before Life Ends) for patients with heart failure and their caregivers in Singapore: a randomised wait-list controlled pilot study of health coaching in Asian heart failure AU - Neo, S.H., et al. PY - 2026 JO - BMJ Open DO - 10.1136/bmjopen-2025-113749 UR - https://pubmed.ncbi.nlm.nih.gov/42152453/ Y2 - 2026/08/04 N1 - PMID 42152453. Pilot RCT; heart failure population. PRIMARY: KCCQ at 6 months. SECONDARY: FACIT-Sp (spiritual well-being); caregiver QOL (null at 3 and 6 months). ER - TY - JOUR ID - cit_iturri_music_sr_2026 TI - Music therapy interventions on symptom management in adults with advanced cancer - multisession longitudinal impact: systematic review AU - Iturri A, Najún M, Vázquez N, Alonso-Babarro A PY - 2026 JO - BMJ Supportive & Palliative Care DO - 10.1136/spcare-2025-005913 UR - https://pubmed.ncbi.nlm.nih.gov/41922094/ Y2 - 2026/08/16 N1 - PMID 41922094. Systematic review (PROSPERO CRD42024613493) of six controlled trials, 438 participants, narrative synthesis. Global quality of life showed no significant change; spiritual well-being (P=0.04) and ego-integrity (P<.01) improved, all six trials reported reduced anxiety, and sleep quality improved (P=0.006 to P=0.012). ER - TY - JOUR ID - cit_rodrigues_mil_sr_2026 TI - Meaning-in-Life Centered Interventions in Palliative Care: A Systematic Review AU - Rodrigues-Fouto, A., Reis-Pina, P. PY - 2026 JO - Palliative Medicine UR - https://pubmed.ncbi.nlm.nih.gov/41762175/ Y2 - 2026/07/10 N1 - PMID 41762175. 8 studies reviewed; 7/8 high risk of bias. Conclusion: evidence insufficient to recommend MIL-centered interventions for routine clinical practice. ER - TY - JOUR ID - cit_creech_mayo_chaplaincy_2026 TI - The Efficacy of Spiritual Care Intervention on Readmissions of Hospitalized Patients Receiving Palliative Care: A Quasi-Experimental Pilot Study Proposal AU - Creech GG, Bieck RL, Bolint BX, et al. PY - 2026 JO - American Journal of Hospice and Palliative Care DO - 10.1177/10499091261465367 UR - https://pubmed.ncbi.nlm.nih.gov/42381114/ Y2 - 2026/07/10 N1 - PMID 42381114. Quasi-experimental N=200; 30-day readmission primary endpoint. Published protocol; no efficacy results available as of 2026-07-10. ER - TY - JOUR ID - cit_agaronnik_gpt4o_acp_2025 TI - Large Language Models to Identify Advance Care Planning in Patients With Advanced Cancer AU - Agaronnik ND, Davis J, Manz CR, et al. PY - 2025 JO - Journal of Pain and Symptom Management DO - 10.1016/j.jpainsymman.2024.11.016 UR - https://pubmed.ncbi.nlm.nih.gov/39586429/ Y2 - 2026/07/10 N1 - PMID 39586429. N=60 patients; single institution retrospective. Sensitivity 0.85–1.0; specificity 0.80–0.91 across ACP domains. Hallucination index <0.5 (low). Limitations: small N, single-site, retrospective. ER - TY - JOUR ID - cit_sorin_llm_hospice_2026 TI - Alignment of Large Language Models with Medical and Hospice Ethical Principles in End-of-Life Dilemmas AU - Sorin, V., et al. PY - 2026 JO - Digital Health DO - 10.1177/20552076261428395 UR - https://pubmed.ncbi.nlm.nih.gov/41767866/ Y2 - 2026/07/10 N1 - PMID 41767866. Structured stress test of 14 LLMs on hospice/medical ethical dilemmas. 7/14 endorsed ethically impermissible actions; 6.3% of outputs endorsed involuntary hospice transfer. Authors note findings do not generalize to routine clinical use. ER - TY - JOUR ID - cit_tan_ai_acp_sr_2026 TI - Artificial Intelligence in Advance Care Planning: A Scoping Review AU - Tan, M., et al. PY - 2026 JO - Artificial Intelligence in Medicine DO - 10.1016/j.artmed.2025.103315 UR - https://pubmed.ncbi.nlm.nih.gov/41352175/ Y2 - 2026/07/10 N1 - PMID 41352175. 42 studies reviewed. Key finding: generative AI use 'limited'; rule-based NLP dominates; no RCTs of AI-delivered ACP conversations with patients identified. ER - TY - JOUR ID - cit_peerawong_ai_palliative_sr_2026 TI - Exploring the application of Artificial Intelligence in palliative care and its practical, technical and ethical considerations: a scoping review AU - Peerawong, T., et al. PY - 2026 JO - BMC Palliative Care DO - 10.1186/s12904-026-02191-0 UR - https://pubmed.ncbi.nlm.nih.gov/42366389/ Y2 - 2026/07/10 N1 - PMID 42366389. 15 studies reviewed. Evidence described as 'geographically skewed, methodologically immature, and ethically underdeveloped.' Only 2/15 studies measured QOL directly. ER - TY - JOUR ID - cit_patel_ai_palliative_tips_2026 TI - Top Ten Tips Palliative Care Clinicians Should Know About Artificial Intelligence AU - Patel, P., et al. (MSK, MGH, Mayo Clinic, Johns Hopkins) PY - 2026 JO - Journal of Palliative Medicine DO - 10.1177/10966218251366117 UR - https://pubmed.ncbi.nlm.nih.gov/40824746/ Y2 - 2026/07/10 N1 - PMID 40824746. Interdisciplinary guidance document from four major academic centers. Not a formal society position statement. ER - TY - JOUR ID - cit_idf_dar_guidelines_2021 TI - Diabetes and Ramadan: Practical guidelines 2021 AU - Hassanein, M., Afandi, B., Yakoob Ahmedani, M., et al. PY - 2022 JO - Diabetes Research and Clinical Practice DO - 10.1016/j.diabres.2021.109185 UR - https://pubmed.ncbi.nlm.nih.gov/35016991/ Y2 - 2026/07/11 N1 - PMID 35016991. IDF + DAR International Alliance update covering T1D fasting, elderly/pregnant management, and macro/microvascular risk stratification. ER - TY - JOUR ID - cit_idf_dar_guidelines_2017 TI - Diabetes and Ramadan: Practical guidelines AU - Hassanein, M., Al-Arouj, M., Hamdy, O., et al. PY - 2017 JO - Diabetes Research and Clinical Practice DO - 10.1016/j.diabres.2017.03.003 UR - https://pubmed.ncbi.nlm.nih.gov/28347497/ Y2 - 2026/07/11 N1 - PMID 28347497. Original IDF-DAR guidelines: exemptions exist for serious medical conditions but many patients fast against medical advice; covers risk stratification and medication adjustment. ER - TY - JOUR ID - cit_epidiar_salti_2004 TI - A Population-Based Study of Diabetes and Its Characteristics During the Fasting Month of Ramadan in 13 Countries: Results of the EPIDIAR Study AU - Salti, I., Bénard, E., Detournay, B., et al. PY - 2004 JO - Diabetes Care DO - 10.2337/diacare.27.10.2306 UR - https://pubmed.ncbi.nlm.nih.gov/15451892/ Y2 - 2026/07/11 N1 - PMID 15451892. 12,243 patients across 13 countries. Severe hypoglycemia significantly more frequent during Ramadan (T1D 0.14 vs 0.03 episodes/month, P=.0174); under 50% of patients adjusted medication dose. ER - TY - JOUR ID - cit_loh_ramadan_t2d_treatment_2020 TI - Treatment Options for Patients with Type 2 Diabetes Mellitus during the Fasting Month of Ramadan AU - Loh, H. H., Kamaruddin, N. A. PY - 2020 JO - Annals of the Academy of Medicine, Singapore UR - https://pubmed.ncbi.nlm.nih.gov/33000110/ Y2 - 2026/07/11 N1 - PMID 33000110. Sulfonylureas (esp. glibenclamide) carry higher hypoglycemia risk during Ramadan fasting and may need dose/timing adjustment; insulin regimens need individualization. ER - TY - JOUR ID - cit_alguwaihes_idfdar_validation_2025 TI - Assessment of the IDF-DAR Fasting Risk Assessment Tool to Predict Type 1 Diabetes-Related Complications During Ramadan in a Real-World Setting AU - Alguwaihes, A. M., Hassanein, M., Alzaman, N., et al. PY - 2025 JO - Clinical Medicine Insights: Endocrinology and Diabetes DO - 10.1177/11795514251376888 UR - https://pubmed.ncbi.nlm.nih.gov/41001082/ Y2 - 2026/07/11 N1 - PMID 41001082. n=963 adult T1D patients, Saudi Arabia. IDF-DAR 2021 risk calculator predicts acute complications; pre-Ramadan education associated with 47% lower ER-visit odds (OR 0.53, 95% CI 0.34-0.82, P=.005). ER - TY - JOUR ID - cit_pbm_multimodal_meta_2019 TI - Multimodal Patient Blood Management Program Based on a Three-pillar Strategy: A Systematic Review and Meta-analysis AU - Althoff, F. C., Neb, H., et al. PY - 2019 JO - Annals of Surgery DO - 10.1097/SLA.0000000000003095 UR - https://pubmed.ncbi.nlm.nih.gov/30418206/ Y2 - 2026/07/11 N1 - PMID 30418206. Meta-analysis of 17 studies / 235,779 surgical patients (PROSPERO CRD42017079217): three-pillar PBM programs reduced transfusion rates by 39% (RR 0.61), RBC units per patient by 0.43, hospital length of stay, total complications (RR 0.80), and mortality (RR 0.89, P=.02). ER - TY - JOUR ID - cit_jw_cardiac_surgery_outcomes_pattakos_2012 TI - Outcome of Patients Who Refuse Transfusion After Cardiac Surgery: A Natural Experiment With Severe Blood Conservation AU - Pattakos, G., Koch, C. G., et al. PY - 2012 JO - Archives of Internal Medicine DO - 10.1001/archinternmed.2012.2449 UR - https://pubmed.ncbi.nlm.nih.gov/22751620/ Y2 - 2026/07/11 N1 - PMID 22751620. Cleveland Clinic cohort, 322 Jehovah's Witnesses vs. 87,453 non-Witnesses undergoing cardiac surgery (1983-2011); propensity-matched Witnesses (who refused transfusion) had fewer acute complications, shorter ICU/hospital stay, better 1-year survival (95% vs 89%, P=.007), and statistically similar 20-year survival (34% vs 32%) versus matched transfused patients. ER - TY - JOUR ID - cit_cell_salvage_cochrane_carless_2010 TI - Cell Salvage for Minimising Perioperative Allogeneic Blood Transfusion AU - Carless, P. A., Henry, D. A., et al. PY - 2010 JO - Cochrane Database of Systematic Reviews DO - 10.1002/14651858.CD001888.pub4 UR - https://pubmed.ncbi.nlm.nih.gov/20393932/ Y2 - 2026/07/11 N1 - PMID 20393932 (Cochrane review, 75 RCTs). Intraoperative cell salvage reduced allogeneic RBC transfusion exposure by a relative 38% (RR 0.62) and saved an average 0.68 units of allogeneic RBC per patient, with no adverse impact on clinical outcomes, in elective cardiac and orthopedic surgery. ER - TY - JOUR ID - cit_epo_iv_iron_perioperative_lin_2013 TI - Efficacy and Safety of Erythropoietin and Intravenous Iron in Perioperative Blood Management: A Systematic Review AU - Lin, D. M., Lin, E. S., Tran, M. H. PY - 2013 JO - Transfusion Medicine Reviews DO - 10.1016/j.tmrv.2013.09.001 UR - https://pubmed.ncbi.nlm.nih.gov/24135037/ Y2 - 2026/07/11 N1 - PMID 24135037. Systematic review of 24 RCTs + 15 nonrandomized studies: a short preoperative course of erythropoietin, or a single dose of EPO plus IV iron, significantly reduced perioperative transfusion rates (number needed to treat to avoid any transfusion: 3-6); preoperative IV iron gave earlier/more robust hemoglobin recovery than oral iron in iron-deficiency anemia. ER - TY - JOUR ID - cit_preop_iv_iron_nonanemic_toledo_2025 TI - Preoperative Iron Supplementation in Non-anemic Patients Undergoing Major Surgery: A Systematic Review and Meta-analysis AU - Toledo, F. V., De Carli, D., et al. PY - 2025 JO - Brazilian Journal of Anesthesiology (Elsevier) DO - 10.1016/j.bjane.2025.844618 UR - https://pubmed.ncbi.nlm.nih.gov/40189047/ Y2 - 2026/07/11 N1 - PMID 40189047 (PROSPERO CRD42024552559). Meta-analysis of 9 RCTs / 1,162 non-anemic major-surgery patients: preoperative IV iron supplementation significantly lowered the odds of receiving a blood transfusion (OR 0.54, 95% CI 0.40-0.75, P<0.001), particularly in cardiac procedures. ER - TY - JOUR ID - cit_blackhall_ethnicity_autonomy_1995 TI - Ethnicity and attitudes toward patient autonomy AU - Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., Azen, S. PY - 1995 JO - JAMA UR - https://pubmed.ncbi.nlm.nih.gov/7650806/ Y2 - 2026/07/11 N1 - PMID 7650806. Survey of 800 elderly adults across four ethnic groups (LA County): Korean-American (47%) and Mexican-American (65%) respondents were significantly less likely than European-American (87%) and African-American (88%) respondents to believe a patient should be told a metastatic-cancer diagnosis, tending instead toward family-centered decision models. The authors' own recommendation: ask each patient whether they wish to receive information and make decisions, or prefer their family handle it. Ethnicity study, not a religion study — see careFrameworkClaims scope note. ER - TY - JOUR ID - cit_karliner_interpreters_2007 TI - Do professional interpreters improve clinical care for patients with limited English proficiency? A systematic review of the literature AU - Karliner, L. S., Jacobs, E. A., Chen, A. H., Mutha, S. PY - 2007 JO - Health Services Research DO - 10.1111/j.1475-6773.2006.00629.x UR - https://pubmed.ncbi.nlm.nih.gov/17362215/ Y2 - 2026/07/11 N1 - PMID 17362215. Systematic review (28 studies): professional medical interpreters improve communication (fewer errors, better comprehension), utilization, clinical outcomes, and satisfaction for limited-English-proficiency patients versus ad hoc interpreters, raising care quality toward parity with patients facing no language barrier. ER - TY - JOUR ID - cit_kleinman_explanatory_models_1978 TI - Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research AU - Kleinman, A., Eisenberg, L., Good, B. PY - 1978 JO - Annals of Internal Medicine DO - 10.7326/0003-4819-88-2-251 UR - https://pubmed.ncbi.nlm.nih.gov/626456/ Y2 - 2026/07/11 N1 - PMID 626456. Foundational framework paper: distinguishes disease (biomedical process) from illness (the patient's culturally shaped experience of it) and introduces eliciting the patient's explanatory model as a translatable clinical strategy. The weekly citation check reports title drift on the DOI side (sim 0.43) because Crossref carries the short form 'Culture, Illness, and Care' for this 1978 article. The title stored here is the full one and matches PubMed exactly. Do not shorten it to satisfy the DOI comparison. ER - TY - JOUR ID - cit_luanerfe_lep_perioperative_2022 TI - Limited English Proficiency and Perioperative Patient-Centered Outcomes: A Systematic Review AU - Luan-Erfe, B. M., Erfe, J. M., DeCaria, B., Okocha, O. PY - 2022 JO - Anesthesia and Analgesia DO - 10.1213/ANE.0000000000006159 UR - https://pubmed.ncbi.nlm.nih.gov/36066429/ Y2 - 2026/07/11 N1 - PMID 36066429. Systematic review of 10 high-quality studies: strong evidence that professional medical interpreter use or a language-concordant provider improves procedural-consent understanding for LEP patients; LEP patients are at risk of poorer postoperative pain control and poorer understanding of discharge instructions. ER - TY - JOUR ID - cit_boylen_interpreters_pediatric_2020 TI - Impact of professional interpreters on outcomes for hospitalized children from migrant and refugee families with limited English proficiency: a systematic review AU - Boylen, S., Cherian, S., Gill, F. J., Leslie, G. D., Wilson, S. PY - 2020 JO - JBI Evidence Synthesis DO - 10.11124/JBISRIR-D-19-00300 UR - https://pubmed.ncbi.nlm.nih.gov/32813387/ Y2 - 2026/07/11 N1 - PMID 32813387. Systematic review (6 articles, 1,813 families): ad hoc or no interpreters are inferior to professional interpreters of any mode for hospitalized children of migrant/refugee LEP families — greater satisfaction with care, shorter ED throughput with in-person interpreters, better diagnosis understanding with video vs phone. ER - TY - JOUR ID - cit_stacey_decision_aids_cochrane_2017 TI - Decision aids for people facing health treatment or screening decisions AU - Stacey D, Lewis KB, Smith M, et al. PY - 2024 JO - Cochrane Database of Systematic Reviews DO - 10.1002/14651858.CD001431.pub6 UR - https://pubmed.ncbi.nlm.nih.gov/38284415/ Y2 - 2026/09/08 N1 - PMID 38284415; PMCID PMC10823577. 2024 update of the Cochrane decision-aid review, explicitly updating the 2017 edition previously stored under this stable citation id. Total: 209 randomized studies, 107,698 participants, 71 decisions. Moderate-certainty evidence: informed values-choice congruence RR 1.75 (95% CI 1.44–2.13; 21 studies, 9,377 participants). High-certainty evidence: knowledge MD 11.90/100 (95% CI 10.60–13.19; 107 studies, 25,492), accurate risk perceptions RR 1.94 (95% CI 1.61–2.34; 25 studies, 7,796), and reductions in decisional conflict and passive decision-making. No difference in decision regret. Stable citation id retained so existing claim and permalink references do not break. ER - TY - JOUR ID - cit_tervalon_cultural_humility_1998 TI - Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education AU - Tervalon, M., Murray-García, J. PY - 1998 JO - Journal of Health Care for the Poor and Underserved DO - 10.1353/hpu.2010.0233 UR - https://pubmed.ncbi.nlm.nih.gov/10073197/ Y2 - 2026/07/11 N1 - PMID 10073197. The source of the cultural-humility concept: a lifelong commitment to self-evaluation and self-critique, redressing power imbalances in the patient-physician dynamic, and nonpaternalistic partnerships with communities — proposed as a more suitable training goal than 'detached mastery' models of competence. Definitional/framework source, not an outcomes trial. ER - TY - JOUR ID - cit_searight_eol_cultural_diversity_2005 TI - Cultural diversity at the end of life: issues and guidelines for family physicians AU - Searight, H. R., Gafford, J. PY - 2005 JO - American Family Physician UR - https://pubmed.ncbi.nlm.nih.gov/15712625/ Y2 - 2026/07/11 N1 - PMID 15712625. Review identifying three culturally varying dimensions of end-of-life treatment: communication of 'bad news,' locus of decision-making (patient- vs family-/physician-based), and attitudes toward advance directives — with lower advance-directive completion among specific ethnic groups linked to health-system distrust and disparities. ER - TY - JOUR ID - cit_horvat_cultural_competence_cochrane_2014 TI - Cultural competence education for health professionals AU - Horvat, L., Horey, D., Romios, P., Kis-Rigo, J. PY - 2014 JO - Cochrane Database of Systematic Reviews DO - 10.1002/14651858.CD009405.pub2 UR - https://pubmed.ncbi.nlm.nih.gov/24793445/ Y2 - 2026/07/11 N1 - PMID 24793445. Cochrane review (5 RCTs, 337 health professionals / 8,400 patients): cultural-competence education showed positive but low-quality evidence for improved involvement in care among culturally and linguistically diverse patients; treatment-outcome evidence was null or absent, and the review concludes evidence is insufficient for generalisable conclusions. Cited for this honest mixed result, not as proof of effectiveness. ER - TY - JOUR ID - cit_leone_collagen_islam_systematic_review_2026 TI - Animal-derived collagen and Islamic religious prescriptions: a systematic review AU - Leone, R., Migliore, A., Ricciardi, W. PY - 2026 JO - Clinical Rheumatology DO - 10.1007/s10067-026-08247-z UR - https://pubmed.ncbi.nlm.nih.gov/42348129/ Y2 - 2026/07/11 N1 - PMID 42348129. PRISMA 2020 systematic review, 56 studies from 1,035 records: collagen is predominantly porcine (~41% of global production) and a ubiquitous pharmaceutical/biomedical excipient affecting an estimated 1.9 billion Muslim patients; across mainstream Sunni jurisprudence porcine collagen is classed haram regardless of processing, bovine conditionally permissible with zabiha slaughter, fish collagen broadly accepted. ER - TY - JOUR ID - cit_taylor_culturally_sensitive_prescribing_2021 TI - Culturally sensitive prescribing of common symptom management drugs AU - Taylor, B. PY - 2021 JO - BMJ Supportive & Palliative Care DO - 10.1136/bmjspcare-2020-002682 UR - https://pubmed.ncbi.nlm.nih.gov/33436371/ Y2 - 2026/07/11 N1 - PMID 33436371. Review of Summary of Product Characteristics for 18 common palliative medicines plus contact with 39 manufacturers: animal products used in production were not specified on labeling, gelatine was 'most often, but not always, bovine,' and excipient source varied between manufacturers and changed over time — it was 'not possible to provide definitive information,' placing the onus on prescribers to enquire. ER - TY - JOUR ID - cit_sattar_patient_physician_attitudes_2004 TI - Patient and physician attitudes to using medications with religiously forbidden ingredients AU - Sattar, S. P., Ahmed, M. S., Madison, J., Olsen, D. R., Bhatia, S. C., et al. PY - 2004 JO - Annals of Pharmacotherapy DO - 10.1345/aph.1E001 UR - https://pubmed.ncbi.nlm.nih.gov/15479773/ Y2 - 2026/07/11 N1 - PMID 15479773. Survey of 100 patients + 100 physicians: over 1,000 medications contain pork/beef-derived gelatin or stearic acid; 84% of patients were unaware, 63% wanted their physician to inform them, and ~70% of physicians were themselves unaware yet thought disclosure important. ER - TY - JOUR ID - cit_mujahid_lmwh_cultural_audit_2026 TI - A Regional Audit on Venous Thromboembolism (VTE) Prophylaxis Compliance and Cultural Considerations in Prescribing Porcine-Derived Low-Molecular-Weight Heparins AU - Mujahid, M., Ahmed, H., Ahmad, S., Mujahid, I., Ur-Rehman, J., et al. PY - 2026 JO - Cureus DO - 10.7759/cureus.100617 UR - https://pubmed.ncbi.nlm.nih.gov/41631073/ Y2 - 2026/07/11 N1 - PMID 41631073. Two-cycle audit across two NHS hospitals: 64% (n=50) of clinicians were unaware LMWHs are animal-derived and 94% did not inform patients; 98% (n=137) of patients prioritised medication aligned with their beliefs and nearly half would decline porcine-derived prophylaxis even to prevent serious illness. ER - TY - JOUR ID - cit_nazar_islamic_reasoning_medicines_2025 TI - Islamic reasoning and the use of prohibited medicines among Muslim patients: a qualitative study AU - Nazar, Z., Ali, B., Rutter, P., Barnes, N. PY - 2025 JO - International Journal of Clinical Pharmacy DO - 10.1007/s11096-025-02046-3 UR - https://pubmed.ncbi.nlm.nih.gov/41219623/ Y2 - 2026/07/11 N1 - PMID 41219623. Reflexive thematic analysis of 13 Muslim adults: participants applied necessity (darura) and biotransformation (istihala) flexibly — accepting haram-ingredient medicines for serious illness but avoiding them for minor conditions, using workarounds like opening gelatine capsules — and valued transparent excipient disclosure, shared decision-making, and clinician religious literacy. ER - TY - JOUR ID - cit_silk_animal_content_prescribing_2023 TI - Are vegans being overlooked in our prescribing practices: An orthopaedic perspective from Bristol, United Kingdom AU - Silk, G., Vetharajan, N., Blohm, A., Teeling, F., Keen, K., et al. PY - 2023 JO - Journal of Clinical Orthopaedics and Trauma DO - 10.1016/j.jcot.2023.102250 UR - https://pubmed.ncbi.nlm.nih.gov/37817761/ Y2 - 2026/07/11 N1 - PMID 37817761. Review of animal-origin content in common medicines: 'All unfractionated or standard heparin is porcine in origin; Fondaparinux is a simple alternative.' Also documents that manufacturers often cannot guarantee or differentiate animal-derived sources, which change between suppliers. ER - TY - JOUR ID - cit_patten_animal_derived_ethics_heparin_2026 TI - When Pigs Fly into Medicine: Navigating Ethical Challenges Posed by Animal-Derived Medical Products AU - Patten, C., Morales, G. PY - 2026 JO - The Journal of Clinical Ethics DO - 10.1086/739014 UR - https://pubmed.ncbi.nlm.nih.gov/41698334/ Y2 - 2026/07/11 N1 - PMID 41698334. Ethics case of a 19-year-old Muslim patient on lifesaving LDL apheresis with porcine-derived heparin: frames the disclosure-vs-autonomy dilemma and notes Islamic bioethics (and other faith traditions) may permit prohibited substances in lifesaving situations, though interpretations vary widely — arguing for cultural humility over generalization. ER - TY - JOUR ID - cit_muhamad_fondaparinux_muslim_women_2022 TI - Safety and effectiveness of fondaparinux as a postpartum thromboprophylaxis during puerperium among muslim women: A single centre prospective study AU - Muhamad, N., Abu, M. A., Kalok, A. H., Shafiee, M. N., Shah, S. A., Ismail, N. A. M. PY - 2022 JO - Frontiers in Pharmacology DO - 10.3389/fphar.2022.887020 UR - https://pubmed.ncbi.nlm.nih.gov/36210844/ Y2 - 2026/07/11 N1 - PMID 36210844. Prospective single-arm study of 60 Muslim women motivated by LMWH's porcine content reducing uptake in religious groups: fondaparinux 2.5 mg daily for 10 days produced no VTE and no major bleeding, supporting it as a safe alternative thromboprophylaxis. ER - TY - JOUR ID - cit_kermansaravi_ramadan_bariatric_delphi_2021 TI - Religious Fasting of Muslim Patients After Metabolic and Bariatric Surgery: a Modified Delphi Consensus AU - Kermansaravi, M., Omar, I., Mahawar, K., et al. PY - 2021 JO - Obesity Surgery DO - 10.1007/s11695-021-05724-z UR - https://pubmed.ncbi.nlm.nih.gov/34617207/ Y2 - 2026/07/11 N1 - PMID 34617207. Modified Delphi consensus of 61 bariatric surgeons across 24 countries (consensus on 40/45 statements): 100% held that post-surgical fasting needs special nutritional support and must be coordinated among surgeon, nutritionist, and patient; 70% recommended delaying Ramadan fasting 6-12 months after malabsorptive procedures — a documented religious-fasting vs. therapeutic-nutrition conflict. ER - TY - JOUR ID - cit_hartley_multicultural_catering_2002 TI - Investigation into the suitability and accessibility of catering practices to inpatients from minority ethnic groups in Brent AU - Hartley, B. A., Hamid, F. PY - 2002 JO - Journal of Human Nutrition and Dietetics DO - 10.1046/j.1365-277x.2002.00364.x UR - https://pubmed.ncbi.nlm.nih.gov/12028516/ Y2 - 2026/07/11 N1 - PMID 12028516. Five-site inpatient survey (98 patients across Hindu, Muslim, Caribbean, Jewish groups): access to multicultural meals varied by site, the African Muslim group was least satisfied with halal provision, and only 47% of nurses could accurately answer multicultural dietary-competency questions. Descriptive/observational — documents unmet need and satisfaction gaps, not a controlled improvement effect. ER - TY - JOUR ID - cit_esposito_gender_concordance_2026 TI - Gender concordance and its association with communication and the doctor-patient relationship: a systematic review AU - Esposito, C. M., Bizzotto, C., Gualtierotti, R., Delvecchio, G., Bressi, C., Brambilla, P. PY - 2026 JO - Health Policy DO - 10.1016/j.healthpol.2026.105649 UR - https://pubmed.ncbi.nlm.nih.gov/42107345/ Y2 - 2026/07/11 N1 - PMID 42107345. PRISMA systematic review, 27 studies: gender concordance between doctor and patient is generally associated with better communication and trust, especially for women and particularly on sensitive health issues; patient satisfaction findings were mixed. Preferences for provider gender were more pronounced in women. ER - TY - JOUR ID - cit_sun_physician_sex_cardiac_2021 TI - Impact of surgeon and anaesthesiologist sex on patient outcomes after cardiac surgery: a population-based study AU - Sun, L. Y., Boet, S., Chan, V., Lee, D. S., Mesana, T. G., et al. PY - 2021 JO - BMJ Open DO - 10.1136/bmjopen-2021-051192 UR - https://pubmed.ncbi.nlm.nih.gov/34433609/ Y2 - 2026/07/11 N1 - PMID 34433609. Population-based cohort of 79,862 cardiac-surgery patients (Ontario): physician-team sex discordance was NOT associated with overall mortality or length of stay; only a small length-of-stay signal appeared for isolated CABG with all-male teams. The honest counterweight — concordance is not a demonstrated hard-outcome benefit. ER - TY - JOUR ID - cit_zhao_concordance_surgery_review_2019 TI - Race, gender, and language concordance in the care of surgical patients: A systematic review AU - Zhao, C., Dowzicky, P., Colbert, L., Roberts, S., Kelz, R. R. PY - 2019 JO - Surgery DO - 10.1016/j.surg.2019.06.012 UR - https://pubmed.ncbi.nlm.nih.gov/31375322/ Y2 - 2026/07/11 N1 - PMID 31375322. Systematic review of 16 studies: most patients preferred a provider with a similar background, but most prioritized culturally, technically, and clinically competent providers over concordance; concordance had no effect on adherence to recommendations, and effects on communication and quality were mixed (gender concordance improved quality in 2/3 studies). ER - TY - JOUR ID - cit_vahabi_muslim_cervical_screening_2016 TI - Muslim immigrant women's views on cervical cancer screening and HPV self-sampling in Ontario, Canada AU - Vahabi, M., Lofters, A. PY - 2016 JO - BMC Public Health DO - 10.1186/s12889-016-3564-1 UR - https://pubmed.ncbi.nlm.nih.gov/27557928/ Y2 - 2026/07/11 N1 - PMID 27557928. Community-based mixed-methods study of 30 Muslim immigrant women: modesty, having a male physician, and cultural/language factors were among documented barriers to cervical (Pap) screening; HPV self-sampling emerged as a favorable alternative model of care, alongside access to female health professionals. ER - TY - JOUR ID - cit_guimond_modesty_cervical_muslim_2013 TI - Modesty matters: cultural sensitivity and cervical cancer prevention in muslim women in the United States AU - Guimond, M. E., Salman, K. PY - 2013 JO - Nursing for Women's Health DO - 10.1111/1751-486X.12034 UR - https://pubmed.ncbi.nlm.nih.gov/23773193/ Y2 - 2026/07/11 N1 - PMID 23773193. Clinical review: lack of sensitivity to modesty is a barrier for Muslim women in the U.S. to obtain cervical cancer screening and prevention; recommends culturally sensitive strategies to discuss and encourage screening and HPV vaccination for this under-researched population. ER - TY - JOUR ID - cit_nkwo_chaperone_gynecology_2012 TI - The perception and use of chaperones by Nigerian gynecologists AU - Nkwo, P. O., Chigbu, C. O., Ajah, L. O., Okoro, O. S. PY - 2012 JO - International Journal of Gynaecology and Obstetrics DO - 10.1016/j.ijgo.2012.07.014 UR - https://pubmed.ncbi.nlm.nih.gov/23031332/ Y2 - 2026/07/11 N1 - PMID 23031332. Survey of Nigerian gynecologists: 97.6% considered chaperones necessary for intimate examinations and supported a policy of routinely offering them while respecting a patient's right to decline; scarcity of personnel to serve as chaperones was the greatest barrier to implementation. ER - TY - JOUR ID - cit_osmond_chaperone_patient_perspective_2007 TI - The use of chaperones for intimate examinations: the patient perspective based on an anonymous questionnaire AU - Osmond, M. K., Copas, A. J., Newey, C., Edwards, S. G., Jungmann, E., Mercey, D. PY - 2007 JO - International Journal of STD & AIDS DO - 10.1258/095646207782193759 UR - https://pubmed.ncbi.nlm.nih.gov/17945044/ Y2 - 2026/07/11 N1 - PMID 17945044. Anonymous questionnaire, 627 patients across two London GU-medicine clinics: 88% did not want a chaperone for future examinations, and those who did preferred one be offered rather than made routine; women examined by a man were most likely to accept — supporting a universal-offer, patient-choice policy over imposition. ER - TY - JOUR ID - cit_linder_tgd_chaperone_2025 TI - Transgender and gender diverse patients' preference and comfort for having a medical chaperone present during a sensitive physical examination: a single-site study AU - Linder, K. E., Ramirez, J. L., Pankey, T. L., Heredia, D., Chang, A. Y., et al. PY - 2025 JO - The Journal of Sexual Medicine DO - 10.1093/jsxmed/qdaf147 UR - https://pubmed.ncbi.nlm.nih.gov/40581941/ Y2 - 2026/07/11 N1 - PMID 40581941. Cross-sectional survey of 149 transgender and gender-diverse patients at a Midwest gender clinic: ~50% were comfortable with a medical chaperone during sensitive exams and 60.5% preferred a female chaperone; routinely offering chaperones (especially female) was broadly acceptable. Medical mistrust — not gender dysphoria — predicted lower comfort. ER - TY - JOUR ID - cit_strauss_ldlt_segregation_2026 TI - Residential and Transplant Center Neighborhood Segregation and Live Donor Liver Transplant AU - Strauss, A. T., Menon, G., Li, Y., Thompson, V. L., Jain, V., et al. PY - 2026 JO - JAMA Network Open DO - 10.1001/jamanetworkopen.2026.16148 UR - https://pubmed.ncbi.nlm.nih.gov/42228371/ Y2 - 2026/07/11 N1 - PMID 42228371. National cohort, 22,223 liver-transplant candidates: residing in a high-segregation neighborhood was associated with lower likelihood of living-donor liver transplant access (adjusted HR 0.81, 95% CI 0.74-0.90); Hispanic/Latino candidates in high-segregation neighborhoods had markedly lower access (AHR 0.59); disparities persisted independent of insurance type. ER - TY - JOUR ID - cit_eldaba_living_donor_hypertension_2026 TI - Cardiovascular and Kidney Outcomes of Living Kidney Donors With Preexisting Hypertension: A Systematic Review and Meta-Analysis AU - Eldaba, M., Ahmed, S., Hiremath, S., Shorr, R., Clark, E. G., et al. PY - 2026 JO - American Journal of Hypertension DO - 10.1093/ajh/hpaf114 UR - https://pubmed.ncbi.nlm.nih.gov/40570153/ Y2 - 2026/07/11 N1 - PMID 40570153. Systematic review/meta-analysis, 17 studies (4,881 hypertensive + 40,565 normotensive living kidney donors): hypertensive donors had a significantly higher risk of death (RD 40.0/1,000 person-years, P=.03) but no significant difference in kidney failure, low eGFR, or major cardiovascular events — living donation carries real but selective risk, not a uniform one. ER - TY - JOUR ID - cit_wen_xenotransplant_acceptance_2026 TI - Public awareness and acceptance of xenotransplantation in China: a cross-sectional survey AU - Wen, J., Li, H., Wang, D., Huang, M., Zhai, X. PY - 2026 JO - BMC Medical Ethics DO - 10.1186/s12910-026-01544-x UR - https://pubmed.ncbi.nlm.nih.gov/42410577/ Y2 - 2026/07/11 N1 - PMID 42410577. Cross-sectional survey, 589 adults: in a hypothetical life-saving scenario 36.7% would definitely accept a xenotransplant (genetically edited pig organ) and 11.5% would definitely not; perceived religious conflict was significantly associated with lower acceptance (OR 0.22, P<.01). Top concerns were clinical-trial safety, postoperative outcomes, and cost. ER - TY - JOUR ID - cit_tarabeih_jewish_xenotransplant_2025 TI - Jewish Perspectives on Porcine Xenotransplantation: Balancing Religious Ethics and Medical Necessity in Israel AU - Tarabeih, M., Amiel, A., Na'amnih, W. PY - 2025 JO - Journal of Religion and Health DO - 10.1007/s10943-025-02491-4 UR - https://pubmed.ncbi.nlm.nih.gov/41199080/ Y2 - 2026/07/11 N1 - PMID 41199080. Survey of 916 Jewish participants (Israel): despite the religious prohibition on consuming pork, Jewish law allows pig-organ use for life-saving medical procedures; degree of religious-ruling knowledge significantly shaped attitudes toward six xenotransplant applications, motivating recommendations for clearer informed-consent communication with Jewish patients. ER - TY - JOUR ID - cit_dongmo_bone_allograft_willingness_2026 TI - Willingness to bone allograft donation and transplantation in sub-Saharan Africa: a multi-country cross-sectional study AU - Dongmo Mayopa, C., Kouassi, A. A. N., Buzisa Mbuku, R., Mbaga, A. C., Nkubamanu, S., et al. PY - 2026 JO - Cell and Tissue Banking DO - 10.1007/s10561-026-10220-8 UR - https://pubmed.ncbi.nlm.nih.gov/41824135/ Y2 - 2026/07/11 N1 - PMID 41824135. Multi-country survey, 600 adults (Cameroon, DR Congo, Côte d'Ivoire): 72.8% reported willingness to accept a bone allograft transplant; willingness to accept was independently associated with country of residence and religious affiliation, and belief-related/religious considerations were among the leading reasons for refusal. ER - TY - JOUR ID - cit_tuncer_ehealth_adherence_2025 TI - Effect of eHealth Interventions on Medication Adherence in Kidney Transplant Recipients: Meta-Analysis of Randomised Controlled Trials AU - Tuncer, M., Tuncer, G. Z. PY - 2025 JO - Journal of Renal Care DO - 10.1111/jorc.70015 UR - https://pubmed.ncbi.nlm.nih.gov/40196913/ Y2 - 2026/07/11 N1 - PMID 40196913. Meta-analysis, 8 RCTs / 779 kidney-transplant recipients: eHealth interventions significantly increased immunosuppressant adherence rates (RR 1.19, 95% CI 1.06-1.35, P=.01) and adherence scores versus standard care — lifelong immunosuppression adherence is directly tied to graft survival. ER - TY - JOUR ID - cit_zhou_ehealth_adherence_2025 TI - Effectiveness of eHealth for Medication Adherence in Renal Transplant Recipients: Systematic Review and Meta-Analysis AU - Zhou, L., Cheng, K., Chen, L., Hou, X., Wan, J. PY - 2025 JO - Journal of Medical Internet Research DO - 10.2196/73520 UR - https://pubmed.ncbi.nlm.nih.gov/40359506/ Y2 - 2026/07/11 N1 - PMID 40359506. Broader systematic review/meta-analysis, 12 RCTs / 1,234 kidney-transplant recipients: significant adherence differences appeared only with electronic-monitoring-device measurement and were unstable under sensitivity analysis; evidence quality was rated low/very low overall. Honest counterweight to Tuncer 2025 — eHealth's adherence benefit is not yet conclusively established across all measures. ER - TY - JOUR ID - cit_aggarwal_religiosity_youth_depression_2023 TI - Religiosity and spirituality in the prevention and management of depression and anxiety in young people: a systematic review and meta-analysis AU - Aggarwal, S., Wright, J., Morgan, A., Patton, G., Reavley, N. PY - 2023 JO - BMC Psychiatry DO - 10.1186/s12888-023-05091-2 UR - https://pubmed.ncbi.nlm.nih.gov/37817143/ Y2 - 2026/07/11 N1 - PMID 37817143. Systematic review of 45 longitudinal and 29 intervention studies in people aged 10-24. Meta-analysis of 25 high-quality longitudinal studies: spiritual wellbeing was associated with fewer depressive symptoms (r=-0.153); negative religious coping showed a nonsignificant trend toward more (r=0.09, 95% CI -0.009 to 0.188); personal importance of religion was not associated (r=-0.024). Most studies were low to moderate quality; intervention studies were not pooled. ER - TY - JOUR ID - cit_cinaroglu_earthquake_religious_coping_2026 TI - Coping strategies and psychological outcomes following the 2023 Kahramanmaraş earthquakes: a systematic review with meta-analytic synthesis AU - Çınaroğlu, M., Yılmazer, E. PY - 2026 JO - Frontiers in Public Health DO - 10.3389/fpubh.2026.1776931 UR - https://pubmed.ncbi.nlm.nih.gov/41859264/ Y2 - 2026/07/11 N1 - PMID 41859264. Systematic review with meta-analysis of 10 cross-sectional studies (6,223 adult survivors of the 2023 Kahramanmaras earthquakes). Religious coping had a small inverse association with PTSD symptoms (pooled r=-0.21) with substantial heterogeneity. Resilience (r=-0.44) and support-seeking (r=-0.31) were analyzed separately. The authors call the religious-coping evidence suggestive and cannot show direction or cause. ER - TY - JOUR ID - cit_na_sdoh_suicide_metaanalyses_2025 TI - Social Determinants of Health and Suicide-Related Outcomes: A Review of Meta-Analyses AU - Na, P. J., Shin, J., Kwak, H. R., Lee, J., Jester, D. J., et al. PY - 2025 JO - JAMA Psychiatry DO - 10.1001/jamapsychiatry.2024.4241 UR - https://pubmed.ncbi.nlm.nih.gov/39745761/ Y2 - 2026/07/11 N1 - PMID 39745761. Review of 46 meta-analyses of social determinants and suicide-related outcomes. Religious affiliation and being married were associated with lower suicide mortality; school connectedness with lower suicide attempt and ideation. Observational associations. ER - TY - JOUR ID - cit_alhumaidan_saudi_mh_barriers_2024 TI - Barriers to Seeking Mental Health Help in Saudi Arabia: A Systematic Review AU - Alhumaidan, N. I., Alotaibi, T. A., Aloufi, K. S., Althobaiti, A. A., Althobaiti, N. S. A., et al. PY - 2024 JO - Cureus DO - 10.7759/cureus.60363 UR - https://pubmed.ncbi.nlm.nih.gov/38883041/ Y2 - 2026/07/11 N1 - PMID 38883041. Systematic review, 6 studies: stigma, lack of awareness, confidentiality concerns, and cultural/religious beliefs were consistently identified barriers to formal mental health help-seeking in Saudi Arabia; stigma was the most predominant barrier reported. ER - TY - JOUR ID - cit_syafitri_asean_mh_barriers_facilitators_2025 TI - Barriers and Facilitators of Psychological Help-Seeking of People With Depression, Anxiety, and Stress Symptoms Among ASEAN Countries: A Systematic Review AU - Syafitri, D. U., Mawaddah, S., Lau, J. Y. F., Brown, J. S. L. PY - 2025 JO - The International Journal of Social Psychiatry DO - 10.1177/00207640251367289 UR - https://pubmed.ncbi.nlm.nih.gov/40928181/ Y2 - 2026/07/11 N1 - PMID 40928181. Systematic review, 46 studies across ASEAN countries: religious and sociocultural factors functioned as both barriers (stigma, sociocultural/religious concerns) and facilitators (social and religious support) to formal psychological help-seeking — the same dimension cuts both ways depending on context. ER - TY - JOUR ID - cit_madsen_arab_men_mhl_2024 TI - Mental health literacy among Arab men living in high-income Western countries: A systematic review and narrative synthesis AU - Madsen, J., Jobson, L., Slewa-Younan, S., Li, J. H., King, K. PY - 2024 JO - Social Science & Medicine DO - 10.1016/j.socscimed.2024.116718 UR - https://pubmed.ncbi.nlm.nih.gov/38489937/ Y2 - 2026/07/11 N1 - PMID 38489937. Systematic review, 46 studies: Arab men in high-income Western countries often attributed mental illness partly to religious reasons, favored informal help-seeking sources, and cited stigma as a barrier to formal care; recommends integrating informal support networks into treatment planning rather than treating them as obstacles. ER - TY - JOUR ID - cit_milstein_cope_framework_2025 TI - COPE: CO&PE — a framework to bridge public mental health services with religious organizations AU - Milstein, G., Currier, J. M., Dent, C., McKnight, M., Eckert, D., Manierre, A. PY - 2025 JO - Frontiers in Psychiatry DO - 10.3389/fpsyt.2025.1461804 UR - https://pubmed.ncbi.nlm.nih.gov/40859941/ Y2 - 2026/07/11 N1 - PMID 40859941. Framework paper (WHO/SAMHSA/US Surgeon General evidence review): proposes a structured model for mental health service organizations to build collaborative-care partnerships with spiritual/faith-based organizations, explicitly reviewing both religion/spirituality's evidence for promoting wellbeing/recovery AND its documented potential to be a source of trauma or a barrier to care. ER - TY - JOUR ID - cit_donnenfeld_religion_fertility_treatment_2022 TI - The Urologist's Guide to Religion and Male Factor Fertility Treatment AU - Donnenfeld, S. R., Mehta, A. PY - 2022 JO - Urology DO - 10.1016/j.urology.2022.06.016 UR - https://pubmed.ncbi.nlm.nih.gov/35772486/ Y2 - 2026/07/11 N1 - PMID 35772486. Reference guide compiled from primary-source religious texts across six major U.S. religions (Catholicism, LDS, Hinduism, Judaism, Buddhism, Islam): IVF/IUI are largely opposed only by the Catholic Church; surrogacy is impermissible in LDS, Catholic, and Islamic teaching; vasectomy is impermissible in Catholic, LDS, Jewish, and Islamic teaching; Buddhism and Hinduism have no reservations on IVF, IUI, surrogacy, or permanent sterilization — documented positions vary substantially by tradition, not a single 'religious view.' ER - TY - JOUR ID - cit_schenker_assisted_reproduction_religious_2005 TI - Assisted reproductive practice: religious perspectives AU - Schenker, J. G. PY - 2005 JO - Reproductive BioMedicine Online DO - 10.1016/s1472-6483(10)61789-0 UR - https://pubmed.ncbi.nlm.nih.gov/15820035/ Y2 - 2026/07/11 N1 - PMID 15820035. Review of monotheistic religious perspectives on assisted reproductive technology: Judaism permits ART techniques when oocyte/sperm originate from the wife/husband; the Vatican does not accept assisted reproduction while other Christian denominations vary; Islam accepts IVF/embryo transfer only between husband and wife — confirms fertility-treatment positions differ meaningfully across and within traditions. ER - TY - JOUR ID - cit_gashaw_family_planning_religious_barriers_2025 TI - Assessment of family planning service utilization and associated factors among female students at Assosa university, Ethiopia AU - Gashaw, Y., Alemu, C. PY - 2025 JO - Scientific Reports DO - 10.1038/s41598-025-94511-2 UR - https://pubmed.ncbi.nlm.nih.gov/40185798/ Y2 - 2026/07/11 N1 - PMID 40185798. Cross-sectional study, 345 female university students: 57.1% used family planning services; among non-users, religious reasons were cited as the primary reason for non-use by 75.4% — a large, directly quantified documentation of religious belief as a driver of family-planning non-use in this population. ER - TY - JOUR ID - cit_mann_postpartum_depression_religiosity_2008 TI - Do antenatal religious and spiritual factors impact the risk of postpartum depressive symptoms? AU - Mann, J. R., McKeown, R. E., Bacon, J., Vesselinov, R., Bush, F. PY - 2008 JO - Journal of Women's Health DO - 10.1089/jwh.2007.0627 UR - https://pubmed.ncbi.nlm.nih.gov/18537478/ Y2 - 2026/07/11 N1 - PMID 18537478. Prospective cohort, 307 women with complete postpartum data: women participating in organized religious activities at least a few times a month were markedly less likely to exhibit high postpartum depressive symptom scores (OR 0.18), independent of antenatal depressive symptoms and social support — suggesting religious participation aids coping with early motherhood specifically, not just general mood. ER - TY - JOUR ID - cit_osman_perinatal_anxiety_religiosity_2021 TI - Associations between religiosity and perinatal anxiety symptoms among women of Mexican descent AU - Osman, K. M., Lara-Cinisomo, S., D'Anna-Hernandez, K. L. PY - 2021 JO - Journal of Affective Disorders DO - 10.1016/j.jad.2021.06.066 UR - https://pubmed.ncbi.nlm.nih.gov/34274791/ Y2 - 2026/07/11 N1 - PMID 34274791. Prospective cohort, 197 pregnant women of Mexican descent: higher religiosity was associated with lower anxiety symptoms during pregnancy (b=-1.01, P=.002) and significantly buffered the relationship between acculturative stress and anxiety across early, mid, and late pregnancy and at 6 weeks postpartum. ER - TY - JOUR ID - cit_pregnancy_loss_muslim_women_review_2024 TI - Pregnancy loss among Muslim women: A narrative review AU - Adeleye, K. K., Ogungbe, O., Chutiyami, M., Iradukunda, F. PY - 2024 JO - International Journal of Nursing Studies Advances DO - 10.1016/j.ijnsa.2024.100205 UR - https://pubmed.ncbi.nlm.nih.gov/38827821/ Y2 - 2026/07/11 N1 - PMID 38827821. Narrative review across six databases: Islamic beliefs strongly featured in how Muslim women processed pregnancy loss (miscarriage, stillbirth) — concepts like tawakkul and yaqeen (trusting/certainty in divine destiny) eased sorrow and facilitated acceptance for many; themes also included social isolation/stigmatization and mental health impact, underscoring real variation in grieving needs rather than a single expected response. ER - TY - JOUR ID - cit_bapm_appm_perinatal_palliative_framework_2025 TI - Recognising uncertainty: an integrated framework for palliative care in perinatal medicine AU - Wilkinson, D., Bertaud, S., Mancini, A., Murdoch, E., et al. (BAPM/APPM) PY - 2025 JO - Archives of Disease in Childhood — Fetal and Neonatal Edition DO - 10.1136/archdischild-2024-327662 UR - https://pubmed.ncbi.nlm.nih.gov/39567213/ Y2 - 2026/07/11 N1 - PMID 39567213. Official joint framework (British Association of Perinatal Medicine + Association of Paediatric Palliative Medicine): recommends integrating a palliative, holistic, interdisciplinary approach into antenatal and neonatal care for babies with life-limiting or life-threatening conditions — explicitly not limited to babies certain to die in early life — to support families navigating diagnostic uncertainty. ER - TY - JOUR ID - cit_perinatal_communication_ethics_2024 TI - Ethical issues in perinatal communication AU - Turchiano, F., Romiti, A., Tudisco, R., Bisanti, M., Polsinelli, V., et al. PY - 2024 JO - European Journal of Pediatrics DO - 10.1007/s00431-024-05928-2 UR - https://pubmed.ncbi.nlm.nih.gov/39724206/ Y2 - 2026/07/11 N1 - PMID 39724206. Review proposing a structured framework for counseling parents at the diagnosis of critical fetal/neonatal conditions, emphasizing that communication quality directly shapes parental decision-making experience and outcomes during prenatal and postnatal phases; recommends integrating perinatal palliative care into the treatment pathway at referral centers. ER - TY - JOUR ID - cit_he_pediatric_acp_qualitative_synthesis_2026 TI - Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis AU - He, S., Shen, K., Huang, B., Zhang, J. PY - 2026 JO - BMC Palliative Care DO - 10.1186/s12904-026-02047-7 UR - https://pubmed.ncbi.nlm.nih.gov/41808155/ Y2 - 2026/07/11 N1 - PMID 41808155. Meta-synthesis of 9 qualitative studies: identified parents' behavioral coping patterns, their perceptions of the value of pediatric advance care planning, and the challenges/barriers they encounter — concludes effective implementation requires respecting children's own preferences alongside parental decision-making needs. ER - TY - JOUR ID - cit_van_teunenbroek_dutch_pediatric_pc_guideline_2024 TI - A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making AU - van Teunenbroek, K. C., Mulder, R. L., van Heel, D. A. M., Fahner, J. C., de Vos-Broerse, M. A., et al. PY - 2024 JO - BMC Palliative Care DO - 10.1186/s12904-024-01568-3 UR - https://pubmed.ncbi.nlm.nih.gov/39578755/ Y2 - 2026/07/11 N1 - PMID 39578755. National guideline (20 experts + 9 bereaved parents, GRADE/CERQual methodology): identified 4 RCTs and 33 qualitative studies, yielding 28 strong recommendations for advance care planning and shared decision-making in pediatric palliative care — emphasizing involving children and families and communicating clearly about care and treatment. ER - TY - JOUR ID - cit_carr_pediatric_acp_initiation_factors_2020 TI - Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review AU - Carr, K., Hasson, F., McIlfatrick, S., Downing, J. PY - 2020 JO - Palliative Medicine DO - 10.1177/0269216320983197 UR - https://pubmed.ncbi.nlm.nih.gov/33372582/ Y2 - 2026/07/11 N1 - PMID 33372582. Systematic integrative review, 21 studies (4,153 citations screened): healthcare professionals often avoid or delay initiating pediatric advance care planning; uncertainty regarding prognosis, unclear responsibility, and unpredictable parental reactions result in inconsistent practice. ER - TY - JOUR ID - cit_michelson_picu_eol_roles_2013 TI - End-of-life care decisions in the PICU: roles professionals play AU - Michelson, K. N., Patel, R., Haber-Barker, N., Emanuel, L., Frader, J. PY - 2013 JO - Pediatric Critical Care Medicine DO - 10.1097/PCC.0b013e31826e7408 UR - https://pubmed.ncbi.nlm.nih.gov/23249788/ Y2 - 2026/07/11 N1 - PMID 23249788. Qualitative study, 18 parents of children who died in the PICU + 48 PICU healthcare professionals (incl. chaplains): identified 7 distinct roles healthcare professionals play in parental end-of-life decision-making — family supporter, family advocate, information giver, care coordinator, decision maker, EOL coordinator, and point person. ER - TY - JOUR ID - cit_superdock_religion_spirituality_pediatric_decisionmaking_2018 TI - Exploring the vagueness of Religion & Spirituality in complex pediatric decision-making: a qualitative study AU - Superdock, A. K., Barfield, R. C., Brandon, D. H., Docherty, S. L. PY - 2018 JO - BMC Palliative Care DO - 10.1186/s12904-018-0360-y UR - https://pubmed.ncbi.nlm.nih.gov/30208902/ Y2 - 2026/07/11 N1 - PMID 30208902. Longitudinal qualitative study, 16 cases of children with complex life-threatening conditions, 363 interviews with parents and 108 with healthcare professionals over a median 380 days: parents in 13/16 cases reported religion/spirituality directly influenced decision-making (themes: Hope & Faith, God is in Control, Miracles, Prayer), but most healthcare professionals were unaware of this influence — R&S shaped how decisions were made more than what was decided. ER - TY - JOUR ID - cit_friedrich_eberl_catholic_pediatric_decisionmaking_2022 TI - Catholic Perspective on Decision-Making for Critically Ill Newborns and Infants AU - Friedrich, A. B., Eberl, J. T. PY - 2022 JO - Children DO - 10.3390/children9020207 UR - https://pubmed.ncbi.nlm.nih.gov/35204927/ Y2 - 2026/07/11 N1 - PMID 35204927. Peer-reviewed article presenting the Catholic perspective on decision-making for critically ill newborns/infants: the 'technocratic paradigm' of medicine can drive decision-making conflicts and communication breakdowns between parents and providers; recommends focusing on the inherent relationality of all persons regardless of debility and Christian hope in the life to come as a way to navigate — not reject — medical technology. ER - TY - JOUR ID - cit_ali_sheikhi_religious_leaders_covid_vaccine_2025 TI - The role of religious leaders in the acceptance of COVID-19 vaccinations: a systematic review AU - Ali Sheikhi, R., Heidari, M., Doosti, P. PY - 2025 JO - BMC Public Health DO - 10.1186/s12889-025-23947-y UR - https://pubmed.ncbi.nlm.nih.gov/40770695/ Y2 - 2026/07/11 N1 - PMID 40770695. PRISMA systematic review, 7 articles: religious leaders played both positive (trust-building, collaboration with health providers, community dialogue) and negative/neutral roles in COVID-19 vaccine acceptance — engaging religious leaders is identified as a powerful strategy to advance public-health vaccination goals, but their influence is not uniformly positive. ER - TY - JOUR ID - cit_akrong_ghana_covid_vaccine_hesitancy_2024 TI - COVID-19 vaccine acceptance and hesitancy in Ghana: A systematic review AU - Akrong, G. B., Hiadzi, R. A., Donkor, A. B., Anafo, D. K. PY - 2024 JO - PLOS ONE DO - 10.1371/journal.pone.0305993 UR - https://pubmed.ncbi.nlm.nih.gov/38917063/ Y2 - 2026/07/11 N1 - PMID 38917063. Systematic review, acceptance rates ranging from 17.5% to 82.6% across reviewed studies: spiritual and religious beliefs (alongside mistrust, safety concerns, and religious affiliation as a demographic factor) played a significant role in influencing COVID-19 vaccine hesitancy in Ghana. ER - TY - JOUR ID - cit_achimas_hpv_hesitancy_european_parents_2024 TI - Vaccine Hesitancy among European Parents-Psychological and Social Factors Influencing the Decision to Vaccinate against HPV: A Systematic Review and Meta-Analysis AU - Achimaș-Cadariu, T., Pașca, A., Jiboc, N. M., Puia, A., Dumitrașcu, D. L. PY - 2024 JO - Vaccines DO - 10.3390/vaccines12020127 UR - https://pubmed.ncbi.nlm.nih.gov/38400111/ Y2 - 2026/07/11 N1 - PMID 38400111. Systematic review/meta-analysis, 25 studies / 385,460 responders: religion was among the socio-demographic and psychological factors significantly influencing European parents' decision to vaccinate their children against HPV, alongside immigrant/employment status and parental age. ER - TY - JOUR ID - cit_herzig_anthroposophy_vaccine_hesitancy_2023 TI - Understanding and explaining the link between anthroposophy and vaccine hesitancy: a systematic review AU - Herzig van Wees, S., Abunnaja, K., Mounier-Jack, S. PY - 2023 JO - BMC Public Health DO - 10.1186/s12889-023-17081-w UR - https://pubmed.ncbi.nlm.nih.gov/37957574/ Y2 - 2026/07/11 N1 - PMID 37957574. Systematic review: found a broad spectrum of vaccine beliefs within anthroposophic communities (not uniform refusal), concerns about toxicity/system trust, strong emphasis on individual informed choice, and stigma directed at vaccine-hesitant members from both outside AND inside the community — the review concludes popular assumptions about vaccine beliefs in values-based communities are challenged by the actual data. ER - TY - JOUR ID - cit_olagoke_scripture_hpv_message_rct_2023 TI - The effectiveness of a religiously framed HPV vaccination message among Christian parents of unvaccinated adolescents in the United States AU - Olagoke, A., Hebert-Beirne, J., Floyd, B., Caskey, R., Boyd, A., Molina, Y. PY - 2023 JO - Journal of Communication in Healthcare DO - 10.1080/17538068.2023.2171613 UR - https://pubmed.ncbi.nlm.nih.gov/37401883/ Y2 - 2026/07/11 N1 - PMID 37401883. Randomized controlled trial, 342 Christian parents of unvaccinated adolescents: a scripture-embedded HPV vaccination message (mapping the Noah's Ark narrative onto vaccination) produced significantly higher vaccination intention than the standard CDC Vaccine Information Statement (β=0.31, 95% CI 0.11-0.52, P=.003) — faith-congruent messaging measurably outperforms secular messaging for this population. ER - TY - JOUR ID - cit_walton_moss_spirituality_religion_substance_recovery_2013 TI - Relationship of spirituality or religion to recovery from substance abuse: a systematic review AU - Walton-Moss, B., Ray, E. M., Woodruff, K. PY - 2013 JO - Journal of Addictions Nursing DO - 10.1097/JAN.0000000000000001 UR - https://pubmed.ncbi.nlm.nih.gov/24335768/ Y2 - 2026/07/11 N1 - PMID 24335768. Systematic review, 29 studies across three databases: for most studies, at least some support was found for a beneficial relationship between spirituality or religion and recovery from substance use disorders, most commonly measured via abstinence, treatment retention, and use severity — reviewed with attention to each study's strengths and limitations, not presented as uniform or conclusive. ER - TY - JOUR ID - cit_kane_spiritual_wellbeing_black_aa_substance_2023 TI - The impact of spiritual well-being and social support on substance use treatment outcomes within a sample of predominantly Black/African American adults AU - Kane, L., Benson, K., Stewart, Z. J., Daughters, S. B. PY - 2024 JO - Journal of Substance Use and Addiction Treatment DO - 10.1016/j.josat.2023.209238 UR - https://pubmed.ncbi.nlm.nih.gov/38061630/ Y2 - 2026/10/01 N1 - Citation year follows the March 2024 journal issue; PubMed records online publication on 2023-12-05. PMID 38061630. Longitudinal study, 262 adults (95.4% Black/African American) in residential SUD treatment: higher spiritual well-being predicted significantly less frequent substance use during early recovery (β=0.00, P=.03), and 12-step involvement predicted significantly fewer substance use consequences (β=0.00, P=.02) — but both effects diminished by 3.5-6.6 months post-treatment, an honest limit on how far the association extends. ER - TY - JOUR ID - cit_al_ghafri_muslim_communities_treatment_harm_reduction_barriers_2023 TI - Barriers and facilitators to accessing inpatient and community substance use treatment and harm reduction services for people who use drugs in the Muslim communities: A systematic narrative review AU - Al-Ghafri, Q., Radcliffe, P., Gilchrist, G. PY - 2023 JO - Drug and Alcohol Dependence DO - 10.1016/j.drugalcdep.2023.109790 UR - https://pubmed.ncbi.nlm.nih.gov/36805826/ Y2 - 2026/07/11 N1 - PMID 36805826. Systematic narrative review of 24 studies from countries with large Muslim populations: barriers to substance use treatment and harm reduction included denial of severity, distrust, confidentiality fears, stigma, and religion-related themes. 12 of 24 studies met all quality criteria. The authors recommend using mosques to raise awareness and reduce stigma. ER - TY - JOUR ID - cit_asare_doku_cald_religious_leaders_aod_2025 TI - 'Oh! It's Like Taboo': Perspectives of Religious and Community Leaders on AOD Use, Harms and Treatment in CALD Communities, Sydney AU - Asare-Doku, W., Stirling, R., Peprah, P., Foley, C., De Silva, N., Syahbahar, T., Kelly, D., Settumba, S. PY - 2025 JO - Health Promotion Journal of Australia DO - 10.1002/hpja.70105 UR - https://pubmed.ncbi.nlm.nih.gov/40987609/ Y2 - 2026/07/11 N1 - PMID 40987609. Qualitative study, 8 religious/community leaders across Sub-Saharan African, North African, Middle Eastern, East Asian, and Pacific Islander communities in Sydney: identified both barriers (cultural/religious values shaping attitudes toward AOD use, community-wide reputational impact) and enablers to service access and engagement — leaders are documented as playing a role on both sides, not solely as gatekeepers of stigma. ER - TY - JOUR ID - cit_fischer_naloxone_community_distribution_meta_2025 TI - Effectiveness of naloxone distribution in community settings to reduce opioid overdose deaths among people who use drugs: a systematic review and meta-analysis AU - Fischer, L. S., Asher, A., Stein, R., Becasen, J., Doreson, A., Mermin, J., Meltzer, M. I., Edlin, B. R. PY - 2025 JO - BMC Public Health DO - 10.1186/s12889-025-22210-8 UR - https://pubmed.ncbi.nlm.nih.gov/40133970/ Y2 - 2026/07/11 N1 - PMID 40133970. Systematic review and meta-analysis, 44 studies (2003-2018) plus 5 more recent studies (2018-2022): community-based overdose education and naloxone distribution (OEND) programs were associated with high survival rates following naloxone administration — 98.3% (95% CI 97.5-98.8) for programs serving people who use drugs directly — with results sustained despite rising fentanyl-driven overdose rates. Pooled survival after naloxone by program type, per the abstract: 98.3% (people who use drugs), 95.0% (family and community members), 92.4% (police). The abstract describes no comparison group, so these are survival proportions, not a measure of deaths prevented. ER - TY - JOUR ID - cit_oleary_abstinence_harm_reduction_homelessness_meta_2024 TI - The effectiveness of abstinence-based and harm reduction-based interventions in reducing problematic substance use in adults who are experiencing homelessness in high income countries: A systematic review and meta-analysis AU - O'Leary, C., Ralphs, R., Stevenson, J., Smith, A., Harrison, J., Kiss, Z., Armitage, H. PY - 2024 JO - Campbell Systematic Reviews DO - 10.1002/cl2.1396 UR - https://pubmed.ncbi.nlm.nih.gov/38645303/ Y2 - 2026/07/11 N1 - PMID 38645303. Campbell systematic review and meta-analysis, 48 papers / 34 studies / 15,255 participants: compared to treatment-as-usual, abstinence-based interventions showed an average effect of -0.28 SD (95% CI -0.65 to 0.09) and harm-reduction interventions showed an average effect of 0.03 SD (95% CI -0.08 to 0.14) on substance use — both confidence intervals cross zero, and the review concludes neither approach category shows a clear overall advantage over the other; individual interventions varied more than the category they belonged to. ER - TY - JOUR ID - cit_earl_va_chaplains_addiction_training_2025 TI - Veteran Affairs chaplains and addiction care: Current training gaps and needs AU - Earl, B. S. W., Wortmann, J. H., Edens, E. L. PY - 2025 JO - Journal of Health Care Chaplaincy DO - 10.1080/08854726.2025.2564599 UR - https://pubmed.ncbi.nlm.nih.gov/41069225/ Y2 - 2026/07/11 N1 - PMID 41069225. Survey, 151 VA chaplains: many provide addiction care weekly despite varying comfort and training, most commonly using foundational chaplaincy skills (active listening, grief counseling) alongside occasional 12-step-informed or motivational-interviewing approaches and referrals to mental health services — respondents wanted more training in evidence-based modalities, identifying a real but under-resourced chaplaincy role in addiction care. ER - TY - JOUR ID - cit_wangliu_dementia_caregiver_coping_grief_review_2025 TI - A systematic review of coping and pre-death grief among dementia family caregivers AU - Wangliu, Y.-Q., Che, R.-P. PY - 2025 JO - Palliative & Supportive Care DO - 10.1017/S1478951525000082 UR - https://pubmed.ncbi.nlm.nih.gov/40171778/ Y2 - 2026/07/11 N1 - PMID 40171778. Systematic review, 12 studies: positive coping strategies were effective in alleviating pre-death grief and caregiving burden among dementia family caregivers; coping resources including self-efficacy, sense of coherence, and social support were beneficial — spiritual and religious beliefs, along with community faith, were identified as crucial elements in alleviating caregiver grief. ER - TY - JOUR ID - cit_stolz_care_dependent_religiosity_euthanasia_attitudes_2017 TI - Attitudes towards assisted suicide and euthanasia among care-dependent older adults (50+) in Austria: the role of socio-demographics, religiosity, physical illness, psychological distress, and social isolation AU - Stolz, E., Mayerl, H., Gasser-Steiner, P., Freidl, W. PY - 2017 JO - BMC Medical Ethics DO - 10.1186/s12910-017-0233-6 UR - https://pubmed.ncbi.nlm.nih.gov/29212490/ Y2 - 2026/07/11 N1 - PMID 29212490. Nationwide cross-sectional survey, 493 care-dependent older adults (50+) in Austria: about a quarter approved of assisted suicide/euthanasia availability or would hypothetically use it; religiosity was one of the central determinants of euthanasia acceptance specifically (alongside living alone and fear of dying) — reported descriptively as a documented correlate, not a policy position. ER - TY - JOUR ID - cit_rodrigues_brazil_intellectual_disability_spiritual_coping_2023 TI - Exploring spiritual/religious coping strategies among mothers of children with severe or profound intellectual disability during genetic counseling in Brazil AU - Rodrigues, S. A., de Carvalho, E. Z. N., Campos, C. A., Fontanella, B. J. B., Melo, D. G. PY - 2023 JO - Journal of Genetic Counseling DO - 10.1002/jgc4.1783 UR - https://pubmed.ncbi.nlm.nih.gov/37665163/ Y2 - 2026/07/11 N1 - PMID 37665163. Qualitative study, 15 Brazilian mothers of children with severe/profound intellectual disability: identified five spiritual/religious coping themes — spirituality as a source of resilience, surrender to God's plan, a feeling of predestination, the child perceived as a blessing, and pleading for divine intervention — these coping mechanisms appeared to help mothers adjust to their child's condition and attribute meaning to it. ER - TY - JOUR ID - cit_manalo_catholic_social_teaching_disability_philippines_2026 TI - A Proposed Pastoral Response Challenging the Exclusion of Persons with Disabilities (PWDs) Within the Philippine Social Context AU - Manalo, R., Behan, S. J. E., Constantino, C. B., Gozum, I. E. PY - 2026 JO - Journal of Religion and Health DO - 10.1007/s10943-026-02610-9 UR - https://pubmed.ncbi.nlm.nih.gov/41779260/ Y2 - 2026/07/11 N1 - PMID 41779260. Peer-reviewed analysis grounded in Catholic Social Teaching (CST — human dignity, the common good, solidarity, preferential concern for the marginalized): despite legal protections, persons with disabilities in the Philippines continue to face structural, social, and cultural exclusion; the paper articulates concrete pastoral/ecclesial responses centered on advocacy, accompaniment, and inclusive community-building. Ships at PASS tier directly (compiles primary Catholic teaching in a peer-reviewed venue — same pattern as CC-21's Friedrich & Eberl and CC-20's Donnenfeld/Schenker). ER - TY - JOUR ID - cit_sande_zimbabwe_disability_spirituality_belonging_2026 TI - Disability, spirituality and the politics of belonging in postcolonial Zimbabwe AU - Sande, N. PY - 2026 JO - African Journal of Disability DO - 10.4102/ajod.v15i0.1720 UR - https://pubmed.ncbi.nlm.nih.gov/41647329/ Y2 - 2026/07/11 N1 - PMID 41647329. Qualitative study, Zimbabwe: cultural, African indigenous religious, and spiritual framings of disability were documented as a source of exclusion of persons with disabilities from social positions, economic empowerment, and rites of passage — but the same religious/cultural landscape also contains the Ubuntu ethic of human interconnection, which the study identifies as a counter-framework offering hope for inclusion. Disability experience is shaped by overlapping identities (gender, class, religion), not religion alone. ER - TY - JOUR ID - cit_snethen_welcoming_places_mental_illness_2020 TI - Welcoming places: Perspectives of individuals with mental illnesses AU - Snethen, G., Jeffries, V., Thomas, E., Salzer, M. PY - 2021 JO - American Journal of Orthopsychiatry DO - 10.1037/ort0000519 UR - https://pubmed.ncbi.nlm.nih.gov/33411553/ Y2 - 2026/10/01 N1 - Citation year follows the 2021 journal issue; PubMed records online publication on 2020-10-15. PMID 33411553. Survey, 75 individuals with serious mental illness: asked to identify locations where they felt welcomed; religious communities were among the settings most frequently named as welcoming, alongside restaurants/cafes, parks, and libraries — a documented counterweight to exclusion-focused findings, showing faith communities functioning as an inclusion resource for this population. ER - TY - JOUR ID - cit_marella_philippines_disability_prevalence_wellbeing_2016 TI - Rapid assessment of disability in the Philippines: understanding prevalence, well-being, and access to the community for people with disabilities to inform the W-DARE project AU - Marella, M., Devine, A., Armecin, G. F., Zayas, J., Marco, M. J., Vaughan, C. PY - 2016 JO - Population Health Metrics DO - 10.1186/s12963-016-0096-y UR - https://pubmed.ncbi.nlm.nih.gov/27489509/ Y2 - 2026/07/11 N1 - PMID 27489509. Population-based survey, two Philippine cities: people with disabilities had significantly lower well-being and reduced access to community life than matched controls; having a disability combined with negative family attitudes was reported as a barrier to participating in work, community meetings, religious activities, and social activities specifically. ER - TY - JOUR ID - cit_ferrell_oncology_caregiver_spirituality_synthesis_2024 TI - Research Synthesis Related to Oncology Family Caregiver Spirituality in Palliative Care AU - Ferrell, B. R., Borneman, T., Koczywas, M., Galchutt, P. PY - 2024 JO - Journal of Palliative Medicine DO - 10.1089/jpm.2024.0209 UR - https://pubmed.ncbi.nlm.nih.gov/39429141/ Y2 - 2026/07/11 N1 - PMID 39429141. Research synthesis, 1,039 family caregivers of cancer patients across seven studies: spirituality was important to most family caregivers and most reported a religious affiliation; living with uncertainty was consistently the worst-rated aspect of caregiver quality of life, while having a sense of purpose and meaning was the highest-rated aspect. ER - TY - JOUR ID - cit_white_genetic_uncertainty_religion_spirituality_2009 TI - Making sense of genetic uncertainty: the role of religion and spirituality AU - White, M. T. PY - 2009 JO - American Journal of Medical Genetics Part C: Seminars in Medical Genetics DO - 10.1002/ajmg.c.30196 UR - https://pubmed.ncbi.nlm.nih.gov/19170081/ Y2 - 2026/07/11 N1 - PMID 19170081. Analysis of research on religious/spiritual beliefs in genetic decision-making: religious and spiritual beliefs function as a heuristic some clients use to cope with the inherent uncertainty of genetic risk information; a limited spiritual assessment is recommended in genetic counseling, while noting some religious/spiritual beliefs can conflict with medicine's values, leaving some decisions genuinely unresolved. ER - TY - JOUR ID - cit_murray_genetic_counseling_rs_training_2020 TI - Genetic counseling graduate training to address religion and spirituality in clinical practice: A qualitative exploration of programs in North America AU - Murray, A., Warren, N. S., Bosanko, K., Williamson Dean, L. PY - 2020 JO - Journal of Genetic Counseling DO - 10.1002/jgc4.1289 UR - https://pubmed.ncbi.nlm.nih.gov/32472736/ Y2 - 2026/07/11 N1 - PMID 32472736. Qualitative study, 12 of 33 eligible North American genetic counseling graduate programs: almost all programs include information on pastoral care services, but most offer little to no training on specific religious/spiritual beliefs or spiritual-assessment tools; program directors called training on this critical but reported it as inconsistent and rarely evaluated. ER - TY - JOUR ID - cit_wells_genetic_counselors_meaning_2015 TI - Development, Experience, and Expression of Meaning in Genetic Counselors' Lives: an Exploratory Analysis AU - Wells, D. M., McCarthy Veach, P., Martyr, M. A., LeRoy, B. S. PY - 2015 JO - Journal of Genetic Counseling DO - 10.1007/s10897-015-9901-1 UR - https://pubmed.ncbi.nlm.nih.gov/26498971/ Y2 - 2026/07/11 N1 - PMID 26498971. Qualitative study, 25 practicing genetic counselors (from a national sample of 298): religious and/or spiritual foundations emerged as one of five major themes in how genetic counselors personally construct meaning in their clinical work, alongside helping others, relationships, value conflicts, and resilience — documenting the profession's own engagement with meaning, not just patients'. ER - TY - JOUR ID - cit_daharli_religious_officials_newborn_screening_vaccine_2026 TI - Vaccine hesitancy and attitudes toward newborn heel-prick screening among religious officials: A mixed-methods study, Erzurum, Türkiye AU - Daharli, E., Çoruh, E. PY - 2026 JO - Human Vaccines & Immunotherapeutics DO - 10.1080/21645515.2026.2684831 UR - https://pubmed.ncbi.nlm.nih.gov/42246680/ Y2 - 2026/07/11 N1 - PMID 42246680. Mixed-methods study, 200 Muslim religious officials in Erzurum, Türkiye: hesitancy toward both vaccination and newborn bloodspot screening clustered around safety and institutional-trust concerns, reinforced by privacy/biomaterial and fertility/genetic-harm beliefs; only 19% were aware of the Organization of Islamic Cooperation's fatwa supporting vaccination, and that awareness was not itself associated with lower hesitancy. ER - TY - JOUR ID - cit_jedwab_germline_gene_editing_public_attitudes_2020 TI - Genetics experience impacts attitudes towards germline gene editing: a survey of over 1500 members of the public AU - Jedwab, A., Vears, D. F., Tse, C., Gyngell, C. PY - 2020 JO - Journal of Human Genetics DO - 10.1038/s10038-020-0810-2 UR - https://pubmed.ncbi.nlm.nih.gov/32737393/ Y2 - 2026/07/11 N1 - PMID 32737393. Survey, 1,537 members of the public across 67 countries: respondents were generally supportive of germline gene editing, particularly for medical applications, but the most opposition observed was among religious respondents (alongside those with professional genetics experience) — support and opposition varied by demographic and experiential factors, not religion alone. ER - TY - JOUR ID - cit_critchley_gene_editing_moral_hereditary_concern_2019 TI - Predicting Public Attitudes Toward Gene Editing of Germlines: The Impact of Moral and Hereditary Concern in Human and Animal Applications AU - Critchley, C., Nicol, D., Bruce, G., Walshe, J., Treleaven, T., Tuch, B. PY - 2019 JO - Frontiers in Genetics DO - 10.3389/fgene.2018.00704 UR - https://pubmed.ncbi.nlm.nih.gov/30687386/ Y2 - 2026/07/11 N1 - PMID 30687386. Survey, 1,004 Australians: Australians were generally comfortable with editing human/animal embryos for research and human-health purposes; moral concern (stronger than hereditary concern overall) was accentuated among more religious individuals, while hereditary concern was strongest among those with stronger trust in scientists and, separately, among more religious respondents. ER - TY - JOUR ID - cit_solomon_religious_groups_gene_editing_attitudes_2026 TI - Which religious and personal characteristics predict attitudes toward gene editing? Findings from a survey of 4,939 adults in the U.S. AU - Solomon, E. D., Chin, E. G., Baldwin, K., Baker, L. L., DuBois, J. M. PY - 2026 JO - Journal of Community Genetics DO - 10.1007/s12687-026-00898-4 UR - https://pubmed.ncbi.nlm.nih.gov/42151625/ Y2 - 2026/07/11 N1 - PMID 42151625. Survey, 4,939 U.S. adults across 9 stratified religious/non-religious groups: atheist participants reported the highest support for gene editing and lowest concerns, Muslim participants the highest concerns, and Mainline Protestants the lowest support; predictors included views on evolution, belief that one's body is a manifestation of God, religious discrimination, and distrust — the study explicitly cautions that generalizations must be avoided given the range of attitudes within each religious group. ER - TY - JOUR ID - cit_thaldar_ai_healthcare_trust_religion_south_africa_2025 TI - Public trust of AI in healthcare in South Africa: results of a survey AU - Thaldar, D., Bottomley, D. PY - 2025 JO - BMC Medical Ethics DO - 10.1186/s12910-025-01272-8 UR - https://pubmed.ncbi.nlm.nih.gov/40855295/ Y2 - 2026/07/11 N1 - PMID 40855295. Cross-sectional survey, 341 South African residents: 73.7% (weighted) preferred a human doctor over an AI doctor for serious health decisions; the importance of religion significantly predicted this preference (P<.001) — respondents for whom religion was 'not too important' were significantly more likely to prefer an AI doctor. ER - TY - JOUR ID - cit_weng_dignity_conserving_therapy_existential_distress_2022 TI - Dignity Conserving Therapy: An Intervention for Addressing Psychosocial and Existential Distress in Patients with Serious Illness AU - Weng, J., Pachman, D. R., Wild, E., Ingram, C. J. PY - 2022 JO - Palliative Medicine Reports DO - 10.1089/pmr.2022.0016 UR - https://pubmed.ncbi.nlm.nih.gov/36203715/ Y2 - 2026/07/11 N1 - PMID 36203715. Case-based clinical framework article (Palliative Medicine Reports). Describes meaning-centered psychotherapy and dignity therapy for existential distress in serious illness using one sample case. No new outcome data. ER - TY - JOUR ID - cit_wierstra_interfaith_chaplaincy_worldview_boundary_2024 TI - Interfaith Collaboration: Boundary Crossing in a Participatory Action Research Project with Health Care Chaplains in The Netherlands AU - Wierstra, I. R., Schuhmann, C., Collard, J., Oosterom, B., Jacobs, G. PY - 2024 JO - Journal of Religion and Health DO - 10.1007/s10943-024-02185-3 UR - https://pubmed.ncbi.nlm.nih.gov/39613936/ Y2 - 2026/07/11 N1 - PMID 39613936. Participatory action research, Dutch multifaith chaplaincy team: diverse worldviews (including secular/humanist) and contradictory visions of chaplaincy's role initially caused misunderstanding, but open dialogue built a shared professional identity — finding that in secular contexts, worldview (not only organized religion) remains a legitimate basis for chaplaincy identity and dialogue. ER - TY - JOUR ID - cit_smit_secular_age_chaplaincy_model_2024 TI - Responding to Life Itself: A Proposed Understanding of Domain, Goal and Interventions for Chaplaincy in a Secular Age AU - Smit, J., Schuhmann, C., Damen, A. PY - 2024 JO - Journal of Pastoral Care & Counseling DO - 10.1177/15423050241296785 UR - https://pubmed.ncbi.nlm.nih.gov/39497556/ Y2 - 2026/07/11 N1 - PMID 39497556. Theoretical model: proposes chaplaincy's domain in a secular age as 'responding to life itself,' with 'existential well-being' (not religious salvation or observance) as the corresponding goal — an explicit first-class framework for chaplaincy that does not presuppose religious belief as the baseline. ER - TY - JOUR ID - cit_layson_faith_based_chaplaincy_secularist_humanist_2023 TI - The Impact of Faith-Based Pastoral Care in Decreasingly Religious Contexts: The Australian Chaplaincy Advantage in Critical Environments AU - Layson, M. D., Carey, L. B., Best, M. C. PY - 2023 JO - Journal of Religion and Health DO - 10.1007/s10943-023-01791-x UR - https://pubmed.ncbi.nlm.nih.gov/36976458/ Y2 - 2026/07/11 N1 - PMID 36976458. Position article: argues faith-based chaplaincy provides distinct organizational and care advantages in critical environments (military, first responders, hospitals) even amid declining religiosity, presented explicitly as 'an alternative argument to the secularist-humanist perspective.' Included as a documented counterpoint — this topic does not resolve the underlying debate about whether faith-based or secular/humanist models serve patients better; both positions are documented. ER - TY - JOUR ID - cit_potts_spiritual_caregiving_religious_nones_2023 TI - Spiritual Caregiving and Assessments for America's Religious 'Nones': A Chaplaincy Perspective AU - Potts, G., Hewitt, S., Moore, M., Mui, A., Lubrano, B. PY - 2023 JO - Journal of Religion and Health DO - 10.1007/s10943-023-01757-z UR - https://pubmed.ncbi.nlm.nih.gov/36749461/ Y2 - 2026/07/11 N1 - PMID 36749461. Qualitative study, 5 chaplains at a cancer research institution: one in four American patients now identify as religiously unaffiliated; chaplains described how spiritual caregiving still contributes to holistic wellbeing for patients who are spiritual-but-not-religious, secular humanist, atheist, or agnostic, and the authors propose a spirituality-assessment tool designed for this population specifically rather than adapted from religious frameworks. ER - TY - JOUR ID - cit_cai_nonreligious_theistic_pediatric_spiritual_needs_2020 TI - Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study AU - Cai, S., Guo, Q., Luo, Y., Zhou, Y., Abbas, A., Zhou, X., Peng, X. PY - 2020 JO - Palliative Medicine DO - 10.1177/0269216319896747 UR - https://pubmed.ncbi.nlm.nih.gov/31971068/ Y2 - 2026/07/11 N1 - PMID 31971068. Qualitative study, 16 bereaved parents in Beijing: parents who described themselves as nonreligious still sought religious support and psychological/spiritual comfort facing their child's death, but stated spiritual needs also required nonreligious supports (bereavement services, death education, family support groups) — nonreligious identity was not monolithic, and a child's understanding of death was described as more complex, related to atheism. ER - TY - JOUR ID - cit_pesut_chaplaincy_nonreligious_spiritual_care_2016 TI - Recovering Religious Voice and Imagination: A Response to Nolan's Case Study "He Needs to Talk!" AU - Pesut, B. PY - 2016 JO - Journal of Health Care Chaplaincy DO - 10.1080/08854726.2015.1113809 UR - https://pubmed.ncbi.nlm.nih.gov/26789337/ Y2 - 2026/07/11 N1 - PMID 26789337. Scholarly commentary responding to a chaplaincy case study on nonreligious spiritual care: examines what is distinctive about a chaplain's role in working with nonreligious patients in a society where more people define themselves as not religious, arguing case studies reveal what chaplains actually do rather than relying on thin, stereotyped accounts of religion. ER - TY - JOUR ID - cit_hodgkinson_nice_ng31_dying_adults_2016 TI - Care of dying adults in the last days of life AU - Hodgkinson, S., Ruegger, J., Field-Smith, A., Latchem, S., Ahmedzai, S. H. PY - 2016 JO - Clinical Medicine (London, England) DO - 10.7861/clinmedicine.16-3-254 UR - https://pubmed.ncbi.nlm.nih.gov/27251915/ Y2 - 2026/07/12 N1 - PMID 27251915. Concise Guideline overview of NICE Clinical Guideline NG31 (England): recognising dying, communication and shared decision-making, maintaining hydration, and pharmacological symptom control including anticipatory prescribing. Documents that the Liverpool Care Pathway was withdrawn after an independent government report found its uncritical implementation could lead to poor care, and discusses implementation barriers (training, 24/7 specialist support). ER - TY - JOUR ID - cit_anderson_five_priorities_dying_2014 TI - Getting the priorities right in end-of-life care AU - Anderson, P. PY - 2014 JO - Nursing Times UR - https://pubmed.ncbi.nlm.nih.gov/25188966/ Y2 - 2026/07/12 N1 - PMID 25188966. Describes the Leadership Alliance for the Care of Dying People's five priorities for care of dying people (England), which replaced the Liverpool Care Pathway after criticism that it promoted a tick-box approach: recognising dying, sensitive communication, involving patients/family in decisions, support, and an individualised care plan including nutrition and hydration. ER - TY - JOUR ID - cit_partridge_nonmalignant_palliative_access_2009 TI - Palliative care services for those with chronic lung disease AU - Partridge, M. R., Khatri, A., Sutton, L., Welham, S., Ahmedzai, S. H. PY - 2009 JO - Chronic Respiratory Disease DO - 10.1177/1479972308100538 UR - https://pubmed.ncbi.nlm.nih.gov/19176708/ Y2 - 2026/07/12 N1 - PMID 19176708. Survey of 210 respiratory physicians across England, Wales, and Northern Ireland (107 responses, 51% rate): patients with advanced nonmalignant respiratory disease (COPD, asbestosis, diffuse parenchymal lung disease) had markedly less access to hospice in-patient/day care than those with malignant lung disease; only 21.5% of respondents had formal end-of-life policies for chronic respiratory disease, and 87.9% had no formal process for initiating end-of-life discussions. ER - TY - JOUR ID - cit_selman_bereavement_inequities_uk_2022 TI - 'Sadly I think we are sort of still quite white, middle-class really' - Inequities in access to bereavement support: Findings from a mixed methods study AU - Selman, L. E., Sutton, E., Medeiros Mirra, R., Stone, T., Gilbert, E., Rolston, Y., Murray, K., Longo, M., Seddon, K., Penny, A., Mayland, C. R., Wakefield, D., Byrne, A., Harrop, E. PY - 2022 JO - Palliative Medicine DO - 10.1177/02692163221133665 UR - https://pubmed.ncbi.nlm.nih.gov/36337051/ Y2 - 2026/07/12 N1 - PMID 36337051. UK mixed-methods study, 147 bereavement services surveyed + 24 interviews: 67.3% of services reported groups with unmet needs before the pandemic, most frequently people from minoritised ethnic communities (49%), sexual minority groups (26.5%), and deprived areas (24.5%); 25.2% of services did not collect ethnicity data at all. ER - TY - JOUR ID - cit_rolls_payne_childhood_bereavement_uk_2003 TI - Childhood bereavement services: a survey of UK provision AU - Rolls, L., Payne, S. PY - 2003 JO - Palliative Medicine DO - 10.1191/0269216303pm776oa UR - https://pubmed.ncbi.nlm.nih.gov/12882261/ Y2 - 2026/07/12 N1 - PMID 12882261. Survey of 127 UK childhood bereavement services (108 responses, 85% rate): 85% of services are located in the voluntary/charitable sector, and 44% of host organizations are hospices — documenting the voluntary-sector funding structure distinctive to UK hospice and bereavement provision, unlike the US's primarily Medicare-funded hospice benefit. ER - TY - JOUR ID - cit_cerni_rural_eol_cancer_sr_2020 TI - End-of-Life Cancer Care Resource Utilisation in Rural Versus Urban Settings: A Systematic Review AU - Cerni, J., Rhee, J., Hosseinzadeh, H. PY - 2020 JO - International Journal of Environmental Research and Public Health DO - 10.3390/ijerph17144955 UR - https://pubmed.ncbi.nlm.nih.gov/32660146/ Y2 - 2026/08/17 N1 - PMID 32660146. Systematic review of 24 mortality follow-back studies: rurality was strongly associated with higher rates of emergency-department visits and hospitalisations and lower rates of hospice care at the end of life in cancer; proximity to services, age, gender, and survival time explained the largest urban-rural inequities. ER - TY - JOUR ID - cit_deforge_nh_hospice_disparities_sr_2025 TI - Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review AU - DeForge, C. E., Ma, H. S., Dick, A. W., et al. PY - 2025 JO - American Journal of Hospice and Palliative Care DO - 10.1177/10499091251313761 UR - https://pubmed.ncbi.nlm.nih.gov/39787275/ Y2 - 2026/08/17 N1 - PMID 39787275. Systematic review (13 studies, 2008-2023) of hospice use in U.S. nursing homes: adjusted analyses found lower hospice use among male residents, Black/non-white residents, and residents of rural nursing homes; only about one-third of eligible residents enroll. ER - TY - JOUR ID - cit_bakitas_enable2_jama_2009 TI - Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial AU - Bakitas, M., Lyons, K. D., Hegel, M. T., et al. PY - 2009 JO - JAMA DO - 10.1001/jama.2009.1198 UR - https://pubmed.ncbi.nlm.nih.gov/19690306/ Y2 - 2026/08/17 N1 - PMID 19690306. RCT (N=322) at a rural NCI-designated cancer center, affiliated outreach clinics, and a VA medical center: a nurse-led, largely telephone-delivered early palliative care intervention improved quality of life (+4.6, P=.02) and depressed mood (P=.02) vs usual care; symptom intensity (P=.06) and hospital/ICU/ED utilization did not differ. Evidence that structured palliative support can be delivered where no specialist team is nearby. ER - TY - JOUR ID - cit_pless_kaiser_ptsd_eol_2023 TI - Factors Associated With Distress Related to Posttraumatic Stress Disorder at the End of Life Among U.S. Veterans AU - Pless Kaiser, A., Moye, J., Baird, L., Sager, Z., Wachterman, M. PY - 2023 JO - Journal of Pain and Symptom Management DO - 10.1016/j.jpainsymman.2023.04.011 UR - https://pubmed.ncbi.nlm.nih.gov/37084828/ Y2 - 2026/08/17 N1 - PMID 37084828. Retrospective cohort of 42,474 veterans who died in VA inpatient settings (Bereaved Family Survey): 8.9% experienced PTSD-related distress at end of life; combat exposure, younger age, male sex, non-white race, dementia, and co-occurring substance use disorder with depression were associated with higher odds. Palliative care consultation and emotional support were associated with decreased odds; unmanaged pain with increased odds. ER - TY - JOUR ID - cit_kutney_lee_vietnam_eol_2021 TI - Quality of end-of-life care for Vietnam-era Veterans: Implications for practice and policy AU - Kutney-Lee, A., Smith, D., Griffin, H., et al. PY - 2021 JO - Healthcare (Amsterdam) DO - 10.1016/j.hjdsi.2020.100494 UR - https://pubmed.ncbi.nlm.nih.gov/33992224/ Y2 - 2026/08/17 N1 - PMID 33992224. VA medical-record and bereaved-family-survey study, FY2013-2017: compared with WWII/Korea-era decedents, higher percentages of Vietnam-era veterans had mental-health/substance-use diagnoses and disability; overall end-of-life care ratings were similar, but family ratings of PTSD management were significantly lower — the basis for tailored end-of-life protocols for this cohort. ER - TY - JOUR ID - cit_garrido_veteran_mh_hosp_2017 TI - Mental Illness and Mental Healthcare Receipt among Hospitalized Veterans with Serious Physical Illnesses AU - Garrido, M. M., Prigerson, H. G., Neupane, S., et al. PY - 2017 JO - Journal of Palliative Medicine DO - 10.1089/jpm.2016.0261 UR - https://pubmed.ncbi.nlm.nih.gov/27835066/ Y2 - 2026/08/17 N1 - PMID 27835066. Retrospective study of 11,286 veterans hospitalized with advanced cancer, CHF, COPD, or advanced HIV/AIDS (FY2011): at least one-quarter had a mental illness or substance use disorder (depression 11.4%, alcohol use disorder 5.5%, PTSD 4.9%); of those with depression or anxiety incident at hospitalization, fewer than half received mental health care before discharge. ER - TY - ELEC ID - cit_census_acs_c16001_language TI - C16001: Language Spoken at Home for the Population 5 Years and Over — American Community Survey 2022 5-Year Estimates AU - U.S. Census Bureau PY - 2023 PB - U.S. Census Bureau UR - https://data.census.gov/table/ACSDT5Y2022.C16001 Y2 - 2026/08/28 N1 - County-level counts of households and people speaking a language other than English at home, including limited-English-proficiency detail. Live check blocked by build-environment egress (connect_rejected at proxy) — WARN. Dataset-level corroboration: api.census.gov/data/2022/acs/acs5 verified live 2026-04-08 in OurIntel's source registry. Claim type: dataset existence, no figures cited. ER - TY - ELEC ID - cit_census_acs_b28002_broadband TI - B28002: Presence and Types of Internet Subscriptions in Household — American Community Survey 2022 5-Year Estimates AU - U.S. Census Bureau PY - 2023 PB - U.S. Census Bureau UR - https://data.census.gov/table/ACSDT5Y2022.B28002 Y2 - 2026/08/28 N1 - County- and ZCTA-level household broadband-subscription estimates. Live check blocked by build-environment egress — WARN. Table-level corroboration: the B28002 cells appear in OurIntel's fetched artifact acs_broadband_zctas.json (_meta.fetched_at 2026-08-03, classification verified, US Public Domain). Claim type: dataset existence, no figures cited. ER - TY - ELEC ID - cit_hrsa_hpsa_shortage_areas TI - Health Workforce Shortage Areas — HPSA designations for primary care, dental health, and mental health AU - Health Resources and Services Administration PY - 2026 PB - HRSA UR - https://data.hrsa.gov/topics/health-workforce/shortage-areas Y2 - 2026/08/28 N1 - Continuously updated federal designations of geographic areas, populations, and facilities with clinician shortages, downloadable per discipline. Live check blocked by build-environment egress — WARN. Corroboration: same URL verified_live 2026-07-14 in OurIntel's source registry (hrsa_hpsa). Claim type: dataset existence, no figures cited. ER - TY - ELEC ID - cit_va_facility_directory TI - VA Facility Directory AU - U.S. Department of Veterans Affairs PY - 2026 PB - VA UR - https://www.va.gov/directory/guide/home.asp Y2 - 2026/08/28 N1 - Official directory of VA medical centers, clinics, and Vet Centers by location. Live check blocked by build-environment egress — WARN. Corroboration: verified_live 2026-04-09 in OurIntel's source registry (va_facilities). Claim type: resource existence, no figures cited. ER - TY - JOUR ID - cit_gamble_tuskegee_shadow_1997 TI - Under the Shadow of Tuskegee: African Americans and Health Care AU - Gamble, Vanessa Northington PY - 1997 JO - American Journal of Public Health UR - https://pubmed.ncbi.nlm.nih.gov/9366634/ Y2 - 2026/08/28 N1 - PMID 9366634. Am J Public Health. 1997 Nov;87(11):1773-1778. Argues that African American mistrust of biomedicine predates and extends beyond the Tuskegee Syphilis Study, situating it within a longer history of unequal treatment. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing and the publisher (AJPH) abstract page. Claim type: historical scholarship, no figures cited. ER - TY - JOUR ID - cit_white_tuskegee_misinformation_2005 TI - Misinformation and Misbeliefs in the Tuskegee Study of Untreated Syphilis Fuel Mistrust in the Healthcare System AU - White, Robert M. PY - 2005 JO - Journal of the National Medical Association UR - https://pubmed.ncbi.nlm.nih.gov/16334509/ Y2 - 2026/08/28 N1 - PMID 16334509. J Natl Med Assoc. 2005 Nov;97(11):1566-1573. Documents how misinformation about the Tuskegee Study circulates and contributes to healthcare mistrust. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing and PMC record (PMC2594917). Claim type: historical scholarship, no figures cited. ER - TY - ELEC ID - cit_saunders_st_christophers_history TI - Dame Cicely Saunders AU - St Christopher's Hospice PY - 2026 PB - St Christopher's Hospice UR - https://www.stchristophers.org.uk/about/damecicelysaunders/ Y2 - 2026/08/28 N1 - Institutional history page: Cicely Saunders founded St Christopher's Hospice, opened 1967, combining pain and symptom control with psychosocial and spiritual support and clinical teaching and research. Live check blocked by build-environment egress — WARN. Corroborated by the independently peer-reviewed Cureus history below and multiple secondary historical accounts. Claim type: institutional history, no figures cited. ER - TY - JOUR ID - cit_redwine_ganti_cicely_saunders_cureus_2024 TI - Dame Cicely Saunders: Pioneering Palliative Care and the Evolution of Hospice Services AU - Redwine, Hannah M., Ganti, Latha PY - 2024 JO - Cureus UR - https://pubmed.ncbi.nlm.nih.gov/39759695/ Y2 - 2026/08/28 N1 - PMID 39759695. Peer-reviewed review of Cicely Saunders's founding of St Christopher's Hospice (1967) and its influence on the international hospice and palliative-care movement. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing, PMC (PMC11700540), and the Cureus publisher page. Claim type: historical scholarship, no figures cited. ER - TY - JOUR ID - cit_support_principal_investigators_jama_1995 TI - A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT) AU - The SUPPORT Principal Investigators PY - 1995 JO - JAMA UR - https://pubmed.ncbi.nlm.nih.gov/7474243/ Y2 - 2026/08/28 N1 - PMID 7474243. JAMA. 1995 Nov 22-29;274(20):1591-1598. Landmark study of over 9,000 seriously ill hospitalized adults documenting shortcomings in communication and end-of-life care and under-recognition of patient preferences; widely cited as a catalyst for the modern palliative-care and advance-care-planning field. Live full-text check blocked by build-environment egress — WARN. Corroborated across PubMed listing, JAMA Network's own article page, and Experts@Minnesota. Claim type: historical/landmark study, no percentage figures cited. ER - TY - ELEC ID - cit_psda_congress_1990 TI - Patient Self Determination Act of 1990 (H.R. 4449, 101st Congress) AU - United States Congress PY - 1990 PB - Library of Congress UR - https://www.congress.gov/bill/101st-congress/house-bill/4449 Y2 - 2026/08/28 N1 - Signed into law November 5, 1990, effective December 1, 1991. Requires hospitals, skilled-nursing facilities, hospices, home health and personal care agencies, and HMOs receiving Medicare or Medicaid funds to inform adult patients of their right to accept or refuse treatment and to complete an advance directive. Live check blocked by build-environment egress — WARN. Corroborated across Congress.gov's own bill record and NCBI Bookshelf's StatPearls summary. Claim type: primary legislative record, no figures cited. ER - TY - JOUR ID - cit_landa_sikh_palliative_2022 TI - Sikh religion and palliative care AU - Landa, A. S., Grewal, B. K., & Singh, R. PY - 2022 JO - BMJ Supportive & Palliative Care DO - 10.1136/bmjspcare-2020-002425 UR - https://pubmed.ncbi.nlm.nih.gov/33139306/ Y2 - 2026/09/14 N1 - PMID 33139306. BMJ Support Palliat Care 2022;12(2):207-210, online first 2020. Sikh clinicians' overview for palliative teams: Ik-Oankar, Hukam, ego, karma. Supports the core-belief statements; reincarnation and mukti are not stated in the abstract. ER - TY - JOUR ID - cit_landa_sikh_acp_2020 TI - What is the Public Opinion of Advance Care Planning within the Punjabi Sikh Community? AU - Landa, A. S. PY - 2020 JO - Indian Journal of Palliative Care DO - 10.4103/IJPC.IJPC_219_19 UR - https://pubmed.ncbi.nlm.nih.gov/33623299/ Y2 - 2026/09/14 N1 - PMID 33623299. PMC7888423. Indian J Palliat Care 2020;26(4):411-414. Religious rites were the most-referenced end-of-life wish, 'including meditation, cremation, and having the ashes spread over flowing water.' Cohort: n=311 self-selected UK Punjabi Sikh respondents, 82% online; older adults under-represented. ER - TY - JOUR ID - cit_ahluwalia_sikh_bereavement_2017 TI - Turning to Waheguru: Religious and Cultural Coping Mechanisms of Bereaved Sikhs AU - Ahluwalia, M. K., & Mohabir, R. K. PY - 2017 JO - Omega: Journal of Death and Dying DO - 10.1177/0030222816688907 UR - https://pubmed.ncbi.nlm.nih.gov/28110626/ Y2 - 2026/09/14 N1 - PMID 28110626. Omega 2017;78(3):302-313. Sikh bereavement in the United States; Waheguru as the divine name turned to in grief. Narrative case exemplars, not a prevalence study: supports what practices mean, not how common they are. ER - TY - JOUR ID - cit_kalra_sikhism_spirituality_2012 TI - Sikhism, spirituality and psychiatry AU - Kalra, G., Bhui, K. S., & Bhugra, D. PY - 2012 JO - Asian Journal of Psychiatry DO - 10.1016/j.ajp.2012.08.011 UR - https://pubmed.ncbi.nlm.nih.gov/23174442/ Y2 - 2026/09/14 N1 - PMID 23174442. Asian J Psychiatr 2012;5(4):339-43. The Guru Granth Sahib 'is not only the last Guru, but also remained a key text.' Authors worked from the Gurumukhi original and the English translation. Clinical frame is psychiatry, not end-of-life care; cited for the scriptural claim only. ER - TY - JOUR ID - cit_johal_sikh_organ_donation_2018 TI - Quantitative Study of the Beliefs and Attitudes Toward Organ Donation and the Opt-Out System Among the Sikh Community in the United Kingdom AU - Johal, J., Bains, H., Churchward, D., Brand, S., & Malik, S. PY - 2018 JO - Transplantation Proceedings DO - 10.1016/j.transproceed.2018.03.014 UR - https://pubmed.ncbi.nlm.nih.gov/30577151/ Y2 - 2026/09/14 N1 - PMID 30577151. Transplant Proc 2018;50(10):2939-2945. 82.8% would donate an organ to anyone; 62.1% were not registered donors, and 57.6% of those cited not knowing the process. Cohort: n=268 UK Sikh respondents; the UK opt-out system frames the study and does not transfer to US practice. ER - TY - JOUR ID - cit_rassool_islam_caring_2000 TI - The crescent and Islam: healing, nursing and the spiritual dimension. Some considerations towards an understanding of the Islamic perspectives on caring AU - Rassool, G. H. PY - 2000 JO - Journal of Advanced Nursing DO - 10.1046/j.1365-2648.2000.01614.x UR - https://pubmed.ncbi.nlm.nih.gov/11136416/ Y2 - 2026/09/14 N1 - PMID 11136416. J Adv Nurs 2000;32(6):1476-84. Islamic health practices, code of ethics, and the framework of Islamic perspectives on caring and spirituality. Nursing frame, not end-of-life-specific. ER - TY - JOUR ID - cit_firth_hindu_view_lancet_2005 TI - End-of-life: a Hindu view AU - Firth, S. PY - 2005 JO - The Lancet DO - 10.1016/S0140-6736(05)67141-3 UR - https://pubmed.ncbi.nlm.nih.gov/16112306/ Y2 - 2026/09/25 N1 - PMID 16112306. Lancet 2005;366(9486):682-6. Added 2026-09-25 to replace two commercial cremation-vendor pages (lastjourney.in, carewellcremations.com) that the Hinduism guide cited for antyesti and asthi visarjan. PubMed indexes this article under Funeral Rites, Hinduism, Attitude to Death, and Euthanasia, Passive; no abstract is available in PubMed and the full text was not read in this environment, so the guide's ritual detail is attributed to a peer-reviewed clinical source but not quote-checked against it. ER - TY - JOUR ID - cit_dewar_hinduism_death_dignity_2015 TI - Hinduism and death with dignity: historic and contemporary case examples AU - Dewar, R., Cahners, N., Mitchell, C., & Forrow, L. PY - 2015 JO - The Journal of Clinical Ethics UR - https://pubmed.ncbi.nlm.nih.gov/25794293/ Y2 - 2026/09/14 N1 - PMID 25794293. J Clin Ethics 2015;26(1):40-7. Beth Israel Deaconess / Harvard, written for US clinicians (1.2 to 2.3 million US Hindus). Karma, family deference in decisions, timing of death, and individual interpretation of tradition. Does not describe antyesti funeral rites. ER - TY - JOUR ID - cit_goss_klass_bardo_thodol_1997 TI - Tibetan Buddhism and the resolution of grief: the Bardo-thodol for the dying and the grieving AU - Goss, R. E., & Klass, D. PY - 1997 JO - Death Studies DO - 10.1080/074811897201895 UR - https://pubmed.ncbi.nlm.nih.gov/10170479/ Y2 - 2026/09/14 N1 - PMID 10170479. Death Stud 1997;21(4):377-95. The Bardo-thodol as the frame for dying and grief: the progression of the deceased, survivors' separation rituals, and the continuing bond. Phowa is not named in the abstract. ER - TY - JOUR ID - cit_li_kleinman_buddhist_chanting_2026 TI - Assisted chanting and Buddhist end-of-life care in contemporary China AU - Li, S. L., Jing, J., Zhang, J., & Kleinman, A. PY - 2026 JO - Palliative & Supportive Care DO - 10.1017/S1478951526103034 UR - https://pubmed.ncbi.nlm.nih.gov/42439096/ Y2 - 2026/09/14 N1 - PMID 42439096. PMC13370301. Palliat Support Care 2026;24:e194. Harvard / Tsinghua; Kleinman senior author. 24-hour Amitabha recitation, belief in rebirth, release of attachments, patients resisting over-medicalization. Cohort: n=34 at one Chinese Pure Land site; not Tibetan, not US. ER - TY - JOUR ID - cit_upasen_thai_buddhist_death_acceptance_2022 TI - Death Acceptance Process in Thai Buddhist Patients With Life-Limiting Cancer: A Grounded Theory AU - Upasen, R., Thanasilp, S., Akkayagorn, L., et al. PY - 2022 JO - Global Qualitative Nursing Research DO - 10.1177/23333936221111809 UR - https://pubmed.ncbi.nlm.nih.gov/35845864/ Y2 - 2026/09/14 N1 - PMID 35845864. PMC9284199. Glob Qual Nurs Res 2022;9. Grounded theory, n=13 Thai patients with life-limiting cancer; the third phase is 'adhering to Buddhist practices for increasing death consciousness.' Theravada, small sample, not Tibetan, not US. ER - TY - JOUR ID - cit_oliffe_punjabi_sikh_diet_2010 TI - Masculinities, diet and senior Punjabi Sikh immigrant men: food for Western thought? AU - Oliffe, J. L., Grewal, S., Bottorff, J. L., et al. PY - 2010 JO - Sociology of Health & Illness DO - 10.1111/j.1467-9566.2010.01252.x UR - https://pubmed.ncbi.nlm.nih.gov/20646249/ Y2 - 2026/09/14 N1 - PMID 20646249. Sociol Health Illn 2010;32(5):761-76. Dietary practice 'deeply rooted in spirituality and traditional cultures' and shaped by local availability of dairy and alcohol: variation, not a uniform rule. Cohort: senior Punjabi Sikh immigrant men in Canada; qualitative; men only. ER - TY - JOUR ID - cit_patel_dharmic_eol_utilization_2026 TI - Palliative Care and EOL Care Utilization in Hospitalized Adults of Dharmic Religions With Cancer AU - Patel, R. V., Bowden, J. M., Boselli, D., et al. PY - 2026 JO - Journal of Pain and Symptom Management DO - 10.1016/j.jpainsymman.2026.07.028 UR - https://pubmed.ncbi.nlm.nih.gov/42556759/ Y2 - 2026/09/14 N1 - PMID 42556759. J Pain Symptom Manage 2026. MSKCC EHR review of 54,828 adults; Dharmic religions (Hindu, Buddhist, Sikh, Jain) were 2.1%. Interviews highlighted 'preferences for Ayurveda and dietary practices' and inconsistent EOL-preference communication; inpatient deaths 27% vs 12%. Sikh patients are a minority within the aggregate. ER - TY - JOUR ID - cit_deweyer_palliative_sedation_scoping_2026 TI - Christian and Indian religions on palliative sedation: a scoping study AU - De Weyer, N., Lambaerts, J., & Broeckaert, B. PY - 2026 JO - Annals of Palliative Medicine DO - 10.21037/apm-2025-aw-129 UR - https://pubmed.ncbi.nlm.nih.gov/42273819/ Y2 - 2026/09/15 N1 - PMID 42273819. Ann Palliat Med 2026;15(3):47. KU Leuven scoping study (PRISMA-ScR) across four Christian denominations and Hinduism, Buddhism, Sikhism. Indian religions 'lack robust explicit authoritative statements but commonly value consciousness at the moment of death'; sedation 'could be an option.' No Sikh-specific position reported. ER - TY - JOUR ID - cit_padela_islamic_eol_2017 TI - Islamic perspectives on clinical intervention near the end-of-life: We can but must we? AU - Padela, A. I., & Qureshi, O. PY - 2017 JO - Medicine, Health Care and Philosophy DO - 10.1007/s11019-016-9729-y UR - https://pubmed.ncbi.nlm.nih.gov/27613411/ Y2 - 2026/09/15 N1 - PMID 27613411. Med Health Care Philos 2017;20(4):545-559. Sunni ethico-legal analysis grounding non-intervention near the end of life in karamah (dignity) and hurmah (inviolability). Supports the withdrawal and goals-of-care statements; does not speak for other Islamic schools. ER - TY - JOUR ID - cit_rosenberg_jewish_palliative_2020 TI - Top Ten Tips Palliative Care Clinicians Should Know About Caring for Jewish Patients AU - Rosenberg, L. B., Goodlev, E. R., Izen, S. E., et al. PY - 2020 JO - Journal of Palliative Medicine DO - 10.1089/jpm.2020.0601 UR - https://pubmed.ncbi.nlm.nih.gov/33085936/ Y2 - 2026/09/15 N1 - PMID 33085936. J Palliat Med 2020;23(12):1658-1661. Written with rabbis and a cantor alongside palliative clinicians; covers inpatient care, advance care planning and bereavement. States that identity, practice and belief vary widely among Jewish patients. ER - TY - JOUR ID - cit_tarabeih_posthumous_organ_donation_2023 TI - Posthumous Organ Donation in Islam, Christianity, and Judaism: How Religious Beliefs Shape the Decision to Donate AU - Tarabeih, M., Marey-Sarwan, I., Amiel, A., & Na'amnih, W. PY - 2023 JO - OMEGA - Journal of Death and Dying DO - 10.1177/00302228231183191 UR - https://pubmed.ncbi.nlm.nih.gov/37311213/ Y2 - 2026/09/15 N1 - PMID 37311213. Omega 2023;92(1):322-340, review. Reports positive positions on organ donation across the three traditions, conditioned on consent, definition of brain death and respect for the body. Describes religious leadership positions, not individual preferences. ER - TY - JOUR ID - cit_ornstein_orthodox_jewish_terminal_2025 TI - Medical Professionals' Perceptions of and Experiences With Terminally Ill Orthodox Jewish Patients AU - Ornstein, M. C., & Harris, D. PY - 2025 JO - American Journal of Hospice and Palliative Medicine DO - 10.1177/10499091241312395 UR - https://pubmed.ncbi.nlm.nih.gov/39754558/ Y2 - 2026/09/15 N1 - PMID 39754558. Am J Hosp Palliat Care 2025;43(2):133-138. Survey of 73 clinicians. Reports that a rabbinic authority is not always involved, and recommends early direct contact with a rabbi only where the patient wants it. Clinician-reported, not patient-reported. ER - TY - JOUR ID - cit_sullivan_catholic_eol_2020 TI - End-of-Life Care for the Catholic Patient #399 AU - Sullivan, M. C., Henson, D., & Hess, D. PY - 2020 JO - Journal of Palliative Medicine DO - 10.1089/jpm.2020.0295 UR - https://pubmed.ncbi.nlm.nih.gov/32877283/ Y2 - 2026/09/15 N1 - PMID 32877283. J Palliat Med 2020;23(9):1273-1274, Fast Facts #399. Cited for scope only: PubMed lists no abstract, so specific wording is unverified here. The ordinary-and-extraordinary-means statement rests on Nowarska 2015 instead. ER - TY - JOUR ID - cit_nowarska_catholic_hydration_2015 TI - Clinically assisted hydration and the Liverpool Care Pathway: Catholic ethics and clinical evidence AU - Nowarska, A. PY - 2015 JO - Journal of Medical Ethics DO - 10.1136/medethics-2013-101533 UR - https://pubmed.ncbi.nlm.nih.gov/25034970/ Y2 - 2026/09/15 N1 - PMID 25034970. J Med Ethics 2015;41(8):645-649. Works through sanctity of life and the ordinary/extraordinary means distinction, concluding that forgoing clinically assisted hydration can be compatible with Catholic ethics for some dying patients. Analysis, not magisterial teaching. ER - TY - ELEC ID - cit_sikh_coalition_healthcare_provider_guidelines_2020 TI - Sikh Patient Healthcare Provider Guidelines AU - Sikh Coalition PY - 2020 PB - Sikh Coalition UR - https://www.sikhcoalition.org/wp-content/uploads/2020/04/healthcare-provider-guidelines.pdf Y2 - 2026/09/15 N1 - Healthcare-provider guide. It says observance varies; for Sikhs who maintain the Five Ks, they should not be removed without consent. If articles are removed for a medical procedure, the guide says they should be returned and placed with or on the body after death. Patient or family consultation comes first. ER - TY - JOUR ID - cit_choudry_faiths_end_of_life_2018 TI - An overview of the spiritual importances of end-of-life care among the five major faiths of the United Kingdom AU - Choudry M, Latif A, Warburton KG PY - 2018 JO - Clinical Medicine (London) DO - 10.7861/clinmedicine.18-1-23 UR - https://pmc.ncbi.nlm.nih.gov/articles/PMC6330909/ Y2 - 2026/09/15 N1 - PMCID PMC6330909; PMID 29436435. Clinical review. In its Sikhism section, it describes the Five Ks as maintained on the person, says they should be respected and not removed unless life-threatening, and describes families wanting the Five Ks intact when the body is released after death. The paper notes substantial variation in religious practice. ER -